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What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services

Published online by Cambridge University Press:  15 July 2009

Henriëtte G. van der Roest ,
Franka J. M. Meiland ,
Hannie C. Comijs ,
Els Derksen ,
Aaltje P. D. Jansen ,
Hein P. J. van Hout ,
Cees Jonker  and
Rose-Marie Dröes
Henriëtte G. van der Roest*
Affiliation:
Department of Psychiatry/Alzheimer Center, EMGO Institute for Health and Care Research, VU University Medical Center/GGZ inGeest, Amsterdam, The Netherlands
Franka J. M. Meiland
Affiliation:
Department of Psychiatry/Alzheimer Center, EMGO Institute for Health and Care Research, VU University Medical Center/GGZ inGeest, Amsterdam, The Netherlands
Hannie C. Comijs
Affiliation:
Department of Psychiatry/Alzheimer Center, EMGO Institute for Health and Care Research, VU University Medical Center/GGZ inGeest, Amsterdam, The Netherlands
Els Derksen
Affiliation:
Alzheimer Center Nijmegen, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands
Aaltje P. D. Jansen
Affiliation:
Department of General Practice, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
Hein P. J. van Hout
Affiliation:
Department of General Practice, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
Cees Jonker
Affiliation:
Department of Psychiatry/Alzheimer Center, EMGO Institute for Health and Care Research, VU University Medical Center/GGZ inGeest, Amsterdam, The Netherlands
Rose-Marie Dröes
Affiliation:
Department of Psychiatry/Alzheimer Center, EMGO Institute for Health and Care Research, VU University Medical Center/GGZ inGeest, Amsterdam, The Netherlands
*
Correspondence should be addressed to: Ms. Henriëtte van der Roest, MSc, VU University Medical Center/GGZ inGeest, Academic Department of Psychiatry, Valeriuskliniek, Valeriusplein 9, 1075 BG Amsterdam, The Netherlands. Phone: +31 (0)20 7885 454; Fax: +31 (0)20 7885 549. Email: [email protected].
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Abstract

Background: The aging society will bring an increase in the number of people with dementia living in the community. This will mean a greater demand on care and welfare services to deliver efficient and customized care, which requires a thorough understanding of subjective and objective care needs. This study aims to assess the needs of community-dwelling people with dementia as reported by themselves and by their informal carers. The study also aims to give insight into the service use and gaps between needs and the availability of services.

Methods: 236 community-dwelling people with dementia and 322 informal carers were interviewed separately. (Un)met needs were assessed using the Camberwell Assessment of Needs for the Elderly (CANE).

Results: Most unmet needs were experienced in the domains of memory, information, company, psychological distress and daytime activities. People with dementia reported fewer (unmet) needs than their carers. Type and severity of dementia, living situation and informal carer characteristics were related to the number of reported needs.

Conclusions: This study showed a large number of unmet needs in dementia. Reasons for unmet needs are lack of knowledge about the existing service offer, a threshold to using services and insufficient services offer. These results provide a good starting point for improving community care for people with dementia.

Keywords

needs assessmentdementialiving in the communityproxy needssubjective needs
Type
Research Article
Information
International Psychogeriatrics , Volume 21 , Issue 5 , October 2009 , pp. 949 - 965
Copyright
Copyright © International Psychogeriatric Association 2009

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