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Assessing caregiver needs

Published online by Cambridge University Press:  10 May 2021

Soo Borson*
Affiliation:
Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine, Seattle, WA, USA
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Abstract

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Type
Commentary
Copyright
© International Psychogeriatric Association 2021

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References

Bangerter, L. R., Griffin, J. M., Zarit, S. H. and Havyer, R. (2019). Measuring the needs of family caregivers of people with dementia: an assessment of current methodological strategies and key recommendations. Journal of Applied Gerontology, 38, 13041318. https://doi.org/10.1177/0733464817705959CrossRefGoogle ScholarPubMed
Borson, S., Mobley, P., Fernstrom, K., Bingham, P., Sadak, T. and Britt, H. R. (2018). Measuring caregiver activation to identify coaching and support needs: extending MYLOH to advanced chronic illness. PLoS One, 13, e0205153. https://doi.org/10.1371/journal.pone.0205153 CrossRefGoogle ScholarPubMed
Borson, S., Scanlan, J. M., Sadak, T., Lessig, M. and Vitaliano, P. (2014). Dementia Services Mini-Screen: a simple method to identify patients and caregivers in need of enhanced dementia care services. American Journal of Geriatric Psychiatry, 22, 746755. https://doi.org/10.1016/j.jagp.2013.11.001CrossRefGoogle ScholarPubMed
Clemmensen, T. H., Kristensen, H. K., Andersen-Ranberg, K. and Lauridsen, H. H. (2021). Development and field-testing of the Dementia Carer Assessment of Support Needs Tool (DeCANT). International Psychogeriatrics, 33, 405417. https://doi.org/10.1017/S1041610220001714 Google Scholar
Family Caregiver Alliance (2012). Selected caregiver assessment measures: a resource inventory for practitioners. Available at: https://www.caregiver.org/selected-caregiver-assessment-measures-resource-inventory-practitioners-2012; last accessed 10 December 2020.Google Scholar
Fazio, S., Pace, D., Maslow, K., Zimmerman, S. and Kallmyer, B. (2018). Alzheimer’s association dementia care practice recommendations. Gerontologist, 58, S1S9. https://doi.org/10.1093/geront/gnx182 CrossRefGoogle ScholarPubMed
Fortinsky, R. H. (2001). Health care triads and dementia care: integrative framework and future directions. Aging and Mental Health, 5, S35S48. https://doi.org/10.1080/713649999 CrossRefGoogle ScholarPubMed
Kipfer, S. and Pihet, S. (2020). Reliability, validity and relevance of needs assessment instruments for informal dementia caregivers: a psychometric systematic review. JBI Evidence Synthesis, 18, 704742. https://doi.org/10.11124/JBISRIR-2017-003976 Google ScholarPubMed
Kleinman, A. (2020). The Soul of Care: The Moral Education of a Husband and a Doctor. United States: Penguin.Google Scholar
Livingston, G. et al. (2020). Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet, 396, 413–46. https://doi.org/10.1016/S0140-6736(20)30367-6 CrossRefGoogle ScholarPubMed
Marosszeky, N., Rix, M. and Owen, A. (2006). Knowing what you need to know about needs assessment. Available at: https://ro.uow.edu.au/gsbpapers/86; last accessed 30 September 2020.Google Scholar
McCabe, M., You, E. and Tatangelo, G. (2016). Hearing their voice: a systematic review of dementia family caregivers’ needs. Gerontologist, 56, e70e88. https://doi.org/10.1093/geront/gnw078 CrossRefGoogle ScholarPubMed
Prince, M. et al. (2012). Strain and its correlates among carers of people with dementia in low-income and middle-income countries. A 10/66 Dementia Research Group population-based survey. International Journal of Geriatric Psychiatry, 27, 670682. https://doi.org/10.1002/gps.2727 CrossRefGoogle Scholar
Riffin, C., Van Ness, P. H., Wolff, J. L. and Fried, T. (2019). Multifactorial examination of caregiver burden in a national sample of family and unpaid caregivers. Journal of the American Geriatrics Society, 67, 277283. https://doi.org/10.1111/jgs.15664 CrossRefGoogle Scholar
Roth, D. L., Fredman, L. and Haley, W. E. (2015). Informal caregiving and its impact on health: a reappraisal from population-based studies. Gerontologist, 55, 309319. https://doi.org/10.1093/geront/gnu177 CrossRefGoogle ScholarPubMed
Sadak, T., Korpak, A. and Borson, S. (2015). Measuring caregiver activation for health care: validation of PBH-LCI:D. Geriatric Nursing, 36, 284292. https://doi.org/10.1016/j.gerinurse.2015.03.003 CrossRefGoogle ScholarPubMed
Sadak, T., Souza, A. and Borson, S. (2016). Toward assessment of dementia caregiver activation for health care: an integrative review of related constructs and measures. Research in Gerontological Nursing, 9, 145155. https://doi.org/10.3928/19404921-20151019-02 CrossRefGoogle ScholarPubMed
Sadak, T., Wright, J. and Borson, S. (2018). Managing your loved one’s health: development of a new care management measure for dementia family caregivers. Journal of Applied Gerontology, 37, 620643. https://doi.org/10.1177/0733464816657472 CrossRefGoogle ScholarPubMed
Wimo, A., Gauthier, S. and Prince, M. (2018). Global estimates of informal care. Available at London: https://www.alz.co.uk/adi/pdf/global-estimates-of-informal-care.pdf; last accessed 18 September 2020.Google Scholar