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Short-term residential care for dementia patients: predictors for utilization and expected quality from a family caregiver's point of view

Published online by Cambridge University Press:  01 August 2009

Carolin Donath*
Affiliation:
Medical Psychology and Medical Sociology, Clinic for Psychiatry and Psychotherapy, Erlangen University Hospital, Erlangen, Germany
Angelika Winkler
Affiliation:
Alzheimer's Society, Brandenburg, Potsdam, Germany
Elmar Gräßel
Affiliation:
Medical Psychology and Medical Sociology, Clinic for Psychiatry and Psychotherapy, Erlangen University Hospital, Erlangen, Germany
*
Correspondence should be addressed to: Dr. rer. nat. Carolin Donath, University Clinic for Psychiatry, Schwabachanlage 6, D-91054 Erlangen, Germany. Phone: +49 913 1853 4526; Fax: +49 913 1853 6593. Email: [email protected].

Abstract

Background: Short-term residential care (SRC) has proved to be effective in reducing the burden on family caregivers of dementia patients. Nevertheless, little is known about the factors which influence its usage or the expectations of family caregivers regarding quality. In this paper we address the following questions: (i) which variables of the care situation, the caregivers and their attitudes act as predictors for the utilization of SRC facilities? (ii) What are the views of caregivers about the quality of SRC?

Methods: The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in four regions of Germany. With a 20% response it was possible to analyze the quantitative and qualitative data from 404 and 254 family caregivers respectively. Predictors for utilization were evaluated using binary logistic regression analysis. The answers to questions of quality were evaluated using qualitative content analysis.

Results: Significant predictors for the utilization of SRC are the assessment of the helpfulness of SRC and the caregiver's knowledge of the accessibility of SRC facilities. Family caregivers who had already used SRC most frequently expressed the wish for “good care” in SRC facilities, followed by a program of suitable activities for dementia patients.

Conclusions: In order to increase the rate of utilization, family caregivers must be convinced of the relevant advantages of using SRC facilities. The staff should be trained in caring for dementia patients and appropriate activities should be available.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2009

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References

Adler, G., Ott, L., Jelinski, M., Mortimer, J. and Christensen, R. (1993). Institutional respite care: benefits and risks for dementia patients and caregivers. International Psychogeriatrics, 5, 6777. doi:10.1017/S1041610293001401.Google Scholar
Brodaty, H., Thomson, C., Thompson, C. and Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537546. doi:10.1002/gps.1322.Google Scholar
Cooke, D., McNally, L., Mulligan, K., Harrison, M. and Newman, S. (2001). Psychosocial interventions for caregivers of people with dementia: A systematic review. Aging and Mental Health, 5, 120135.CrossRefGoogle ScholarPubMed
Deutsche Alzheimer Gesellschaft (DAlzG, German Alzheimer's Society) (2001). Das Wichtigste über die Alzheimer-Krankheit [The most important facts about Alzheimer's disease]. Schriftenreihe der Deutschen Alzheimer Gesellschaft e.V. Berlin: Deutsche Alzheimer Gesellschaft e.V.Google Scholar
dello Buono, M. et al. (1999). Community care for patients with Alzheimer's disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers. International Journal of Geriatric Psychiatry, 14, 915924. doi:10.1002/(SICI)1099-1166(199911)14:11<915::AID-GPS36>3.0.CO;2-H.Google Scholar
Gallagher-Thompson, D. and Coon, D. (2007). Evidence-based psychological treatments for distress in family caregivers of older adults. Psychology and Aging, 22, 3751.CrossRefGoogle ScholarPubMed
Georges, J., Jansen, S., Jackson, J., Meyrieux, A., Sadowska, A. and Selmes, M. (2008). Alzheimer's disease in real life – the dementia carer's survey. International Journal of Geriatric Psychiatry, 23, 546551.Google Scholar
Gräßel, E. (1997). Temporary institutional respite in dementia cases: who utilizes this form of respite care and what effect does it have? International Psychogeriatrics, 9, 437448. doi:10.1017/S1041610297004572.Google Scholar
Gräßel, E. (2002). When home care ends – changes in the physical health of informal caregivers caring for a dementia patient: a longitudinal study. Journal of the American Geriatrics Society, 50, 843849. doi:10.1046/j.1532-5415.2002.50209.x.CrossRefGoogle Scholar
Gräßel, E., Wiltfang, J. and Kornhuber, J. (2003). Non-drug therapies for dementia: an overview of the current situation with regard to proof of effectiveness. Dementia and Geriatric Cognitive Disorders, 15, 115125. doi:10.1159/000068477.CrossRefGoogle Scholar
Gräßel, E., Donath, C., Lauterberg, J., Haag, C. and Neubauer, S. (2008). Demenzkranke und Pflegestufen: Wirken sich Krankheitssymptome auf die Einstufung aus? [Dementia patients and level of care: do symptoms of the illness affect the grading?] Gesundheitswesen, 70, 129136.Google Scholar
Hegeman, C. (1988). Institutional respite benefits frail elderly and their care givers. Health Progress, 69, 7275.Google Scholar
Kosloski, K. and Montgomery, R. (1993). Perceptions of respite services as predictors of utilization. Research on Aging, 15, 399413. doi:10.1177/0164027593154002.CrossRefGoogle Scholar
Lamura, G. et al. (2006). Erfahrungen von pflegenden Angehörigen älterer Menschen in Europa bei der Inanspruchnahme von Unterstützungsleistungen: Ausgewählte Ergebnisse des Projektes EUROFAMCARE [The experience of family carers of older people in the use of support services in Europe: selected findings from the EUROFAMCARE project]. Zeitschrift für Gerontologie und Geriatrie, 39, 429442. doi:10.1007/s00391-006-0416-0.Google Scholar
Lee, D., Morgan, D. and Lindesay, J. (2007). Effect of institutional respite care on the sleep of people with dementia and their primary caregivers. Journal of the American Geriatrics Society, 55, 252258. doi:10.1111/j.1532-5415.2007.01036.x.Google Scholar
Mayring, P. (1993). Einführung in die qualitative Sozialforschung [Introduction to research in social sciences]. Weinheim: Psychologie Verlags Union.Google Scholar
Morgan, D. (1993). Qualitative content analysis: a guide to paths not taken. Qualitative Health Research, 3, 112121. doi:10.1177/104973239300300107.Google Scholar
Neville, C. and Byrne, G. (2007). Staff and home caregiver expectations of residential respite care for older people. Collegian, 14, 2731. doi:10.1016/S1322-7696(08)60552-1.CrossRefGoogle ScholarPubMed
National Institute for Health and Clinical Excellence (NICE) (2006). Dementia: Supporting People with Dementia and Their Carers in Health and Social Care. NICE Clinical Guideline, 42. Available at: http://www.nice.org.uk/nicemedia/pdf/CG042NICEGuideline.pdf.Google Scholar
Philip, I. and Ghosh, U. (1992). Community care services: views of patients attending a geriatric day hospital. Health Bulletin, 50, 296301.Google Scholar
Pinquart, M. and Sörensen, S. (2006). Helping caregivers of persons with dementia: which interventions work and how large are their effects? International Psychogeriatrics, 18, 577595. doi:10.1017/S1041610206003462.Google Scholar
Roelands, M., van Oost, P. and Depoorter, A. (2008). Service use in family caregivers of persons with dementia in Belgium: psychological and social factors. Health & Social Care in the Community, 16, 4253.CrossRefGoogle ScholarPubMed
Sörensen, S., Pinquart, M. and Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42, 356372.Google Scholar
Thompson, C., Spillsbury, K., Hall, J., Birks, Y., Barnes, C. and Adamson, J. (2007). Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7, 118.CrossRefGoogle ScholarPubMed
Toseland, R., McCallion, P., Gerber, T., Dawson, C., Gieryic, S. and Guilamo-Ramos, V. (1999). Use of health and human services by community-residing people with dementia. Social Work, 44, 535548.CrossRefGoogle ScholarPubMed
Toseland, R., McCallion, P., Gerber, T. and Banks, S. (2002). Predictors of health and human services use by persons with dementia and their family caregivers. Social Science & Medicine, 55, 12551266. doi:10.1016/S0277-9536(01)00240-4.Google Scholar
van Exel, J., Morée, M., Koopmanschap, M., Schreuder Goedheijt, T. and Brouwer, W. (2006). Respite care – an explorative study of demand and use in Dutch informal caregivers. Health Policy, 78, 194208. doi:10.1016/j.healthpol.2005.11.002.Google Scholar
Winslow, B. (2003). Family caregivers' experiences with community services: a qualitative analysis. Public Health Nursing, 20, 341348. doi:10.1046/j.1525-1446.2003.20502.x.Google Scholar