Hostname: page-component-78c5997874-dh8gc Total loading time: 0 Render date: 2024-11-20T01:18:04.791Z Has data issue: false hasContentIssue false
  • English
  • Français

Does the community-based combined Meeting Center Support Programme (MCSP) make the pathway to day-care activities easier for people living with dementia? A comparison before and after implementation of MCSP in three European countries

Published online by Cambridge University Press:  13 February 2018

Dorota Szcześniak ,
Rose-Marie Dröes ,
Franka Meiland ,
Dawn Brooker ,
Elisabetta Farina ,
Rabih Chattat ,
Shirley B. Evans ,
Simon C. Evans ,
Francesca Lea Saibene  and
Katarzyna Urbańska Open the ORCID record for Katarzyna Urbańska [Opens in a new window]
...Show all authors
Dorota Szcześniak*
Affiliation:
Department of Psychiatry, Wroclaw Medical University, Wroclaw, Poland
Rose-Marie Dröes
Affiliation:
Department of Psychiatry, EMGO institute for Health and Care Research, VU University Medical Center, Amsterdam, the Netherlands
Franka Meiland
Affiliation:
VU University Medical Center, Amsterdam, the Netherlands
Dawn Brooker
Affiliation:
Association for Dementia Studies, University of Worcester, Worcester, UK
Elisabetta Farina
Affiliation:
IRCCS S. Maria Nascente Don Gnocchi Foundation, Milan, Italy
Rabih Chattat
Affiliation:
Department of Psychology, University of Bologna, Bologna, Italy
Shirley B. Evans
Affiliation:
Association for Dementia Studies, University of Worcester, Worcester, UK
Simon C. Evans
Affiliation:
Association for Dementia Studies, University of Worcester, Worcester, UK
Francesca Lea Saibene
Affiliation:
IRCCS S. Maria Nascente Don Gnocchi Foundation, Milan, Italy
Katarzyna Urbańska
Affiliation:
Department of Psychiatry, Wroclaw Medical University, Wroclaw, Poland
Joanna Rymaszewska
Affiliation:
Department of Psychiatry, Wroclaw Medical University, Wroclaw, Poland
*
Correspondence should be addressed to: Dorota Szcześniak, Department of Psychiatry, Division of Consultation Psychiatry and Neuroscience, Wroclaw Medical University, Pasteura 10, 50-367 Wroclaw, Poland. Phone: +48 71 784 16 28; Fax: +48 71 784 16 02. Email: [email protected].
Get access Rights & Permissions [Opens in a new window]

Abstract

Background:

The “pathway to care” concept offers a helpful framework for preparing national dementia plans and strategies and provides a structure to explore the availability and accessibility of timely and effective care for people with dementia and support for their informal carers. Within the framework of the JPND-MEETINGDEM implementation project the pathways to regular day-care activities and the Meeting Centers Support Programme (MCSP), an innovative combined support form for people with dementia and carers, was explored.

Methods:

An exploratory, descriptive, qualitative, cross-country design was applied to investigate the pathways to day care in several regions in four European countries (Italy, Poland, United Kingdom, and the Netherlands).

Results:

Before implementation of MCSP, of the four countries the United Kingdom had the most structured pathway to post-diagnostic support for people with dementia. MCSP introduction had a positive impact on the pathways to day-care activities in all countries. MCSP filled an important gap in post-diagnostic care, increasing the accessibility to support for both people with dementia and carers. Key elements such as program of activities, target group, and collaboration between healthcare and social services were recognized as success factors.

Conclusions:

This study shows that MCSP fills (part of) the gap between diagnosis and residential care and can therefore be seen as a pillar of post-diagnostic care and support. Further dissemination of Meeting Centers in Europe may have a multiple impact on the structure of dementia services in European countries and the pathways to day care for people with dementia and their carer(s).

Keywords

dementiacarerscommunity careday programsheathcare systems
Type
Original Research Article
Information
International Psychogeriatrics , Volume 30 , Special Issue 11: Social Aspects of Dementia and Dementia Practice , November 2018 , pp. 1717 - 1734
Copyright
Copyright © International Psychogeriatric Association 2018 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bieber, A. et al. (2017). Access to community care for people with dementia and their informal carers: Case vignettes for a European comparison of structures and common pathways to formal care. Zeitschrift für Gerontologie und Geriatrie. Epub ahead of print. doi: 10.1007/s00391-017-1266-7.Google Scholar
Boustani, M. A. et al. (2011). Implementing innovative models of dementia care: the healthy aging brain center. Aging & Mental Health, 15, 13–22. doi: 10.1080/13607863.2010.496445.Google Scholar
Brooker, D., Fontaine, J. L., Evans, S., Bray, J. and Saad, K. (2014). Public health guidance to facilitate timely diagnosis of dementia: Alzheimer's cooperative valuation in Europe recommendations. International Journal of Geriatric Psychiatry, 29, 682–693. doi: 10.1002/gps.4066.Google Scholar
Central Statistical Office (2015). Health and Health Care in 2014. Warsaw, Poland: Central Statistical Office.Google Scholar
del-Pino-Casado, R., Frías-Osuna, A. and Palomino-Moral, P. A. (2011). Subjective burden and cultural motives for caregiving in informal caregivers of older people. Journal of Nursing Scholarship, 43, 282–291. doi: 10.1111/j.1547-5069.2011.01407.x.Google Scholar
Department of Health (2009). Living Well with Dementia: A National Dementia Strategy. London: Department of Health.Google Scholar
Diaz-Ponce, A. et al. (2014). Dementia in Europe. Yearbook 2014-National Care Pathways for People with Dementia Living at Home. Luxembourg, UK: Alzheimer Europe.Google Scholar
Dröes, R. M. (1996). Amsterdamse Ontmoetingscentra; Een Nieuwe Vorm van Ondersteuning Voor Dementerende Mensen en Hun Verzorgers. Eindrapport: Thesis Publishers.Google Scholar
Dröes, R. M., Meiland, F. J. M., Schmitz, M. and van Tilburg, W. (2004a), Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. International Journal of Geriatric Psychiatry, 19, 673–684. doi: 10.1002/gps.1142.Google Scholar
Dröes, R. M. et al. (2004b). Variations in meeting centers for people with dementia and their carers: results of a multi-centre implementation study. Archives of Geriatrics and Gerontology, (9), 127–148. doi: https://doi.org/10.1016/j.archger.2004.04.020.Google Scholar
Dröes, R. M. et al. (2017). Comparison of the adaptive implementation and evaluation of the meeting centers support program for people with dementia and their family carers in Europe; study protocol of the MEETINGDEM project. BMC Geriatrics, 17, 79.Google Scholar
Dröes, R. M., Van Der Roest, H. G., Van Mierlo, L. and Meiland, F. J. (2014). Memory problems in dementia: adaptation and coping strategies and psychosocial treatments. Expert Review of Neurotherapeutics, 11, 1769–1782. doi: 10.1586/ern.11.167.Google Scholar
Dröes, R. M., van Mierlo, L. D., van der Roest, H. G. and Meiland, F. J. M. (2010). Focus and effectiveness of psychosocial interventions for people with dementia in institutional care settings from the perspective of coping with the disease. Non-pharmacological Therapies in Dementia, 2, 139–161.Google Scholar
Hallberg, I. R. et al. (2013). Dementia care in Eight European countries: developing a mapping system to explore systems. Journal of Nursing Scholarship, 45, 412–424. doi: 10.1111/jnu/12046.Google Scholar
Jones, J. and Hunter, D. (1995). Consensus methods for medical and health services research. British Medical Journal, 311, 376. doi: https://doi.org/10.1136/bmj.311.7001.376.Google Scholar
Kerpershoek, L. et al. (2016). Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study. BMC Health Services Research. 16, 423, doi: 10.1186/s12913-016-1672-3.Google Scholar
Li, C. P. and Fang, Y. W. (2016). Care pathway networks as a guideline for people with Dementia in Taiwan. Technology and Health Care, 24 (Suppl. 1), 337–344.Google Scholar
Mangiaracina, F. et al. (2017). Not re-inventing the wheel: the adaptive implementation of the meeting centres support programme in four European counties. Aging & Mental Health, 21, 40–48. doi: https://doi.org/10.1080/13607863.2016.1258540.Google Scholar
Meiland, F. J. M., Dröes, R. M., Lange, J. and de Vernooij-Dassen, M. J. F. J. (2005). Facilitators and barriers in the implementation of the meeting centres model for people with dementia and their carers. Health Policy, 71, 243–53. doi: https://doi.org/10.1016/j.healthpol.2004.08.011.Google Scholar
Millard, F. and Baune, B. (2009). Dementia – who cares? A comparison of community needs and primary care services. Australian Family Physician, 38, 642–649.Google Scholar
OECD (2015). Addressing Dementia: The OECD Response, Paris: OECD Publishing. doi: https://doi.org/10.1787/9789264231726-en.Google Scholar
Prince, M. J. et al. (2015). The burden of disease in older people and implications for health policy and practice. The Lancet, 385, 549–562. doi: https://doi.org/10.1016/S0140-6736(14)61347-7.Google Scholar
Prince, M. J., Comas-Herrera, A., Knapp, M., Guerchet, M. and Karagiannidou, M. (2016). World Alzheimer Report 2016: improving healthcare for people living with dementia coverage, quality and costs now and in the future. London: Alzheimer's Disease International. Available at: https://www.alz.co.uk/research/WorldAlzheimerReport2016.pdf.Google Scholar
Raak, A., Mur-Veeman, I., Hardy, B., Steenbergen, M. and Paulus, A. (2003). Integrated care in Europe. Description and Comparison of Integrated Care in Six EU Countries. Maarssen: Elsevier Gezondheidszorg.Google Scholar
Samsi, K. and Manthorpe, J. (2014). Care pathways for dementia: current perspectives. Clinical Interventions in Aging, 9, 2055–2063. doi: 10.2147/CIA.S70628.Google Scholar
Schrijvers, G., van Hoorn, A. and Huiskes, N. (2012). The care pathway: concepts and theories: an introduction. International Journal of Integrated Care, 12 (Special Edition Integrated Care Pathways), e192.Google Scholar
van der Lee, J., Bakker, T. J., Duivenvoorden, H. J. and Dröes, R. M. (2014). Multivariate models of subjective caregiver burden in dementia: a systematic review. Ageing Research Reviews, 15, 76–93. doi: 10.1016/j.arr.2014.03.003.Google Scholar
Westfall, J. M., Mold, J. and Fagnan, L. (2007). Practice-based research-“Blue Highways” on the NIH Roadmap. Journal of the American Medical Association, 297, 403–406. doi: 10.1001/jama.297.4.403.Google Scholar
Wilcock, J. et al. (2013). Tailored educational intervention for primary care to improve the management of dementia: the EVIDEM-ED cluster randomized controlled trial. Trials, 14, 397. doi: 10.1186/1745-6215-14-397.Google Scholar