Hostname: page-component-78c5997874-mlc7c Total loading time: 0 Render date: 2024-11-02T21:09:19.839Z Has data issue: false hasContentIssue false
  • English
  • Français

Evidence of engagement with advance care planning for people affected by dementia in the United States

Published online by Cambridge University Press:  06 May 2020

Tony Ryan
Tony Ryan*
Affiliation:
Division of Nursing and Midwifery, Health Sciences School, The University of Sheffield, Sheffield, UK
*
Email: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Information
International Psychogeriatrics , Volume 32 , Issue 5: Issue Theme: Challenges and Facilitators for Diagnosis and Treatment of Dementia , May 2020 , pp. 547 - 549
Copyright
© International Psychogeriatric Association 2020

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bryant, J., Turon, H., Waller, A., Freund, M., Mansfield, E. and Sanson-Fisher, R. (2019). Effectiveness of interventions to increase participation in advance care planning for people with a diagnosis of dementia: a systematic review. Palliative Medicine, 33(3), 262–273. doi: 10.1177/0269216318801750.CrossRefGoogle ScholarPubMed
Clark, M. A., Person, S. D., Gosline, A., Gawande, A. A. and Block, S. D. (2018). Racial and ethnic differences in advance care planning: results of a statewide population-based survey. Journal of Palliative Medicine, 21(8), 1078–1085. doi: 10.1089/jpm.2017.0374.CrossRefGoogle ScholarPubMed
Detering, K. M.et al. (2019). Prevalence and correlates of advance care directives among older Australians accessing health and residential aged care services: multicentre audit study. BMJ Open, 9(1), p.e025255. doi: 10.1136/bmjopen-2018-025255.CrossRefGoogle ScholarPubMed
Dixon, J., King, D. and Knapp, M. (2019). Advance care planning in England: is there an association with place of death? Secondary analysis of data from the National Survey of Bereaved People. BMJ Supportive & Palliative Care, 9(3), 316–325. doi: 10.1136/bmjspcare-2015-000971.CrossRefGoogle ScholarPubMed
Garand, L., Dew, M. A., Lingler, J. H. and DeKosky, S. T. (2011). Incidence and predictors of advance care planning among persons with cognitive impairment. The American Journal of Geriatric Psychiatry, 19(8), 712–720. doi: 10.1097/JGP.0b013e3181faebef.CrossRefGoogle ScholarPubMed
Hong, M., Yi, E. H., Johnson, K. J. and Adamek, M. E. (2018). Facilitators and barriers for advance care planning among ethnic and racial minorities in the US: a systematic review of the current literature. Journal of Immigrant and Minority Health, 20(5), 1277–1287. doi: 10.1007/s10903-017-0670-9.CrossRefGoogle Scholar
Huang, C. H. S.et al. (2016). A pilot feasibility intervention to increase advance care planning among African Americans in the deep south. Journal of Palliative Medicine, 19(2), 164–173. doi: 10.1089/jpm.2015.0334.CrossRefGoogle ScholarPubMed
Lewis, M., Rand, E., Mullaly, E., Mellor, D. and Macfarlane, S. (2015). Uptake of a newly implemented advance care planning program in a dementia diagnostic service. Age and Ageing, 44(6), 1045–1049. doi: 10.1093/ageing/afv138.CrossRefGoogle Scholar
LoPresti, M. A., Dement, F. and Gold, H. T. (2016). End-of-life care for people with cancer from ethnic minority groups: a systematic review. American Journal of Hospice and Palliative Medicine ®, 33(3), 291–305. doi: 10.1177/1049909114565658.CrossRefGoogle ScholarPubMed
Luckett, T.et al. (2014). Advance care planning for adults with CKD: a systematic integrative review. American Journal of Kidney Diseases, 63(5), 761–770. doi: 10.1053/j.ajkd.2013.12.007.CrossRefGoogle ScholarPubMed
McAfee, C. A., Jordan, T. R., Sheu, J. J., Dake, J. A. and Kopp Miller, B. A. (2019). Predicting racial and ethnic disparities in advance care planning using the integrated behavioral model. OMEGA-Journal of Death and Dying, 78(4), 369–389. doi: 10.1177/0030222817691286.CrossRefGoogle Scholar
Narang, A. K., Wright, A. A. and Nicholas, L. H. (2015). Trends in advance care planning in patients with cancer: results from a national longitudinal survey. JAMA Oncology, 1(5), 601–608. doi: 10.1001/jamaoncol.2015.1976.CrossRefGoogle ScholarPubMed
Pettigrew, C.et al. (2019). Attitudes toward advance care planning among persons with dementia and their caregivers. International Psychogeriatrics, 32, 585–599. doi: 10.1017/S1041610219000784.CrossRefGoogle Scholar
Robinson, L.et al. (2011). A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age and Ageing, 41(2), 263–269. doi: 10.1093/ageing/afr148.CrossRefGoogle ScholarPubMed
Ryan, T., Amen, K. M. and McKeown, J. (2017). The advance care planning experiences of people with dementia, family caregivers and professionals: a synthesis of the qualitative literature. Annals of Palliative Medicine, 6(4), 380–389. doi: 10.21037/apm.2017.06.15.CrossRefGoogle ScholarPubMed
Teixeira, A. A., Hanvey, L., Tayler, C., Barwich, D., Baxter, S. and Heyland, D. K. (2015). What do Canadians think of advanced care planning? Findings from an online opinion poll. BMJ Supportive & Palliative Care, 5(1), 40–47. doi: 10.1136/bmjspcare-2013-000473.CrossRefGoogle ScholarPubMed
van der Steen, J. T.et al. (2014). Factors associated with initiation of advance care planning in dementia: a systematic review. Journal of Alzheimer’s Disease, 40(3), 743–757. doi: 10.3233/JAD-131967.CrossRefGoogle ScholarPubMed
Yadav, K. N.et al. (2017). Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Affairs, 36(7), 1244–1251. doi: 10.1377/hlthaff.2017.0175.CrossRefGoogle ScholarPubMed