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Rights to Specialized Health Care in Norway: A Normative Perspective

Published online by Cambridge University Press:  01 January 2021

Extract

Is it possible to use the courts - or rights instruments - to advance fair access to health care? This article examines this question within the context of the Norwegian public health care system - one special example of the Scandinavian welfare system. In particular, it asks four basic questions: What are the normative justifications for rights to health care? What were the political processes and concerns leading up to the current Patients Rights Act in Norway? What kind of legal status do these rights have? How can rights to access be implemented?

Patient rights do not only concern the right to access to health care; they also include the right to information, the right to participate in decision-making, and informed consent. This article examines only the former aspect, the use of the legal system to secure access to prioritized specialized health care services.

Type
Article
Copyright
Copyright © American Society of Law, Medicine and Ethics 2005

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References

Nylenna, M., “Norway's Decentralized, Single-Payer Health System Faces Great Challenges,” JAMA 274, no. 2 (1995): 120124.CrossRefGoogle Scholar
Sosial – og helsedepartementet, Innsatsstyrt finansiering (ISF) – en orientering om ordningen og tenkningen rundt ordningen (Oslo: Sosial – og helsedepartementet, 1998) <www.odin.dep.no/shd/publ/finsom/finsom.html>..>Google Scholar
Braveman, P. and Gruskin, S., “Poverty, Equity, Human Rights and Health,” Bulletin of the World Health Organization 81, no. 7 (2003): 539–45.Google Scholar
Chapman, A. R., ed., Health Care Reform; A Human Rights Approach (Washington, DC: Georgetown University Press, 1994); Williams, A., Lecture, Cochrane, “All Cost Effective Treatments Should be Free … or, How Archie Cochrane Changed my Life!” Journal Epidemiology Community Health 51, no. 2 (1997): 116-20.Google Scholar
Daniels, N., Just Health Care: Studies in Philosophy and Health Policy (Cambridge, MA: Cambridge University Press, 1985); Daniels, N., “Just Rationing: Programmatic Considerations,” Bioethics 7 (1993): 224-233.Google Scholar
Rawls, J., A Theory of Justice (Cambridge, MA: The Belknap Press of Harvard University Press, 1971).Google Scholar
Brock, D. W. and Daniels, N., “Ethical Foundations of the Clinton Administration's Proposed Health Care System,” JAMA 271 (1994): 11891196.CrossRefGoogle Scholar
Rawls, J., A Theory of Justice (Cambridge, MA: The Belknap Press of Harvard University Press, 1971).Google Scholar
Daniels, N., “Justice and Health Care Rationing: Lessons from Oregon,” in Strosberg, M. A. E. A., ed., Rationing America's Medical Care: The Oregon Plan and Beyond (Washington, DC: The Brookings Institution, 1992).Google Scholar
Nord, E., “The Person-Trade-Off Approach to Valuing Health Care Programs,” (see comments), Medical Decision Making 15, no. 3 (1995): 201–8.CrossRefGoogle Scholar
Scanlon, T. M., “Rights, Goals, and Fairness,” in Scheffler, S., ed. Consequentialism and Its Critics (Oxford: Oxford University Press, 1988).Google Scholar
Hutubessy, R., Chisholm, D., T. Tan-Torres Edejer, and on behalf of WHO-CHOICE, “Generalized Cost-Effectiveness Analysis for National-Level Priority-Setting in the Health Sector,” Cost Effectiveness and Resource Allocation 1, no. 8 (2003): 129.CrossRefGoogle Scholar
Nord, E., Fra seminarserie om veiledende verditall for prioritering i helsevesenet (Norwegian) (Oslo: Folkehelsa, 1993); Nord, E., “The Relevance of Health State after Treatment in Prioritising between Different Patients,” Journal of Medical Ethics 19 (1993): 37-42; Nord, E., “Unjustified Use of the Quality of Well-Being Scale in Priority Setting in Oregon,” Health Policy 24 (1993): 45-53; Nord, E., “The Use of Cost-Value Analysis to Judge Patients' Right to Treatment,” Medical Law 14, no. 7-8 (1995): 553-8; Nord, E., Pinto, J. L., Richardson, J., Menzel, P., Ubel, P., “Incorporating Societal Concerns for Fairness in Numerical Valuations of Health Programmes,” Health Economics 8, no. 1 (1999): 25-39; Nord, E., Richardson, J., Macarounas-Kirchmann, K., “Social Evaluation of Health Care Versus Personal Evaluation of Health States. Evidence on the Validity of Four Health-State Scaling Instruments using Norwegian and Australian Surveys,” International Journal of Technology Assessment in Health Care 9 (1993): 463-478; Nord, E., Richardson, J., Street, A., Kuhse, H., Singer, P., “Maximizing Health Benefits vs. Egalitarianism: An Australian Survey of Health Issues,” Social Science Medicine 41, no. 10 (1995): 1429-37; Nord, E., Cost-Value Analysis in Health Care (Cambridge: Cambridge University Press, 1999).Google Scholar
Parfit, D., “Equality or Priority?” in Clayton, M. and Williams, A., eds., The Ideal of Equality (New York: Palgrave, Macmillan, 2002).Google Scholar
Daniels, N., “Four Unsolved Rationing Problems; A Challenge,” Hastings Center Report 24, no. 4 (1994): 27–9; Daniels, N. and Sabin, J., Setting Limits Fairly; Can We Learn to Share Scarce Medical Resources? (Cambridge: Oxford University Press, 2002); New, B., “The Rationing Agenda in the NHS; Rationing Agenda Group,” British Medical Journal 312, no. 7046 (1996): 1593-601; Norheim, O. F., “The Role of Evidence in Health Policy Making: A Normative Perspective,” Health Care Analysis 10 (2002): 309–17.Google Scholar
Norheim, O. F., “Limiting Access to Health Care: A Contractualist Approach to Fair Rationing,” Ph.D. Dissertation, Institute of Medical Ethics (University of Oslo: Oslo, 1996); New, B., “The Rationing Agenda in the NHS; Rationing Agenda Group,” British Medical Journal 312, no. 7046 (1996): 1593-601.Google Scholar
Norheim, O. F., “Norway,” in Ham, C. and Robert, G., eds. Reasonable Rationing (London: Open University Press, 2003).Google Scholar
Norges Offentlige Utredninger, Guidelines for Priority Setting in the Norwegian Health Care System (Norwegian) (Oslo: Universitetsforlaget, 1987): at 23.Google Scholar
Norheim, O. F., “Guidelines for Priority-Setting in the Norwegian Health Care System,” in Szawarski, Z. and Evans, D., eds., Solidarity, Justice and Health Care Priorities (Linköping: Health Service Studies 8, 1993); Rolstad, K., “Norway,” in Honigs-Baum, F., Holmström, S. and Calltorp, J., eds., Making Choices for Health Care (Abingdon: Radcliffe Medical Press, 1997); Ham, C. and Locock, L., “International Approaches to Priority Setting in Health Care: An Annotated Listing of Official and Semi-Official Publications. With a Selection of Key Academic References,” Health Services Management Centre University of Birmingham, vol. Handbook series 25 ((Birmingham: University of Birmingham, 1998).Google Scholar
Norges Offentlige Utredninger, Guidelines for Priority Setting in the Norwegian Health Care System (Norwegian) (Oslo: Universitetsforlaget, 1987): At 23.Google Scholar
Abyholm, G., Riise, G., Melsom, M. N., Piene, H., Gulbrandsen, I., “The Waiting List Guarantee and its Violation. Characteristics of Patients who have been Waiting More than Five Months,” (see comments) Tidsskr Nor Laegeforen 117, no. 3 (1997): 366–8; Bjorndal, A. and Guldvog, B., “Problems with Waiting Lists,” Tidsskr Nor Laegeforen 116, no. 8 (1996): 943-4; Kristoffersen, M. and Piene, H., “The Waiting List Guarantee. Variations in Frequency of Receiving the Waiting List Guarantee,” Tidsskr Nor Laegeforen 117, no. 3 (1997): 361-5; Piene, H., Hauge, H. K., Nyen, P. A., “Waiting Lists Guarantee in Health Care. Some Theoretical Reflections,” Tidsskr Nor Laegeforen 117, no. 3 (1997): 370-4; Piene, H., “Waiting Lists and Therapeutic Guarantees – a Wall of Unwillingness?” Tidsskr Nor Laegeforen 118, no. 25 (1998): 3920; Rasmussen, K., Haga, D., Larsen, M. L., Murer, F., Rafter, B., Rosenlund, A. F., Sorlie, D., “An Alternative to Current Waiting List Guarantee,” Tidsskr Nor Laegeforen 117, no. 15 (1997): 2210-3; Petersen, H., Hilt, B., Kaasa, S., “Sick Leave While on a Waiting List,” Tidsskr Nor Laegeforen 119, no. 21 (1999): 3137-9.Google Scholar
Kristoffersen, M., Piene, H., “The Waiting List Guarantee. Variations in Frequency of Receiving the Waiting List Guarantee,” Tidsskr Nor Laegeforen 117, no. 3 (1997): 361–5.Google Scholar
Norges Offentlige Utredninger, Priority Setting Revisited (Norwegian) (Oslo: Statens forvaltningstjeneste: Statens trykking, 1997): at 18.Google Scholar
Sosial – og Helsedepartementet (Ministry of Health – and Social Affairs) Ot prp nr 12 (1998–99) Lov om pasientrettigheter (pasientrettighetsloven) (The Patient's Right Act) (Oslo, 1998); Sosial – og helsedepartementet, Lov om pasientrettigheter av 2. juli 1999 nr 63 (pasientrettighetsloven) (The Patient's Right Act, July 2, no 63) (Oslo, 1999).Google Scholar
Sosial – og Helsedepartementet (Ministry of Health – and Social Affairs), Forskrifter om prioritering av helsetjenester og rett til helsehjelp, ventelisteregistering og reiseutgifter ved fritt sykehusvalg (Guidance on Priority Setting in Health, the Right to Health Care, Waiting Lists Registries, and Expenditures Related to Free Choice of Provider (Oslo: Sosial og Helsedepartementet, 2000).Google Scholar
Sosial – og helsedirektoratet, Lov om pasientrettigheter (The Patient's Right Act) Rundskriv 15/12–2004 (Oslo: Sosial – og Helsedirektoratet, 2004).Google Scholar
Dworkin, R., Taking Rights Seriously (London: Duckworth, 1977).Google Scholar
Halvorsen, M., “‘Nødvendig helsehjelp’ som redskap for prioriteringer” (“The Concept of ‘Necessary Health Care Services’ as a Tool for Priority Setting”), Lov og rett 43, no. 3 (2004): 143–56.Google Scholar
Norheim, O. F., “Limiting Access to Health Care: A Contractualist Approach to Fair Rationing,” Ph.D. Dissertation, Institute of Medical Ethics (University of Oslo: Oslo, 1996).Google Scholar
Halvorsen, M., “‘Nødvendig helsehjelp’ som redskap for prioriteringer,” (“The Concept of ‘Necessary Health Care Services’ as a Tool for Priority Setting”), Lov og rett 43, no. 3 (2004): 143–56.Google Scholar
Norheim, O. F., Fougner, J., Soreide, O., Storm-Mathisen, I., Strengehagen, E., “Board of Appeals for Decision on Reimbursement of Expenses for Medical Treatment Abroad,” (Norwegian) Tidsskrift for Den Norske Lœgeforening 12, no. 16 (2002): 1560–3.Google Scholar
Norheim, O. F., Praktisering av prioriteringsforskriften i Helse Vest (The Application of the Patient's Right Act in the Western Health Region) (Bergen: Helse Vest, 2005).Google Scholar
Daniels, N., Sabin, J., Setting Limits Fairly. Can We Learn to Share Scarce Medical Resources? (Cambridge: Oxford University Press, 2002).CrossRefGoogle Scholar
Norheim, O. F., “Praktisering av prioriteringsforskriften i Helse Vest,” (The Application of the Patient's Right Act in the Western Health Region) (Bergen: Helse Vest, 2005).Google Scholar
NPR. 2005. Ventelistedata per (Data on waiting lists) 30.04.2005. <http://www.npr.no/ven/doc/ventelistenotat_1T05.pdf> (last visited September 28, 2005).+(last+visited+September+28,+2005).>Google Scholar