Hostname: page-component-586b7cd67f-rcrh6 Total loading time: 0 Render date: 2024-11-30T15:16:49.218Z Has data issue: false hasContentIssue false
  • English
  • Français

Daily lives of residents with dementia in nursing homes: development of the Maastricht electronic daily life observation tool

Published online by Cambridge University Press:  23 March 2016

B. de Boer ,
H.C. Beerens ,
S.M.G. Zwakhalen ,
F.E.S. Tan ,
J.P.H. Hamers  and
H. Verbeek
B. de Boer*
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
H.C. Beerens
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
S.M.G. Zwakhalen
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
F.E.S. Tan
Affiliation:
Department of Methodology and Statistics, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
J.P.H. Hamers
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
H. Verbeek
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
*
Correspondence should be addressed to: B. de Boer, MSc, Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, the Netherlands. Phone: +31 43 388286. Email: [email protected].
Get access Rights & Permissions [Opens in a new window]

Abstract

Background:

Daily life is a dynamic and multidimensional concept, for which appropriate assessment tools are lacking. This study describes the development of the Maastricht Electronic Daily Life Observation tool (MEDLO-tool), a freely accessible, easy to use, electronic observation tool to assess relevant daily life aspects for nursing home residents with dementia.

Methods:

(1) Determining relevant aspects of daily life for nursing home residents with dementia based on a literature search and expert interviews; (2) pilot testing observation procedures and operationalizations of the aspects of daily life; and (3) exploring inter-rater reliability and feasibility of the tool in a nursing home facility with 16 residents (56% female, mean age: 77).

Results:

The following aspects of daily life are assessed with the MEDLO-tool: (1) activity (activity performed by resident, engagement in this activity, and the degree of physical effort); (2) physical environment (location of the resident and interaction with the physical environment); (3) social interaction (the level and type of social interaction, and with whom this social interaction took place); and (4) emotional well-being (mood and agitation). Each aspect of daily life is observed and scored using standardized scoring options. Agreement on the aspects is high with an average absolute agreement of 86%. Users of the MEDLO-tool indicated that it was feasible in practice and contained clear operationalization of the aspects of daily life.

Conclusions:

The MEDLO-tool is a promising tool to gain real time insight into the aspects of the daily lives of nursing home residents with dementia.

Keywords

Alzheimer's disease (AD)dementialong-term carenursing homesquality of life
Type
Research Article
Information
International Psychogeriatrics , Volume 28 , Issue 8 , August 2016 , pp. 1333 - 1343
Copyright
Copyright © International Psychogeriatric Association 2016 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Beerens, H. C. et al. (2016). The association between aspects of daily life and quality of life of people with dementia living in long-term care facilities: repeated real-time observations. Submitted to: International Psychogeriatrics. doi: 10.1017/S1041610216000466 Google Scholar
Bradford Dementia Group (2005). DCM 8 User's Manual. Bradford: University of Bradford.Google Scholar
Brooker, D. (2005). Dementia care mapping: a review of the research literature. The Gerontologist, 45, 11–18. doi: 10.1093/geront/45.suppl_1.11.Google Scholar
Casey, A. N., Low, L. F., Goodenough, B., Fletcher, J. and Brodaty, H. (2014). Computer-assisted direct observation of behavioral agitation, engagement, and affect in long-term care residents. Journal of the American Medical Directors Association, 15, 514–520. doi: 10.1016/j.jamda.2014.03.006.Google Scholar
Cohen-Mansfield, J., Thein, K., Dakheel-Ali, M. and Marx, M. S. (2010). Engaging nursing home residents with dementia in activities: the effects of modeling, presentation order, time of day, and setting characteristics. Aging & Mental Health, 14, 471–480. doi: 10.1080/13607860903586102.CrossRefGoogle ScholarPubMed
Curyto, K. J., Van Haitsma, K. and Vriesman, D. K. (2008). Direct observation of behavior: a review of current measures for use with older adults with dementia. Research in Gerontological Nursing, 1, 52–76. doi: 10.3928/19404921-20080101-02.Google Scholar
Dean, R., Proudfoot, R. and Lindesay, J. (1993). The quality of interactions schedule (QUIS): development, reliability and use in the evaluation of two domus units. International Journal of Geriatric Psychiatry, 8, 819–826. doi: 10.1002/gps.930081004.Google Scholar
Den Ouden, M. et al. (2015). Daily (In) activities of nursing home residents in their wards: an observation study. Journal of the American Medical Directors Association, 16, 963–968. doi: 10.1016/j.jamda.2015.05.016.CrossRefGoogle ScholarPubMed
Doherty-King, B., Yoon, J. Y., Pecanac, K., Brown, R. and Mahoney, J. (2014). Frequency and duration of nursing care related to older patient mobility. Journal of Nursing Scholarship, 46, 20–27. doi: 10.1111/jnu.12047.Google Scholar
Edvardsson, D., Petersson, L., Sjogren, K., Lindkvist, M. and Sandman, P. O. (2014). Everyday activities for people with dementia in residential aged care: associations with person-centredness and quality of life. International Journal of Older People Nursing, 9, 269–276. doi: 10.1111/opn.12030.CrossRefGoogle ScholarPubMed
Edvardsson, D., Winblad, B. and Sandman, P. O. (2008). Person-centred care of people with severe Alzheimer's disease: current status and ways forward. The Lancet Neurology, 7, 362–367. doi: 10.1016/S1474-4422(08)70063-2.Google Scholar
Hancock, G. A., Woods, B., Challis, D. and Orrell, M. (2006). The needs of older people with dementia in residential care. International Journal of Geriatric Psychiatry, 21, 43–49. doi: 10.1002/gps.1421.Google Scholar
Harmer, B. J. and Orrell, M. (2008). What is meaningful activity for people with dementia living in care homes? A comparison of the views of older people with dementia, staff and family carers. Aging & Mental Health, 12, 548–558. 10.1080/13607860802343019.Google Scholar
Harper Ice, G. (2002). Daily life in a nursing home: has it changed in 25 years? Journal of Aging Studies, 16, 345–359. doi: 10.1016/S0890-4065(02)00069-5.Google Scholar
Kitwood, T. and Bredin, K. (1992). A new approach to the evaluation of dementia care. Journal of Advances in Health and Nursing Care, 1, 41–60.Google Scholar
Martin, P. and Bateson, P. (2007). Measuring Behaviour: An Introductory Guide. Cambridge: Cambridge University Press.Google Scholar
Morris, J. N., Fries, B. E. and Morris, S. A. (1999). Scaling ADLs within the MDS. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 54, M546–M553. doi: 10.1093/gerona/54.11.M546.CrossRefGoogle ScholarPubMed
Morris, J. N. et al. (1994). MDS cognitive performance scale©. Journal of Gerontology, 49, M174–M182. doi: 10.1093/geronj/49.4.M174.CrossRefGoogle ScholarPubMed
Phinney, A., Chaudhury, H. and O'Connor, D. L. (2007). Doing as much as I can do: the meaning of activity for people with dementia. Aging & Mental Health, 11, 384–393. doi: 10.1080/13607860601086470.Google Scholar
Rosen, J. et al. (1995). The Pittsburgh agitation scale: a user-friendly instrument for rating agitation in dementia patients. The American Journal of Geriatric Psychiatry, 2, 52–59. doi: 10.1097/00019442-199400210-00008.CrossRefGoogle Scholar
Shiffman, S., Stone, A. A. and Hufford, M. R. (2008). Ecological momentary assessment. Annual Review of Clinical Psychology, 4, 1–32. doi: 10.1146/annurev.clinpsy.3.022806.091415.CrossRefGoogle ScholarPubMed
Sloane, P. D. et al. (2007). Dementia care mapping as a research tool. International Journal of Geriatric Psychiatry, 22, 580–589. doi: 10.1002/gps.1721.Google Scholar
Smit, D., de Lange, J., Willemse, B. and Pot, A. M. (2012). The relationship between small-scale care and activity involvement of residents with dementia. International Psychogeriatrics, 24, 722–732. doi: 10.1017/S1041610211002377.Google Scholar
Verbeek, H., van Rossum, E., Zwakhalen, S. M., Kempen, G. I. and Hamers, J. P. (2009). Small, homelike care environments for older people with dementia: a literature review. International Psychogeriatrics, 21, 252–264. doi: 10.1017/S104161020800820X.CrossRefGoogle ScholarPubMed
Vernooij-Dassen, M. (2007). Meaningful activities for people with dementia. Aging & Mental Health, 11, 359–360. doi: 10.1080/13607860701498443.Google Scholar
Viera, A. J. and Garrett, J. M. (2005). Understanding interobserver agreement: the kappa statistic. Family Medicine, 37, 360–363.Google Scholar
Whear, R., Coon, J. T., Bethel, A., Abbott, R., Stein, K. and Garside, R. (2014). What is the impact of using outdoor spaces such as gardens on the physical and mental well-being of those with dementia? A systematic review of quantitative and qualitative evidence. Journal of the American Medical Directors Association, 15, 697–705. doi: 10.1016/j.jamda.2014.05.013.Google Scholar
Wood, W. (2005). Toward developing new occupational science measures: an example from dementia care research. Journal of Occupational Science, 12, 121–129. 10.1080/14427591.2005.9686555.CrossRefGoogle Scholar
Zarit, S. and Femia, E. (2008). A future for family care and dementia intervention research? Challenges and strategies. Aging and Mental Health, 12, 5–13. doi: 10.1080/13607860701616317.CrossRefGoogle ScholarPubMed
Supplementary material: File

de Boer supplementary material

de Boer supplementary material 1

Download de Boer supplementary material(File)
File 20.6 KB
Supplementary material: File

de Boer supplementary material

de Boer supplementary material 2

Download de Boer supplementary material(File)
File 12.9 KB