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Promoting early dementia diagnosis: a video designed by patients, for patients

Published online by Cambridge University Press:  05 December 2016

Nina Baruch ,
Charlotte L. Allan ,
Maureen Cundell ,
Samuel Clark  and
Brian Murray
Nina Baruch*
Affiliation:
Older Adults Mental Health Services, Oxford Health NHS Foundation Trust, Whiteleaf Centre, Bierton Road, Aylesbury, HP20 1EG, UK
Charlotte L. Allan
Affiliation:
Centre for the Health of the Elderly, Northumberland Tyne and Wear NHS Foundation Trust, Campus for Ageing and Vitality, Newcastle-upon-Tyne NE4 6BE, UK
Maureen Cundell
Affiliation:
Older Adults Mental Health Services, Oxford Health NHS Foundation Trust, Older Adults CMHT Oxford City, Manzil Resource Centre, Manzil Way, Oxford, OX4 1XE, UK Oxford Academic Health Sciences Network, Dementia Clinical Network, Magdalen Centre North, Robert Robinson Avenue, Oxford Science Park, OX4 4GA, UK
Samuel Clark
Affiliation:
Older Adults Mental Health Services, Oxford Health NHS Foundation Trust, Whiteleaf Centre, Bierton Road, Aylesbury, HP20 1EG, UK
Brian Murray
Affiliation:
Older Adults Mental Health Services, Oxford Health NHS Foundation Trust, Whiteleaf Centre, Bierton Road, Aylesbury, HP20 1EG, UK
*
Correspondence should be addressed to: Dr. Nina Baruch, Older Adults Mental Health Services, Oxford Health NHS Foundation Trust, Whiteleaf Centre, Bierton Road, Aylesbury, HP20 1EG, UK. Phone: 01865901699; Fax: 01865261706. Email: [email protected].
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Abstract

Early diagnosis of dementia allows people to access effective treatment and make advance decisions while they still have capacity. We aimed to encourage people to attend memory clinic, in order to boost rates of diagnosis. We created a patient information video about Oxford Health NHS Foundation Trust Memory Clinics, to inform and empower those awaiting assessment and to promote early diagnosis.

Fourteen people (patients, carers, and staff) were approached prior to developing the video to ascertain their views on the themes the video should cover. The video consisted of unscripted interviews with patients, carers, and staff. We surveyed participants and new patients attending memory clinic to get feedback on the video and to assess patients’ level of understanding and confidence about a memory assessment before and after watching the video. The video content was refined based on this feedback and a final version was produced.

Patient feedback demonstrated that confidence and understanding increased after watching the video.

Although this study is limited by its small sample size and lack of access to those with undiagnosed dementia, feedback suggested that the video empowered and reassured those awaiting assessment and could be used as a tool to reduce barriers to early diagnosis. Patients and carers involved in making the video found it a therapeutic activity in itself.

Keywords

dementiamemory clinicearly diagnosisvideopatient participation
Type
Brief Report
Information
International Psychogeriatrics , Volume 29 , Issue 5 , May 2017 , pp. 863 - 867
Copyright
Copyright © International Psychogeriatric Association 2016 

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Baruch supplementary material S1

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