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363 The art and science of data navigation for translational research

Published online by Cambridge University Press:  11 April 2025

Ram Gouripeddi
Affiliation:
University of Utah
Vanessa Amburgey
Affiliation:
University of Utah
Mary Irion
Affiliation:
University of Utah
Randy Madsen
Affiliation:
University of Utah
Julio Facelli
Affiliation:
University of Utah
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Abstract

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Objectives/Goals: Translational researchers spend significant amounts of time finding available datasets and other research data resources for their purposes. Objectives of this program are develop and evaluate a multipronged approach to supporting researchers with existing data resources. Methods/Study Population: We established a dedicated service with expertise in data resources to increase awareness, understanding, and utilization of existing data resources. This program assists investigators and trainees discover appropriate data resources, formulate scientific problems in computable formats, advise on state-of-the-art data analytics, data management, build collaborations, mentor data users, and develop a service pipeline for streamlined data resource project management. This is accomplished through these essential functions: (1) Discover, catalog, document, and manage metadata resources, (2) train and present data resources to the research community, (3) provide individual consultations, and (4) explore and assess novel data resources. Results/Anticipated Results: In a phased approach, the data navigation program is performing outreach to the research community and integrating with existing data efforts on campus, presenting and demonstrating existing data resources, established a consultation service, and building core competencies into long-term usage and navigation of resources across campus. Evaluating the program monthly has shown an increase in various metrics for evaluating commitment and engagement including number of requests for access to data resource, consultations, publications and presentations, co-authorship, and proposals. Unawareness and inappropriate use of data resources leads to delays in performing research and potentially unnecessary duplications of efforts. Discussion/Significance of Impact: Our data navigation program has increased use of data resources in research. Next steps are to continue evaluation and further streamline informatics approaches to data discovery, abstraction, formulation, and analysis. Harmonized data resource programs are important translational science approach to foster the next generation of research.

Type
Informatics, AI and Data Science
Creative Commons
Creative Common License - CCCreative Common License - BYCreative Common License - NCCreative Common License - ND
This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work.
Copyright
© The Author(s), 2025. The Association for Clinical and Translational Science