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A longitudinal evaluation of family caregivers’ willingness to pay for an in-home nonpharmacologic intervention for people living with dementia: results from a randomized trial

Published online by Cambridge University Press:  24 March 2021

Eric Jutkowitz Open the ORCID record for Eric Jutkowitz [Opens in a new window] ,
Laura T. Pizzi ,
Jonah Popp ,
Katherine K. Prioli ,
Danny Scerpella ,
Katherine Marx ,
Quincy Samus ,
Catherine Verrier Piersol  and
Laura N. Gitlin
Eric Jutkowitz*
Affiliation:
Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA Providence Veterans Affairs (VA) Medical Center, Center of Innovation in Long Term Services and Supports, Providence, RI, USA
Laura T. Pizzi
Affiliation:
Center for Health Outcomes, Policy, and Economics, Rutgers University Ernest Mario School of Pharmacy, Piscataway, NJ, USA
Jonah Popp
Affiliation:
Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA
Katherine K. Prioli
Affiliation:
Center for Health Outcomes, Policy, and Economics, Rutgers University Ernest Mario School of Pharmacy, Piscataway, NJ, USA
Danny Scerpella
Affiliation:
Johns Hopkins University Center for Innovative Care in Aging, Baltimore, MD, USA
Katherine Marx
Affiliation:
Johns Hopkins University Center for Innovative Care in Aging, Baltimore, MD, USA
Quincy Samus
Affiliation:
Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, MD, USA
Catherine Verrier Piersol
Affiliation:
Thomas Jefferson University, Department of Occupational Therapy, Philadelphia, PA, USA
Laura N. Gitlin
Affiliation:
College of Nursing and Health Professions, Drexel University, Philadelphia, PA, USA
*
Correspondence should be addressed to: Erin Jutkowitz, Brown University School of Public Health, 121 South Main Street, Providence, Rhode Island 02903, 6th Floor, Room 628, USA. Phone: 401 863 2060. E-mail: [email protected]
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Abstract

Objective:

To determine the willingness-to-pay (WTP) of family caregivers to learn care strategies for persons living with dementia (PLwD).

Design:

Randomized clinical trial.

Setting:

Community-dwelling PLwD and their caregivers (dyads) in Maryland and Washington, DC.

Participants:

250 dyads.

Intervention:

Tailored Activity Program (TAP) compared to attention control. TAP provides activities tailored to the PLwD and instructs caregivers in their use.

Measurement:

At baseline, 3 and 6 months, caregivers were asked their WTP per session for an 8-session 3-month in-home nonpharmacologic intervention to address behavioral symptoms and functional dependence.

Results:

At baseline, 3 and 6 months, caregivers assigned to TAP were willing to pay $26.10/session (95%CI:$20.42, $33.00), $28.70 (95%CI:$19.73, $39.30), and $22.79 (95%CI: $16.64, $30.09), respectively; attention control caregivers were willing to pay $37.90/session (95%CI: $27.10, $52.02), $30.92 (95%CI: $23.44, $40.94), $27.44 (95%CI: $20.82, $35.34), respectively. The difference in baseline to 3 and 6 months change in WTP between TAP and the attention control was $9.58 (95%CI: −$5.00, $25.47) and $7.15 (95%CI: −$5.72, $21.81). The difference between TAP and attention control in change in the proportion of caregivers willing to pay something from baseline to 3 and 6 months was −12% (95%CI: −28%, −5%) and −7% (95%CI:−25%, −11%), respectively. The difference in change in WTP, among caregivers willing to pay something, between TAP and attention control from baseline to 3 and 6 months was $17.93 (95%CI: $0.22, $38.30) and $11.81 (95%CI: −$2.57, $28.17).

Conclusions:

Family caregivers are willing to pay more for an intervention immediately following participation in a program similar to which they were asked to value.

Keywords

dementiacaregivinglong-term care
Type
Original Research Article
Information
International Psychogeriatrics , Volume 33 , Special Issue 4: Issue Theme: Caring for Caregivers of People with Dementia , April 2021 , pp. 419 - 428
Copyright
© International Psychogeriatric Association 2021

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