Hostname: page-component-cd9895bd7-p9bg8 Total loading time: 0 Render date: 2024-12-25T05:46:32.141Z Has data issue: false hasContentIssue false
  • English
  • Français

Participation of end users in the design of assistive technology for people with mild to severe cognitive problems; the European Rosetta project

Published online by Cambridge University Press:  10 February 2014

F. J. M. Meiland ,
B. J. J. Hattink ,
T. Overmars-Marx ,
M. E. de Boer ,
A. Jedlitschka ,
P. W. G. Ebben ,
Ir. I. N. W. Stalpers-Croeze ,
S. Flick ,
J. van der Leeuw  and
I. P. Karkowski
...Show all authors
F. J. M. Meiland*
Affiliation:
Department of Psychiatry/General Practice and Elderly Care Medicine, VU University Medical Center, Amsterdam, the Netherlands
B. J. J. Hattink
Affiliation:
Department of Psychiatry, VU University Medical Center, Amsterdam, the Netherlands
T. Overmars-Marx
Affiliation:
Vilans, Utrecht, the Netherlands
M. E. de Boer
Affiliation:
General Practice and Elderly Care Medicine, VU University Medical Center, Amsterdam, the Netherlands
A. Jedlitschka
Affiliation:
Fraunhofer IESE, Kaiserslautern, Germany
P. W. G. Ebben
Affiliation:
Novay, Enschede, the Netherlands
Ir. I. N. W. Stalpers-Croeze
Affiliation:
Avics, Westerbroek, the Netherlands
S. Flick
Affiliation:
Westpfalz-Klinikum, Kaiserslautern, Germany
J. van der Leeuw
Affiliation:
Vilans, Utrecht, the Netherlands
I. P. Karkowski
Affiliation:
TNO, Den Haag, the Netherlands
R. M. Dröes
Affiliation:
Department of Psychiatry/General Practice and Elderly Care Medicine, VU University Medical Center, Amsterdam, the Netherlands
*
Correspondence should be addressed to: Dr. F. J. M. Meiland, Department of General Practice and Elderly Care Medicine, VU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, the Netherlands. Phone: +31-20-4449366; Fax: +31-20-4448234. Email: [email protected].
Get access

Abstract

Background:

In the European Rosetta project three separate, previously developed, ICT systems were improved and integrated to create one modular system that helps community-dwelling people with mild cognitive impairment and dementia in different stages of the disease. The system aims to support them in daily functioning, monitor (deviations from) patterns in daily behaviour and to automatically detect emergency situations. The study aimed to inventory the end users’ needs and wishes regarding the development and design of the new integrated Rosetta system, and to describe the to be developed Rosetta system.

Methods:

Qualitative user-participatory design with in total 50 persons: 14 people with dementia, 13 informal carers, 6 professional carers, 9 dementia experts, 7 care partners within the project, and 1 volunteer. In the Netherlands user focus group sessions were performed and in Germany individual interviews. Dementia experts were consulted by means of a questionnaire, an expert meeting session, and interviews.

Results:

Persons with dementia and informal carers appreciated the following functionalities most: help in cases of emergencies, navigation support and the calendar function. Dementia experts rated various behaviours relevant to monitor in order to detect timely changes in functioning, e.g. eating, drinking, going to the toilet, taking medicine adequately, performance of activities and sleep patterns. No ethical issues regarding the use of sensors and cameras were mentioned.

Conclusion:

The user participatory design resulted in valuable input from persons with dementia, informal carers and professional carers/dementia experts, based on which a first prototype Rosetta system was built.

Keywords

dementiamild cognitive impairmentpsychosocial interventionsqualitative researchservices
Type
Research Article
Information
International Psychogeriatrics , Volume 26 , Issue 5 , May 2014 , pp. 769 - 779
Copyright
Copyright © International Psychogeriatric Association 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Beauchamp, N., Irvine, A. B., Seeley, J. and Johnson, B. (2005). Worksite-based Internet multimedia program for family caregivers of persons with dementia. The Gerontologist, 45, 793–801.Google Scholar
Bharucha, A. J. et al. (2009) Intelligent assistive technology applications to dementia care: current capabilities, limitations and future challenges. American Journal of Geriatric Psychiatry, 17, 88–104.CrossRefGoogle ScholarPubMed
Blackburn, P. (1988). Freedom to wander. Nursing Times, 84, 54–55.Google ScholarPubMed
Engström, M., Ljunggren, B., Lindqvist, R. and Carlsson, M. (2005). Staff perceptions of job satisfaction and life situation before and 6 and 12 months after increased information technology support in dementia care. Journal of Telemedicine and Telecare, 11, 304–309.CrossRefGoogle ScholarPubMed
Gilliard, J. and Hagen, I. (2004) Enabling technologies for people with dementia. Cross-national analysis report. (pp.1–69). D4.4.1. QLK-CT-2000-00653.Google Scholar
Health Council of the Netherlands (2002). Dementie [Dementia]. The Hague: Health Council of the Netherlands.Google Scholar
Ikarashi, A., Magara, K., Nonaka, S. and Ohno, H. (2002). The searching system for wandering demented aged person using GPS. Transactions of the Institute of Electrical Engineers of Japan, Part D 122-D, 6, 609–16.Google Scholar
Jans, A., Overmars-Marx, T., Van Hoof, J. and Kort, H. S. M. (2009) Evaluatieonderzoek van het UAS-project van Zorgpalet Baarn-Soest, Zorg aan huis [Evaluation study of UAS project Zorgpalet Baarn-Soest, Care at home]. Utrecht: Vilans.Google Scholar
Jones, K. (2004). Enabling Technologies for People with Dementia. Report of the Assessment Study in England (Rep. No. D.4.1.1).Google Scholar
Lauriks, S. et al. (2007). Review of ICT-based services for identified unmet needs in people with dementia. Ageing Research Reviews, 6, 223–246.Google Scholar
Lewis, M. L., Hobday, J. V. and Hepburn, K. W. (2010). Internet-based program for dementia caregivers. American Journal of Alzheimer's Disease and Other Dementias, 25, 674–679.Google Scholar
LoPresti, E. F., Mihailidis, A. and Kirsch, N. (2004). Assistive technology for cognitive rehabilitation: state of the art. Neuropsychological Rehabilitation, 14, 5–39.Google Scholar
Meiland, F. J. M. et al. (2010). User-participatory development of assistive technology for people with dementia – from needs to functional requirements. First results of the COGKNOW project. Non-Pharmacological Therapies in Dementia, 1, 71–91.Google Scholar
Meiland, F. J. M. et al. (2012). Functional requirements for assistive technologies for people with cognitive impairments. In: Wichert, R., Van Laerhoven, K. and Gelissen, J. (eds.), Constructing Ambient Intelligence: AmI 2011 Workshops CCIS vol 277 (pp.146–151). Heidelberg: Springer Verlag.Google Scholar
O'Keeffe, J., Maier, J. and Freiman, M. P. (2010), Assistive Technology for People with Dementia and Their Caregivers at Home: What Might Help. Final Report, RTI International, North Carolina, USA.Google Scholar
Orpwood, R., Bjørneby, S., Hagen, I., Mäki, O., Faulkner, R. and Topo, P. (2004). User involvement in dementia product development. Dementia, the International Journal of Social Research and Practice, 3, 263–279.Google Scholar
Prince, M. and Jackson, J. (2009). Alzheimer's Disease International World Alzheimer Report 2009. Downloaded at http://www.alz.co.uk/research/files/WorldAlzheimerReport.pdf Google Scholar
Reisberg, B., Ferris, S. H., de Leon, M. J. and Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 139, 1136–1139.Google Scholar
Reynolds, T. et al. (2000). Camberwell Assessment of Need for the Elderly (CANE). Development, validity and reliability. British Journal of Psychiatry, 176, 444–452.CrossRefGoogle ScholarPubMed
Sixsmith, A. J., Gibson, G., Orpwood, R. D. and Torrington, J. M. (2007). Developing a technology ‘wish-list’ to enhance the quality of life of people with dementia. Gerontechnology, 6, 2–19.Google Scholar
Smith, T. L. and Toseland, R. W. (2006). The effectiveness of a telephone support program for caregivers of frail older adults. The Gerontologist, 46, 620–629.Google Scholar
Span, M., Hettinga, M., Vernooij-Dassen, M., Eefsting, J. and Smits, C. (2013). Involving people with dementia in the development of supportive IT applications: a systematic review. Aging Research Reviews, 12, 535–551.Google Scholar
Storf, H. et al (2009). An event-driven approach to activity recognition. In Tscheligi, M. et al. (eds.), Ambient Assisted Living (pp. 123–132). AmI 2009, LNCS 5859. Berlin, Heidelberg: Springer-Verlag.Google Scholar
Topo, P. (2009). Technology studies to meet the needs of people with dementia and their caregivers: a literature review. Journal of applied Gerontology, 28, 5–37.CrossRefGoogle Scholar
Van der Roest, H. G. et al. (2009). What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. International Psychogeriatrics, 21, 949–965.CrossRefGoogle Scholar
Van Hoof, J., Kort, H. S. M., Van Waarde, H. and Blom, M. M. (2010). Environmental Interventions and the design of homes for older adults with dementia: an overview. American Journal of Alzheimers Disease and Other Dementias, 25, 202.Google Scholar
Van Mierlo, L. D., Meiland, F. J. M. and Dröes, R. M. (2012). Dementelcoach: effect of telephone coaching on carers of community dwelling people with dementia. International Psychogeriatrics, 24, 212–222.CrossRefGoogle ScholarPubMed
Wancata, J., Musalek, M., Alexandrowicz, R. and Krautgartner, M. (2003). Number of dementia sufferers in Europe between the years 2000 and 2050. European Psychiatry, 18, 306–313.Google Scholar
Wherton, J. P. and Monk, A. F. (2008). Technological opportunities for supporting people with dementia who are living at home. International Journal of Human-Computer studies, 66, 8, 571–86.Google Scholar
Wilkinson, H. (2002). Including people with dementia in research: methods and motivations. In Wilkinson, H. (ed.), The Perspectives of People With Dementia, Research Methods and Motivation (pp. 9–24). London: Jessica Kingsley.Google Scholar