Hostname: page-component-cd9895bd7-fscjk Total loading time: 0 Render date: 2024-12-19T16:45:48.513Z Has data issue: false hasContentIssue false

Implementation of quality of life assessment in long-term care

Published online by Cambridge University Press:  05 July 2021

Kristine G. Madsø*
Affiliation:
Department of Clinical Psychology, University of Bergen, Bergen, Norway NKS Olaviken Gerontopsychiatric Hospital, Bergen/Askøy, Norway;
Inger Hilde Nordhus
Affiliation:
Department of Clinical Psychology, University of Bergen, Bergen, Norway Department of Behavioral Medicine, University of Oslo, Oslo, Norway
Get access

Abstract

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Copyright
© International Psychogeriatric Association 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Brod, M., Tesler, L. E. and Christensen, T. L. (2009). Qualitative research and content validity: developing best practices based on science and experience. Quality of Life Research, 18(9), 12631278. doi: 10.1007/s11136-009-9540-9 CrossRefGoogle ScholarPubMed
Clarke, C. etal. (2020). Measuring the well-being of people with dementia: a conceptual scoping review. Health and Quality of Life Outcomes, 18(1), 1249. doi: 10.1186/s12955-020-01440-x CrossRefGoogle ScholarPubMed
Edelen, M. A. and Reeve, B. R. (2007). Applying Item Response Theory (IRT) modeling to questionnaire development, evaluation, and refinement. Quality of Life Research, 16(S1), 518. doi: 10.1007/s11136-007-9198-0 CrossRefGoogle ScholarPubMed
Ettema, T. P., Dröes, R.-M., de Lange, J., Mellenbergh, G. J. and Ribbe, M. W. (2007). QUALIDEM: development and evaluation of a dementia specific quality of life instrument––validation. International Journal of Geriatric Psychiatry, 22(5), 424430. doi: 10.1002/gps.1692 CrossRefGoogle ScholarPubMed
Ferring, D. and Boll, T. (2010). Subjective well-being in older adults: Current state and gasp of research. London: Palgrave Macmillan.Google Scholar
Harding, A. J. etal. (2019). What is important to people living with dementia?: the ‘long-list’ of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions. BMC Geriatrics, 19(1), 94. doi: 10.1186/s12877-019-1103-5 CrossRefGoogle ScholarPubMed
Hughes, L. J., Farina, N., Page, T. E., Tabet, N. and Banerjee, S. (2019). Psychometric properties and feasibility of use of dementia specific quality of life instruments for use in care settings: a systematic review. International Psychogeriatrics, 33, 917–931. doi: 10.1017/S1041610218002259 CrossRefGoogle ScholarPubMed
Kolanowski, A., Hoffman, L. and Hofer, S. M. (2007). Concordance of self-report and informant assessment of emotional well-being in nursing home residents with dementia. Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 62(1), P2027.10.1093/geronb/62.1.P20CrossRefGoogle ScholarPubMed
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (1999). Quality of Life in Alzheimer’s disease. Journal of Mental Health and Aging, 5, 2132.Google Scholar
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510519. doi: 10.1097/00006842-200205000-00016 CrossRefGoogle ScholarPubMed
Martyr, A., etal. (2018). Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia. Psychological Medicine, 48(13), 21302139. doi: 10.1017/S0033291718000405 CrossRefGoogle ScholarPubMed
Melnyk, B. M., Fineout-Overholt, E., Stillwell, S. B. and Williamson, K. M. (2010). Evidence-based practice: step by step: the seven steps of evidence-based practice. AJN The American Journal of Nursing, 110(1).CrossRefGoogle ScholarPubMed
Mokkink, L. B. etal. (2010). The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study. An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Research, 19(4), 539549. doi: 10.1007/s11136-010-9606-8 Google Scholar
Mokkink, L. B. etal. (2017). COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures. Quality of Life Research, 27(5), 11711179. doi: 10.1007/s11136-017-1765-4 CrossRefGoogle ScholarPubMed
Prinsen, C. A. C. etal. (2018). COSMIN guideline for systematic reviews of patient-reported outcome measures. Quality of Life Research, 27(5), 11471157. doi: 10.1007/s11136-018-1798-3 CrossRefGoogle ScholarPubMed
Reilly, S. T. etal. (2020). What is important to people with dementia living at home? A set of core outcome items for use in the evaluation of non-pharmacological community-based health and social care interventions. Age and Ageing, 49(4), 664671. doi: 10.1093/ageing/afaa015 CrossRefGoogle Scholar
Santana-Berlanga, N. d. R., Porcel-Gálvez, A. M., Botello-Hermosa, A. and Barrientos-Trigo, S. (2020). Instruments to measure quality of life in institutionalised older adults: systematic review. Geriatric Nursing. https://doi.org/10.1016/j.gerinurse.2020.01.018 CrossRefGoogle ScholarPubMed
Shiffman, S., Stone, A. A. and Hufford, M. R. (2008). Ecological Momentary Assessment. Annual Review of Clinical Psychology, 4(1), 132. doi: 10.1146/annurev.clinpsy.3.022806.091415CrossRefGoogle ScholarPubMed
Sieber, W. J., Groessl, E. J., David, K. M., Ganiats, T. G. and Kaplan, R. M. (2008). Quality of Well-being Self-Administered (QWB-SA) User’s Manual. Available at: https://hoap.ucsd.edu/qwb-info/.Google Scholar
Terwee, C. B. etal. (2018). COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - Official Journal of the International Society of Quality of Life Research, 27(5), 11591170. doi: 10.1007/s11136-018-1829-0 Google ScholarPubMed
Øksnebjerg, L. etal. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: a pan-European consultation. Health Expect, 21(6), 10561065. doi: 10.1111/hex.12799 CrossRefGoogle ScholarPubMed