Hostname: page-component-586b7cd67f-l7hp2 Total loading time: 0 Render date: 2024-12-03T19:27:00.191Z Has data issue: false hasContentIssue false
  • English
  • Français

The association between attending specialized day care centers and the quality of life of people with dementia

Published online by Cambridge University Press:  17 November 2016

Anne Marie Mork Rokstad ,
Knut Engedal ,
Øyvind Kirkevold ,
Jūratė Šaltytė Benth ,
Maria Lage Barca  and
Geir Selbæk
Anne Marie Mork Rokstad*
Affiliation:
Norwegian National Advisory Unit on Ageing and Health, Vestfold Health Trust, Tønsberg, Norway Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway
Knut Engedal
Affiliation:
Norwegian National Advisory Unit on Ageing and Health, Vestfold Health Trust, Tønsberg, Norway
Øyvind Kirkevold
Affiliation:
Norwegian National Advisory Unit on Ageing and Health, Vestfold Health Trust, Tønsberg, Norway Department of Care and Nursing, Faculty of Health, Norwegian University of Science and Technology (NTNU), Gjøvik, Norway Centre for Old Age Psychiatric Research, Innlandet Hospital Trust, Ottestad, Norway
Jūratė Šaltytė Benth
Affiliation:
Institute of Clinical Medicine, Campus Ahus, University of Oslo, Oslo, Norway HØKH, Research Centre, Akershus University Hospital, Oslo, Norway
Maria Lage Barca
Affiliation:
Norwegian National Advisory Unit on Ageing and Health, Vestfold Health Trust, Tønsberg, Norway
Geir Selbæk
Affiliation:
Norwegian National Advisory Unit on Ageing and Health, Vestfold Health Trust, Tønsberg, Norway Centre for Old Age Psychiatric Research, Innlandet Hospital Trust, Ottestad, Norway Department of Nursing Science, Faculty of Medicine, University of Oslo, Oslo, Norway
*
Correspondence should be addressed to: Anne Marie, Norwegian National Advisory Unit on Ageing and Health, Vestfold Health Trust, Postbox 2136, 3103 Tønsberg, Norway. Phone: +47 99509819. Email: [email protected].
Get access Rights & Permissions [Opens in a new window]

Abstract

Background:

Day care that is designed for people with dementia aims to increase the users’ quality of life (QoL). The objective of the study was to compare the QoL of people with dementia attending day care with those not attending day care.

Methods:

The study is based on baseline data from a project using a quasi-experimental design, including a group of day care users (n = 183) and a comparison group not receiving day care (n = 78). Quality of Life-Alzheimer's Disease (QoL-AD) was used as the primary outcome, to collect both self-reported and proxy-based information from family carers on the users’ QoL. A linear mixed model was used to examine the differences between groups.

Results:

Attending day care was significantly associated with higher mean scores of self-reported QoL. There was no difference between the groups in proxy-reported QoL. Analyses of the interaction between group belonging and awareness of memory loss revealed that the participants with shallow or no awareness who attended day care had significant higher mean scores of QoL-AD compared to those not attending day care.

Conclusions:

Higher self-reported QoL was found among people attending day care designed for people with dementia compared to the comparison group. The difference in QoL ratings was found in the group of day care users with shallow or no awareness of their memory loss. Hence, day care designed for people with dementia might have the potential to increase QoL as it is experienced by the users.

Keywords

day carequality of life (QoL)dementiainsight
Type
Research Article
Information
International Psychogeriatrics , Volume 29 , Issue 4 , April 2017 , pp. 627 - 636
Copyright
Copyright © International Psychogeriatric Association 2016 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Alzheimer's Disease International (ADI). (2015). World Alzheimer's Report 2015. The Global Impact of Dementia – an Analysis of Prevalence, Incidence, Cost and Trends. London: Alzheimer's Disease International.Google Scholar
Banerjee, S. et al. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 24, 15–24. doi:10.1002/gps.2090.Google Scholar
Bosboom, P. R., Alfonso, H., Eaton, J. and Almeida, O. P. (2012). Quality of life in Alzheimer's disease: different factors associated with complementary ratings by patients and family carers. International Psychogeriatrics, 16, 1—14. doi:10.1017/S1041610211002493.Google Scholar
Bruvik, F. K., Ulstein, I. D., Ranhoff, A. H. and Engedal, K. (2012). The quality of life of people with dementia and their family carers. Dementia and Geriaticr Cognitive Disorders, 34, 7–14. doi:10.1159/000341584.Google Scholar
Clare, L., Rowlands, J., Bruce, E., Surr, C. and Downs, M. (2008). ‘I don't do like I used to do’: a grounded theory approach to conceptualising awareness in people with moderate to severe dementia living in long-term care. Social Science & Medicine, 66, 2366–2377. doi:10.1016/j.socscimed.2008.01.045.CrossRefGoogle Scholar
Conde-Sala, J. L., Turró-Garriga, O., Garre-Olmo, J., Vilalt-Franch, J. and Lopez-Pousa, S. (2014). Discrepancies regarding the quality of life of patients with Alzheimer's disease: a three-year longitudinal study. Journal of Alzheimer's Disease, 39, 511–25. doi:10.323/JAD-131286.Google Scholar
Cummings, J. L. et al. (1994). The neuropsychiatric inventory: comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308–14.Google Scholar
Dahm, K. T., Hafstad, E. and Dalsbø, T. K. (2014). The Effect of Day Care Centers for People With Dementia – An Updated Literature Review. [Effekten av tilrettelagt dagsentertilbud til personer med demens – oppdatert systematisk litteratursøk]. Oslo: Norwegian Knowledge Centre for the Health Services.Google Scholar
Droes, R. M. et al. (2006). Quality of life in dementia in perspective: an explorative study of variations in options among people with dementia and their professional caregivers, and in literature. Dementia, 5, 533–58. doi: 10.1177/1471301206069929.Google Scholar
Fields, N. L., Anderson, K. A. and Dabelko-Schoeny, H. (2014). The effectiveness of adult day services for older adults: a review of the literature from 2000 to 2011. Journal of Applied Gerontology, 33, 130–63. doi: 10.1177/0733464812443308.CrossRefGoogle ScholarPubMed
Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975). "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–98.Google Scholar
Hughes, C. P., Berg, L., Danziger, W. L., Coben, L. A. and Martin, R. L. (1982). A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140, 566–72.Google Scholar
Hurt, C. S. et al. (2010). Insight, cognition and quality of life in Alzheimer's disease. Journal of Neurology, Neurosurgery & Psychiatry, 81, 331–36. doi:10.1136/jnnp.2009.184598.CrossRefGoogle ScholarPubMed
Ishizaki, J. et al. (2002). Therapeutic psychosocial intervention for elderly subjects with very mild Alzheimer disease in a community: the Tajiri project. Alzheimer Diease & Associated Disorders, 16, 261–69.Google Scholar
Kaufer, D. I. et al. (2000). Validation of the NPI-Q, a brief clinical form of the neuropsychiatric inventory. The Journal of Neuropsychiatry & Clinical Neurosciencesi, 12, 233–39.Google Scholar
Lawton, M. P. (1997). Assessing quality of life in Alzheimer disease research. Alzheimer Diease & Associated Disorders, 11 (Suppl. 6), 91–99.Google ScholarPubMed
Lawton, M. P. and Brody, E. M. (1969). Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist, 9, 179–86.CrossRefGoogle ScholarPubMed
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (1999). Quality of life in Alzheimer's disease: patient and caregiver reports. Journal of Mental Health and Aging, 5, 21–32.Google Scholar
Montgomery, S. A. and Asberg, M. (1979). A new depression scale designed to be sensitive to change. British Journal of Psychiatry, 134, 382–89.Google Scholar
Mossello, E. et al. (2008). Day care for older dementia patients: favorable effects on behavioral and psychological symptoms and caregiver stress. International Journal of Geriatric Psychiatry, 23, 1066–72. doi: 10.1002/gps.2034.Google Scholar
Moyle, W. and Bowers, B. (2010). Quality of life: dementia and dignity. International Journal of Older People Nursing, 5, 227. doi: 10.1111/j.1748-3743.2010.00214.x.Google Scholar
Nay, R. and Garratt, S. (2009). Caring for Older People. Sydney: Elsevier.Google Scholar
Reed, B. R., Jagust, W. J. and Coulter, L. (1993). Anosognosia in Alzheimer's disease: relationships to depression, cognitive function, and cerebral perfusion. Journal of Clinical and Experimental Neuropsychology, 15, 231–44. doi: 10.1080/01688639308402560.Google Scholar
Reinar, L. M., Fure, B., Kirkehei, I., Dahm, K. T. and Landmark, B. (2011). The Effect of Day Care Centers for People With Dementia. [Effekten av tilrettelagt dagsentertilbud til personer med demens]. Oslo: Norwegian Knowledge Centre for the Health Services.Google Scholar
Rokstad, A. M. M. et al. (2014). Effects and costs of a day care centre program designed for people with dementia – a 24 month controlled study. Journal of Clinical Trials, 4, 182. doi:10.4172/2167-0870.1000182.Google Scholar
Sousa, M. F. B. et al. (2013). Quality of life in dementia: the role of non-cognitive factors in the ratings of people with dementia and family caregivers. International Psychogeriatrics, 25, 1097–1105. doi:10.1017/S1041610213000410.Google Scholar
Stewart-Archer, L., Afghani, A., Toye, C. M. and Gomez, F. A. (2016). Subjective quality of life of those 65 years and older experiencing dementia. Dementia, 15, 1716–36. doi: 10.1177/1471301215576277.Google Scholar
Tretteteig, S., Vatne, S. and Rokstad, A. M. (2015). The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature. Aging & Mental Health, 20, 450–62. doi: 10.1080/13607863.2015.1023765.CrossRefGoogle ScholarPubMed
Trigg, R., Watts, S., Jones, R. and Tod, A. (2011). Predictors of quality of life ratings from persons with dementia: the role of insight. International Journal of Geriatric Psychiatry, 26, 83–91. doi:10.1002/gps.2494.CrossRefGoogle ScholarPubMed
Vogel, A., Lykke Mortensen, E., Hasselbalch, S. G., Andersen, B. B. and Waldemar, G. (2006). Patient versus informant reported quality of life in the earliest phases of Alzheimer's disease. International Journal of Geriatric Psychiatry, 21, 1132–38. doi: 10.1002/gps.1619.Google Scholar
Wergeland, J. N., Selbaek, G., Bergh, S., Soederhamn, U. and Kirkevold, O. (2015). Predictors for nursing home admission and death among community-dwelling people 70 years and older who receive domiciliary care. Dementia and Geriatric Cognitive Disorders Extra, 5, 320–29.Google Scholar
WHO. (1995). The World Health Organisation quality of life assessment (WHOQOL): position paper from the World Health Organisation. Social Science & Medicine, 41, 1403–09.Google Scholar
Wogn-Henriksen, K. (2012). “You have to. . .make yourself a life”. A Qualitative Study on Living with Dementia Based on Interviews of Persons with Early Onset Alzheimer's Disease. [“Du må . . . skape deg et liv”. En kvalitativ studie om å oppleve og leve med demens basert på intervjuer med en gruppe personer med tidlig debuterende Alzheimers sykdom]. Doctoral Thesis. Trondheim: Norwegian University of Science and Technology.Google Scholar
Woods, R. T. et al. (2014). What contributes to a good quality of life in early dementia? Awareness and the QoL-AD: a cross-sectional study. Health and Quality of Life Outcomes, 12, 94.CrossRefGoogle ScholarPubMed
Zank, S. and Schacke, C. (2002). Evaluation of geriatric day care units: effects on patients and caregivers. Journal of Gerontology: Psychological Sciences and the Journal of Gerontology: Social Sciences, 57, 348–57. doi:10.1093/geronb/gbr030.CrossRefGoogle ScholarPubMed
Zarit, S. H., Stephens, M. A., Townsend, A. and Greene, R. (1998). Stress reduction for family caregivers: effects of adult day care use. The Journal of Gerontology: Social Sciences, 53, 267–77. doi:10.1093/geronb/53B.5.S267.Google Scholar
Zhao, H. et al. (2012). Factors associated with caregivers’ underestimation of quality of life in patients with Alzheimers's disease. Dementia and Geriatric Cognitive Disorders, 33, 11–17. doi:10.1159/000333070.Google Scholar