Hostname: page-component-cd9895bd7-lnqnp Total loading time: 0 Render date: 2024-12-25T07:06:51.588Z Has data issue: false hasContentIssue false

Estimates of the prevalence, incidence and severity of dementia in Ireland

Published online by Cambridge University Press:  18 July 2018

T. Pierse*
Affiliation:
Centre for Economic and Social Research on Dementia, National University of Ireland, Galway, Ireland
E. O’ Shea
Affiliation:
Centre for Economic and Social Research on Dementia, National University of Ireland, Galway, Ireland
P. Carney
Affiliation:
Centre for Economic and Social Research on Dementia, National University of Ireland, Galway, Ireland
*
*Address for correspondence: T. Pierse, Postdoctoral Researcher, Centre for Economic and Social Research on Dementia, ILAS Building, NUI Galway, Galway, Ireland. (Email: [email protected])

Abstract

Objectives

In this paper we provide revised estimates of the prevalence of dementia in Ireland, the number of new cases per year and the severity mix. These estimates are a necessary input for any assessment of the potential demand for services and supports for people with dementia across all care settings in Ireland.

Methods

The prevalence, incidence and severity stage of dementia are calculated by applying rates from prominent international studies to population data from the 2016 census.

Results

We show that the total number of people with dementia in Ireland ranges between 39 272 and 55 266, depending on the international rates used to measure prevalence. The incidence of dementia in Ireland has increased as the population has aged, to at least 7752 new cases per year. We estimate that there are at least 11 175 people living at home in the community in Ireland with dementia who have a serious functional impairment, based on an Activities of Daily Living measurement, of which an estimated 1876 are chair or bedbound.

Conclusions

Without a national prevalence study it is not possible to be precise about the estimates of the number of people with dementia in Ireland. However, having credible upper and lower bound estimates for the number of people with dementia, the potential number of new cases per year and severity rates is useful for planners and those charged with the responsibility of making resource allocation decisions in dementia.

Type
Original Research
Copyright
© College of Psychiatrists of Ireland 2018 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

ADI (2015). World Alzheimer Report 2015: The Global Impact of Dementia . Alzheimer’s Disease International: London.Google Scholar
Alzheimer’s Disease International (ADI) (2009). World Alzheimer’s Report 2009. Alzheimer’s Disease International: London.Google Scholar
Alzheimer Europe (2009). EUROCODE: Report of WP 7 2006 Prevalence of Dementia in Europe.CrossRefGoogle ScholarPubMed
Andersen, K, Lolk, A, Nielsen, H, Andersen, J, Olsen, C, Kragh‐Ssrensen, P (1997). Prevalence of very mild to severe dementia in Denmark. Acta Neurologica Scandinavica 96, 8287.CrossRefGoogle Scholar
Boersma, F, Eefsting, JA, van den Brink, W, Koeter, M, van Tilburg, W (1998). Prevalence of dementia in a rural Netherlands population and the influence of DSM-III-R and CAMDEX criteria for the prevalence of mild and more severe forms. Journal of Clinical Epidemiology 51, 189197.CrossRefGoogle Scholar
Brayne, C, Calloway, P (1989). An epidemiological study of dementia in a rural population of elderly women. The British Journal of Psychiatry 155, 214219.CrossRefGoogle ScholarPubMed
Cahill, S, Diaz-Ponce, AM, Coen, RF, Walsh, C (2010). The underdetection of cognitive impairment in nursing homes in the Dublin area. The need for on-going cognitive assessment. Age and Ageing 39, 128131.Google Scholar
Central Statistics Office (CSO) (2013). Population and Labour Force Projections. Central Statistics Office: Dublin, Ireland. (http://cso.ie/en/media/csoie/releasespublications/documents/population/2013/poplabfor2016_2046.pdf). Accessed 9 May 2016.Google Scholar
Central Statistics Office (CSO) (2016). Census 2016. Central Statistics Office: Cork.CrossRefGoogle Scholar
Clarke, M, Jagger, C, Anderson, J, Battcock, T, Kelly, F, Stern, MC (1991). The prevalence of dementia in a total population: a comparison of two screening instruments. Age and Ageing 20, 396403.Google Scholar
Donnelly, DS, O’Brien, DM, Begley, DE, Brennan, MJ (2016). “I’d prefer to stay at home but I don’t have a choice”: meeting older people’s preference for care: policy, but what about practice? University College Dublin, Dublin.CrossRefGoogle ScholarPubMed
Erkinjuntti, T, Østbye, T, Steenhuis, R, Hachinski, V (1997). The effect of different diagnostic criteria on the prevalence of dementia. New England Journal of Medicine 337, 16671674.CrossRefGoogle Scholar
Ferri, CP, Prince, M, Brayne, C, Brodaty, H, Fratiglioni, L, Ganguli, M, Hall, K, Hasegawa, K, Hendrie, H, Huang, Y (2006). Global prevalence of dementia: a Delphi consensus study. The Lancet 366, 21122117.CrossRefGoogle ScholarPubMed
Fratiglioni, L, Forsell, Y, Agüero Torres, H, Winblad, B (1994). Severity of dementia and institutionalization in the elderly: prevalence data from an urban area in Sweden. Neuroepidemiology 13, 7988.Google Scholar
Galeotti, F, Giusti, A, Meduri, F, Raschetti, R, Scardetta, P, Vanacore, N (2013). Epidemiological Data on Dementia: Synthesis Report. ALzheimer COoperation Valuation in Europe (ALCOVE), Paris.CrossRefGoogle ScholarPubMed
Garre-Olmo, J, Vilalta-Franch, J, Calvó-Perxas, L, Monserrat-Vila, S, López-Pousa, S (2014). Dependence scale for Alzheimer’s disease relationship with other clinical indicators and psychometric properties. Journal of Geriatric Psychiatry and Neurology 28, 117125.Google Scholar
Health Information and Quality Authority (HIQA) (2016). Annual Overview Report on the Regulation of Designated Centres for Older People – 2015. Health Information and Quality Authority: Cork.CrossRefGoogle ScholarPubMed
Helmer, C, Pérès, K, Letenneur, L, Guttiérez-Robledo, LM, Ramaroson, H, Barberger-Gateau, P, Fabrigoule, C, Orgogozo, J-M, Dartigues, J-F (2006). Dementia in subjects aged 75 years or over within the PAQUID cohort: prevalence and burden by severity. Dementia and Geriatric Cognitive Disorders 22, 8794.CrossRefGoogle ScholarPubMed
Hofman, A, Rocca, WA, Brayne, C, Breteler, M, Clarke, M, Cooper, B, Copeland, J, Dartigues, J, Droux, ADS, Hagnell, O (1991). The prevalence of dementia in Europe: a collaborative study of 1980–1990 findings. International Journal of Epidemiology 20, 736748.CrossRefGoogle Scholar
Kingston, A, Wohland, P, Wittenberg, R, Robinson, L, Brayne, C, Matthews, FE, Jagger, C (2017). Is late-life dependency increasing or not? A comparison of the Cognitive Function and Ageing Studies (CFAS). The Lancet 390, 16761684.CrossRefGoogle ScholarPubMed
Lambert, M, Bickel, H, Prince, M, Fratiglioni, L, Von Strauss, E, Frydecka, D, Kiejna, A, Georges, J, Reynish, E (2014). Estimating the burden of early onset dementia; systematic review of disease prevalence. European Journal of Neurology 21, 563569.Google Scholar
Launer, L, Andersen, K, Dewey, M, Letenneur, L, Ott, A, Amaducci, L, Brayne, C, Copeland, J, Dartigues, J-F, Kragh-Sorensen, P (1999). Rates and risk factors for dementia and Alzheimer’s disease results from EURODEM pooled analyses. Neurology 52, 7878.CrossRefGoogle Scholar
Manthorpe, J, Samsi, K, Campbell, S, Abley, C, Keady, J, Bond, J, Watts, S, Robinson, L, Gemski, A, Warner, J (2011). The transition from cognitive impairment to dementia: older people’s experiences. NIHR Service Delivery and Organisation Programme: Southampton.CrossRefGoogle Scholar
Matthews, FE, Arthur, A, Barnes, LE, Bond, J, Jagger, C, Robinson, L, Brayne, C, the Medical Research Council Cognitive Function and Ageing Collaboration (2013). A two-decade comparison of prevalence of dementia in individuals aged 65 years and older from three geographical areas of England: results of the Cognitive Function and Ageing Study I and II. The Lancet 382, 14051412.CrossRefGoogle ScholarPubMed
Matthews, FE, Bennett, H, Wittenberg, R, Jagger, C, Dening, T, Brayne, C (2016a). Who lives where and does it matter? Changes in the health profiles of older people living in long term care and the community over two decades in a high income country. PLoS One 11, e0161705.Google Scholar
Matthews, FE, Stephan, BCM, Robinson, L, Jagger, C, Barnes, LE, Arthur, A, Brayne, C, Cognitive Function and Ageing Studies Collaboration (2016b). A two decade dementia incidence comparison from the Cognitive Function and Ageing Studies I and II. Nat Commun, 7.Google Scholar
O’Connor, DW, Pollitt, P, Hyde, J, Fellows, J, Miller, N, Brook, C, Reiss, B, Roth, M (1989). The prevalence of dementia as measured by the Cambridge Mental Disorders of the Elderly Examination. Acta Psychiatrica Scandinavica 79, 190198.CrossRefGoogle ScholarPubMed
O’Shea, E (2007). Implementing Policy for Dementia Care in Ireland: The Time for Action is Now. National University of Ireland, Galway: Galway.Google Scholar
O’Shea, E, Cahill, S, Pierce, M (2017). Developing and Implementing Dementia Policy in Ireland. NUI Galway: Galway.CrossRefGoogle ScholarPubMed
Pierce, M, Cahill, S, O’Shea, E (2013). Planning dementia services: new estimates of current and future prevalence rates of dementia for Ireland. Irish Journal of Psychological Medicine 30, 1320.CrossRefGoogle ScholarPubMed
Prince, M, Knapp, M, Guerchet, M, McCrone, P, Prina, M, Comas-Herrera, A, Wittenberg, R, Adelaja, B, Hu, B, King, D, Rehill, A, Salimkumar, D (2014). Dementia UK: Update, 2nd edn. Alzheimer’s Society UK: London.CrossRefGoogle ScholarPubMed
Rocca, WA, Petersen, RC, Knopman, DS, Hebert, LE, Evans, DA, Hall, KS, Gao, S, Unverzagt, FW, Langa, KM, Larson, EB (2011). Trends in the incidence and prevalence of Alzheimer’s disease, dementia, and cognitive impairment in the United States. Alzheimer’s & Dementia 7, 8093.CrossRefGoogle ScholarPubMed
Satizabal, CL, Beiser, AS, Chouraki, V, Chêne, G, Dufouil, C, Seshadri, S (2016). Incidence of dementia over three decades in the Framingham Heart Study. New England Journal of Medicine 374, 523532.CrossRefGoogle ScholarPubMed
Schaller, S, Mauskopf, J, Kriza, C, Wahlster, P, Kolominsky-Rabas, PL (2015). The main cost drivers in dementia: a systematic review. International Journal of Geriatric Psychiatry 30, 111129.Google ScholarPubMed
Stokes, LA, Combes, H, Stokes, G (2014). Understanding the dementia diagnosis: the impact on the caregiving experience. Dementia 13, 5978.CrossRefGoogle ScholarPubMed
Timmons, S, Manning, E, Barrett, A, Brady, NM, Browne, V, O’Shea, E, Molloy, DW, O’Regan, NA, Trawley, S, Cahill, S (2015). Dementia in older people admitted to hospital: a regional multi-hospital observational study of prevalence, associations and case recognition. Age and Ageing 44, 993999.Google Scholar
Toot, S, Swinson, T, Devine, M, Challis, D, Orrell, M (2016). Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis. International Psychogeriatrics 29, 114.CrossRefGoogle ScholarPubMed
Wu, Y-T, Fratiglioni, L, Matthews, FE, Lobo, A, Breteler, MM, Skoog, I, Brayne, C (2016). Dementia in western Europe: epidemiological evidence and implications for policy making. The Lancet Neurology 15, 116124.Google ScholarPubMed
Ziegler-Graham, K, Brookmeyer, R, Johnson, E, Arrighi, HM (2008). Worldwide variation in the doubling time of Alzheimer’s disease incidence rates. Alzheimer’s & Dementia 4, 316323.CrossRefGoogle ScholarPubMed
Supplementary material: PDF

Pierse et al. supplementary material

Table S1 and Figures S1-S2

Download Pierse et al. supplementary material(PDF)
PDF 1.7 MB