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Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

Published online by Cambridge University Press:  26 September 2017

Ching-Lin Wang ,
Li-Min Kuo ,
Yi-Chen Chiu ,
Hsiu-Li Huang ,
Huei-Ling Huang ,
Wen-Chuin Hsu ,
Cheng-Hsien Lu ,
Tzu-Hsin Huang ,
Shan Huang  and
Yea-Ing Lotus Shyu
Ching-Lin Wang
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Taoyuan, Taiwan Department of Nursing, Meiho University, Pingtung, Taiwan
Li-Min Kuo
Affiliation:
Department of Gerontological Health Care, College of Nursing, National Taipei University of Nursing and Health Sciences, Taipei, Taiwan
Yi-Chen Chiu
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Taoyuan, Taiwan Chang Gung Dementia Center, Taoyuan, Taiwan
Hsiu-Li Huang
Affiliation:
Department of Long-Term Care, College of Health Technology, National Taipei University of Nursing and Health Sciences, Taipei, Taiwan
Huei-Ling Huang
Affiliation:
Department of Gerontological Care and Management, Chang Gung University of Science and Technology, Taoyuan, Taiwan Department of Nursing, Taoyuan Chang Gung Memorial Hospital, Taoyuan, Taiwan
Wen-Chuin Hsu
Affiliation:
Chang Gung Dementia Center, Taoyuan, Taiwan Department of Neurology, Chang Gung Memorial Hospital, Taoyuan, Taiwan
Cheng-Hsien Lu
Affiliation:
Departments of Neurology, Chang Gung Memorial Hospital-Kaohsiung Medical Center, Kaohsiung, Taiwan College of Medicine, Chang Gung University, Kaohsiung, Taiwan Department of Biological Science, National Sun Yat-Sen University, Kaohsiung, Taiwan Departments of Neurology, Xiamen Chang Gung Memorial Hospital, Xiamen, China
Tzu-Hsin Huang
Affiliation:
Department of Nursing, Taoyuan Chang Gung Memorial Hospital, Taoyuan, Taiwan
Shan Huang
Affiliation:
Department of Management, Kaohsiung Chang Gung Memorial Hospital, Taiwan
Yea-Ing Lotus Shyu*
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Taoyuan, Taiwan Department of Gerontological Care and Management, Chang Gung University of Science and Technology, Taoyuan, Taiwan Department of Nursing, Kaohsiung Chang Gung Memorial Hospital, Kaohsiung, Taiwan Traumatological Division, Department of Orthopedics, Chang Gung Memorial Hospital, Taoyuan, Taiwan
*
Correspondence should be addressed to: Yea-Ing Lotus Shyu, School of Nursing, College of Medicine, Chang Gung University, 259 Wenhua 1st Road, Guishan District, Taoyuan City 33302, Taiwan. Phone: +886-3-2118800; Fax: +886-3-2118400. Email: [email protected].
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Abstract

Background:

To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.

Methods:

A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.

Results:

One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.

Conclusions:

Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

Keywords

caregiver preparationcaregiving processesgrounded theoryillness trajectorypersons with MCI
Type
Research Article
Information
International Psychogeriatrics , Volume 30 , Issue 3: Issue Theme: Psychosocial Interventions for Dementia , March 2018 , pp. 375 - 384
Copyright
Copyright © International Psychogeriatric Association 2017 

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Footnotes

*

Li-Min Kuo is co-first author who contributed equally to this paper.

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