Hostname: page-component-6587cd75c8-4pd2k Total loading time: 0 Render date: 2025-04-24T02:31:49.484Z Has data issue: false hasContentIssue false
  • English
  • Français

Victims in Our Own Minds? IRBs in Myth and Practice

Published online by Cambridge University Press:  01 January 2024

Laura Stark
Get access Rights & Permissions [Opens in a new window]

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Comment on the Presidential Address
Information
Law & Society Review , Volume 41 , Issue 4 , December 2007 , pp. 777 - 786
Copyright
© 2007 Law and Society Association.

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Article purchase

Temporarily unavailable

Footnotes

I am grateful to Renée Beard, Alan Czaplicki, Steve Hoffman, Susan Silbey, and Alistair Sponsel for their comments on earlier drafts of this piece.

References

References: Archival Sources

Records of the National Institutes of Health, National Archives and Records Administration II, College Park, MD (cited as NARAII: 443).Google Scholar
Records of the NIH Clinical Center, Office of NIH History, National Institutes of Health, Bethesda, MD (cited as ONIHH: CC).Google Scholar

Published Sources

Altbach, Philip (1980) “The Crisis of the Professoriate,” 448 Annals of the American Academy of Political and Social Science 1–14.CrossRefGoogle Scholar
American Association of University Professors (2006) “Research on Human Subjects: Academic Freedom and the Institutional Review Board,” Committee A Report, http://www.aaup.org/AAUP/About/committees/committee+repts/CommA/ResearchonHumanSubjects.htm (accessed 2 April 2007).Google Scholar
Bledsoe, Caroline, et al. (2007) “Regulating Creativity: Research and Survival in the IRB Iron Cage,” 101 Northwestern University School of Law Rev. 593–642.Google Scholar
Bosk, Charles, & De Vries, Raymond (2004) “Bureaucracies of Mass Deception: Institutional Review Boards and the Ethics of Ethnographic Research,” 595 The Annals of the American Academy of Political and Social Sciences 249–63.Google Scholar
Center for Advanced Study (2005) “The Illinois White Paper: Improving the System for Protecting Human Subjects: Counteracting IRB‘Mission Creep,’” http://www.law.uiuc.edu/conferences/whitepaper/papers/SSRN-id902995.pdf (accessed 2 April 2007).Google Scholar
Crowther-Heyck, Hunter (2006) “Patrons of the Revolution: Ideals and Institutions in Postwar Behavioral Sciences,” 97 Isis 420–46.CrossRefGoogle Scholar
De Vries, Raymond G., & Forsberg, Carl P. (2002) “What Do IRBs Look Like? What Kind of Support Do They Receive?,” 9 Accountability in Research 199–216.CrossRefGoogle ScholarPubMed
Evans, John (2000) “A Sociological Account of the Growth of Principlism,” 30 The Hastings Center Report 31–8.CrossRefGoogle ScholarPubMed
Heimer, Carol A., & Staffen, Lisa R. (1998) For the Sake of the Children: The Social Organization of Responsibility in the House and the Home. Chicago: Univ. of Chicago Press.Google Scholar
Katz, Jack (2006) “Ethical Escape Routes for Underground Ethnographers,” 33 American Ethnologist 499–506.CrossRefGoogle Scholar
Katz, Jay (1995) “Do We Need Another Advisory Commission on Human Experimentation?,” 25 Hastings Center Report 29–31.CrossRefGoogle ScholarPubMed
Milgram, Stanley (1974) Obedience to Authority. New York: Harper and Row.Google Scholar
Robin, Ron (2001) The Making of the Cold War Enemy: Culture and Politics in the Military-Intellectual Complex. Princeton, NJ: Princeton Univ. Press.Google Scholar
Shannon, James A. (1961) “The National Institutes of Health: Programmes and Problems,” 155 Proceedings of the Royal Society of London 171–82.Google Scholar
Shweder, Richard (2006) “Protecting Human Subjects and Preserving Academic Freedom: Prospects at the University of Chicago,” 33 American Ethnologist 507–18.CrossRefGoogle Scholar
Stark, Laura (2006) “Morality in Science: How Research Is Evaluated in the Age of Human Subjects Regulation.” Ph.D. dissertation, Department of Sociology, Princeton University.Google Scholar