Hostname: page-component-78c5997874-lj6df Total loading time: 0 Render date: 2024-11-19T03:31:19.333Z Has data issue: false hasContentIssue false

Personhood, dementia literacy, and the causes and consequences of Alzheimer’s disease fear

Published online by Cambridge University Press:  15 June 2021

Suzanne Cahill*
Affiliation:
School of Social Work and Social Policy, Trinity College Dublin, Ireland Centre for Economic and Social Research on Dementia, National University of Ireland, Galway Institute of Gerontology, School of Health and Welfare, Jönköping University, Sweden

Abstract

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Copyright
© International Psychogeriatric Association 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bystad, M., Grønli, O., Lilleeggen, C. and Aslaksen, P. M. (2016). Fear of diseases among people over 50 years of age: a survey. Scandinavian Psychologist, 3, e9.CrossRefGoogle Scholar
Cahill, S., Pierce, M., Werner, P., Darley, A. and Bobersky, A., 2015. A systematic review of the public’s knowledge and understanding of Alzheimer’s disease and dementia. Alzheimer Disease & Associated Disorders, 29, 255275.10.1097/WAD.0000000000000102CrossRefGoogle ScholarPubMed
Gerritsen, D. L., Kuin, Y. and Nijboer, J. (2014). Dementia in the movies: the clinical picture. Aging & Mental Health, 18, 276280.CrossRefGoogle ScholarPubMed
Kitwood, T. (1997). Dementia Reconsidered: The Person Comes First. Buckingham: Open University Press.Google Scholar
Livingston, G. et al. (2020). Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. The Lancet, 396, 413446.CrossRefGoogle ScholarPubMed
Low, L. F. and Anstey, K. J. (2009). Dementia literacy: recognition and beliefs on dementia of the Australian public. Alzheimer’s & Dementia, 5, 4349.CrossRefGoogle ScholarPubMed
O’Shea, E. (2020). Remembering people with dementia during the COVID-19 crisis. HRB Open Research, 3, 1–4.CrossRefGoogle Scholar
Post, S. (2000). The Moral Challenge of Alzheimer’s Disease: Ethical Issues from Diagnosis to Dying. Baltimore, MD: John Hopkins University.Google Scholar
Pratchett, T. (2015). A Butt of my Own Jokes: Terry Pratchett on the Disease that Finally Claimed Him. The Guardian, March 15th.Google Scholar
Raz, A. and Schicktanz, S. (2016). Comparative Empirical Bioethics: Dilemmas of Genetic Testing and Euthanasia in Israel and Germany. Switzerland:  Springer International Publishing.CrossRefGoogle Scholar
Sabat, S. R. (2019). ‘Looking beyond pathology: People with dementia can teach us about our shared humanity’. A symposium on Dementia and Human Rights. Trinity College Dublin, November 8th.Google Scholar
Schicktanz, S., Rimon-Zarfaty, N., Raz, A. and Jongsma, K. (2018). Patient representation and advocacy for Alzheimer Disease in Germany and Israel. Journal of Bioethical Inquiry, 15, 369380.CrossRefGoogle ScholarPubMed
Werner, P., Ulitsa, N., Shephet, D., Abojabel, H., Alpinar, S. and Schicktanz, S. (2020). Fear about Alzheimer’s disease among Israeli and German laypersons, persons with Mild Neurocognitive Disorder and their relatives: a qualitative study. International Psychogeriatrics, doi: 10.1017/S1041610220003397.CrossRefGoogle Scholar
World Health Organization. (2017). Global action plan on the public health response to dementia 2017–2025. Geneva: World Health Organization.Google Scholar