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Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the “Benefit to Families”

Published online by Cambridge University Press:  01 January 2021

Benjamin S. Wilfond ,
Conrad V. Fernandez  and
Robert C. Green
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Extract

Should children ever have genetic testing for adultonset conditions? For the last two decades, there have been general recommendations from professional organizations that discourage such testing. Until recently, such testing was only plausible in the context of a family history of a Mendelian condition that might prompt the parents (or an adolescent) to request testing for the adult-onset condition present within the family. In this context there has been a gradual shift in the direction of suggesting parents should have greater discretion to obtain such testing after careful consideration of risks and benefits by the family and the health care provider.

Type
Symposium
Information
Journal of Law, Medicine & Ethics , Volume 43 , Issue 3 , Autumn 2015 , pp. 552 - 558
Copyright
Copyright © American Society of Law, Medicine and Ethics 2015

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