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Family Break-Down and Stress in Huntington's Chorea

Published online by Cambridge University Press:  31 July 2008

Audrey Tyler
Affiliation:
Section of Medical Genetics, Department of Medicine
P. S. Harper
Affiliation:
Section of Medical Genetics, Department of Medicine
Kathleen Davies
Affiliation:
Department of Medical Statistics, Welsh National School of Medicine, Cardiff
R. G. Newcome
Affiliation:
Department of Medical Statistics, Welsh National School of Medicine, Cardiff

Summary

The incidence of family breakdown and stress has been examined in an unselected group of 92 South Wales families, each containing a patient suffering from Huntington's chorea, and related to the onset and duration of the disease, age of the patient, and behavioural symptoms shown. The frequency of actual and attempted suicide is analysed and the effects of the disorder on the primary care agent for the patient discussed. Some of the effects on children and the needs of the families for support and practical help are outlined. It is concluded that family support is an essential factor in any programme aimed at the long-term alleviation and prevention of Huntington's chorea.

Type
Research Article
Copyright
Copyright © 1983, Cambridge University Press

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