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Translating dementia research into practice

Published online by Cambridge University Press:  01 April 2009

Brian Draper ,
Lee-Fay Low ,
Adrienne Withall ,
Victor Vickland  and
Tanya Ward
Brian Draper*
Affiliation:
School of Psychiatry, University of NSW, Sydney, NSW, Australia Primary Dementia Collaborative Research Centre, Coogee, NSW, Australia Prince of Wales Hospital, Randwick, NSW, Australia
Lee-Fay Low
Affiliation:
Primary Dementia Collaborative Research Centre, Coogee, NSW, Australia
Adrienne Withall
Affiliation:
School of Psychiatry, University of NSW, Sydney, NSW, Australia Primary Dementia Collaborative Research Centre, Coogee, NSW, Australia Prince of Wales Hospital, Randwick, NSW, Australia
Victor Vickland
Affiliation:
Primary Dementia Collaborative Research Centre, Coogee, NSW, Australia
Tanya Ward
Affiliation:
Primary Dementia Collaborative Research Centre, Coogee, NSW, Australia
*
Correspondence should be addressed to: Brian Draper, School of Psychiatry, University of NSW, Sydney, NSW 2052, Australia. Phone: +61 (2) 9382 3759; Fax: +61 (2) 9382 3762. Email: [email protected]
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Abstract

There is a gap between the knowledge obtained in dementia research and the practical use of it. This review examines the concept of knowledge translation (KT) and the process of translating research into practice in the field of dementia. KT in dementia practice involves key players including researchers, educators, clinicians, policy-makers, the general public and consumers who act within a multidimensional network, disseminating findings widely to effect changes in community awareness, clinical practice and health policy. Challenges include the volume of dementia research; difficulties in determining who is responsible for KT; the problems of premature KT; the lack of resources to perform KT; the paucity of research about effective KT strategies; and the characteristics of the dementia care workforce. Key features of effective KT include a simple compelling message; use of interpersonal contact and roles; a practical framework with an emphasis on “know-how”; and the provision of resources and support. More effective dementia KT will require a commitment by key players to engage in the process, a better understanding of effective KT strategies, adequate resources, and judicious selection of appropriate evidence-based information.

Keywords

knowledge transferdementia research
Type
Research Article
Information
International Psychogeriatrics , Volume 21 , Supplement S1: International perspectives on dementia education, training and knowledge transfer , April 2009 , pp. S72 - S80
Copyright
Copyright © International Psychogeriatric Association 2009

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References

Abernathy, T. et al. (2001). Knowledge transfer: looking beyond health. Report on the conference held in Toronto, 26–27 October 2000. Available at: http://www.chsrf.ca/knowledge_transfer/pdf/ktransfer_e.pdf; last accessed 22 October 2008.Google Scholar
Arai, Y., Arai, A. and Zarit, S. H. (2008). What do we know about dementia? A survey on knowledge about dementia in the general public of Japan. International Journal of Geriatric Psychiatry, 23, 433–438.CrossRefGoogle ScholarPubMed
Beck, C., Cody, M., Souder, E., Zhang, M. and Small, G. W. (2000). Dementia diagnostic guidelines: methodologies, results, and implementation costs. Journal of the American Geriatrics Society, 48, 1195–1203.CrossRefGoogle ScholarPubMed
Birleson, P. (1998). Learning organisations: a suitable model for improving mental health services? Australian and New Zealand Journal of Psychiatry, 32, 214–222.CrossRefGoogle ScholarPubMed
Braun, K. L., Cheang, M. and Shigeta, D. (2005). Increasing knowledge, skills, and empathy among direct care workers in elder care: a preliminary study of an active-learning model. The Gerontologist, 45, 118–124.CrossRefGoogle ScholarPubMed
Brodaty, H. and Hadzi-Pavlovic, D. (1990). Psychosocial effects on carers of living with persons with dementia. Australian and New Zealand Journal of Psychiatry, 24, 351–361.CrossRefGoogle ScholarPubMed
Brodaty, H., Gresham, M. and Luscombe, G. (1997). The Prince Henry Hospital dementia caregivers' training programme. International Journal of Geriatric Psychiatry, 12, 183–92.3.0.CO;2-J>CrossRefGoogle Scholar
Brodaty, H., Draper, B. and Low, L.-F. (2003). Behavioural and psychological symptoms of dementia – a 7-tiered model of service delivery. Medical Journal of Australia, 178, 231–234.CrossRefGoogle Scholar
Brodaty, H., Thomson, C., Thompson, C. and Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537–546.CrossRefGoogle ScholarPubMed
Castle, N. G. and Engberg, J. (2005). Staff turnover and quality of care in nursing homes. Medical Care, 43, 616–626.CrossRefGoogle ScholarPubMed
Chodosh, J. et al. (2006). Effect of a dementia care management intervention on primary care provider knowledge, attitudes, and perceptions of quality of care. Journal of the American Geriatrics Society, 54, 311–317.CrossRefGoogle ScholarPubMed
Choi, B. C. (2005). Understanding the basic principles of knowledge translation. Journal of the Epidemiology of Community Health, 59, 93.Google ScholarPubMed
Cochrane Library (2008). Cochrane Dementia and Cognitive Improvement Group: Reviews. Available at: http://www.mrw.interscience.wiley.com/cochrane/cochrane_clsysrev_crglist_fs.html; last accessed 27 October 2008.Google Scholar
Coulter, A., Entwistle, V. and Gilbert, D. (1999). Sharing decisions with patients: is the information good enough? BMJ, 318, 318–322.CrossRefGoogle ScholarPubMed
Crookes, P. A. and Froggatt, T. (2004). Techniques and strategies for translating research findings into health care practices. In Crookes, P. A. and Davies, S. (eds.), Research into Practice, 2nd edn. Chatswood: Elsevier Health Sciences.Google Scholar
Downs, M. et al. (2006). Effectiveness of educational interventions in improving detection and management of dementia in primary care: a cluster randomised controlled study. BMJ, 332, 692–696.CrossRefGoogle ScholarPubMed
Ellison, J. (2008). A 60-year-old woman with mild memory impairment: review of mild cognitive impairment. JAMA, 300, 1566–1574.CrossRefGoogle ScholarPubMed
Erhardt, L. R. (2005). Managing cardiovascular risk: reality vs. perception. European Heart Journal, 7 (Suppl. L), L11–L15.CrossRefGoogle Scholar
Estabrooks, C. A. et al. (2005). Sources of practice knowledge among nurses. Qualitative Health Research, 15, 460–476.CrossRefGoogle ScholarPubMed
Fagerberg, I., Winblad, B. and Ekman, S.-L. (2000). Influencing aspects in nursing education on Swedish nursing students' choice of first work area as graduated nurses. Journal of Nursing Education, 39, 211–218.CrossRefGoogle ScholarPubMed
Faria, J. M. A. (2007). Part I: Public health, social science, and the scientific method. Surgical Neurology, 67, 211–214.CrossRefGoogle ScholarPubMed
Fruhauf, C. A., Jarrott, S. E. and Lambert-Shute, J. J. (2004). Service-Learners at dementia care programs: an intervention for improving contact, comfort, and attitudes. Gerontology and Geriatrics Education, 25, 37–52.CrossRefGoogle ScholarPubMed
Gaddis, G. M., Greenwald, P. and Huckson, S. (2007). Toward improved implementation of evidence-based clinical algorithms: clinical practice guidelines, clinical decision rules, and clinical pathways. Academic Emergency Medicine, 14, 1015–1022.Google ScholarPubMed
Georges, J., Jansen, S., Jackson, J., Meyrieux, A., Sadowska, A. and Selmes, M. (2008). Alzheimer's disease in real life: the dementia carer's survey. International Journal of Geriatric Psychiatry, 23, 546–551.CrossRefGoogle ScholarPubMed
Gifford, D. R. et al. (1999). Improving adherence to dementia guidelines through education and opinion leaders: a randomized, controlled trial. Annals of Internal Medicine, 131, 237–246.CrossRefGoogle ScholarPubMed
Gira, E. C., Kessler, M. L. and Poertner, J. (2004). Influencing social workers to use research evidence in practice: lessons from medicine and the allied health professions. Research on Social Work Practice, 14, 68–79.CrossRefGoogle Scholar
Graham, I. D. and Tetroe, J. (2007). CIHR research: how to translate health research knowledge into effective healthcare action. Healthcare Quarterly, 10, 20–22.CrossRefGoogle ScholarPubMed
Graham, I. D. et al. (2006). Lost in knowledge translation: time for a map? Journal of Continuing Education in the Health Professions, 26, 13–24.CrossRefGoogle ScholarPubMed
Grant, L. A., Kane, R. A., Potthoffa, S. J. and Ryden, M. (1996). Staff training and turnover in Alzheimer special care units: comparisons with non-special care units. More dementia-specific training resources should be made available to all staff to improve training effectiveness and reduce turnover. Geriatric Nursing, 17, 278–282.CrossRefGoogle Scholar
Grilli, R., Ramsay, C. and Minozzi, S. (2002). Mass media interventions: effects on health services utilisation. Cochrane Database of Systematic Reviews.CrossRefGoogle Scholar
Henderson, A. S. and Jorm, A. F. (1986). The Problem of Dementia in Australia. Canberra: Australian Government Publishing Service.Google Scholar
Henderson, A., Winch, S., Holzhauser, K. and de Vries, S. (2006). The motivation of health professionals to explore research evidence in their practice: an intervention study. Journal of Clinical Nursing, 15, 1559–1564.CrossRefGoogle ScholarPubMed
Henderson, S., Happell, B. and Martin, T. (2007). Impact of theory and clinical placement on undergraduate students' mental health nursing knowledge, skills, and attitudes. International Journal of Mental Health Nursing, 16, 116–125.CrossRefGoogle ScholarPubMed
Hesse, B. W. et al. (2005). Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Archives of Internal Medicine, 165, 2618–2624.CrossRefGoogle ScholarPubMed
Hodgson, L. G. and Cutler, S. J. (2004). Help seeking for personal concerns about developing Alzheimer's disease. Journal of Applied Gerontology, 23, 385–410.CrossRefGoogle Scholar
Hogan, D. B. et al. (2001). Recommendations of the Canadian Conference on Dementia – dissemination, implementation, and evaluation of impact. The Canadian Journal of Neurological Sciences, 28, S115–S121.CrossRefGoogle ScholarPubMed
Howe, A. (1997). From states of confusion to a National Action Plan for Dementia Care: the development of policies for dementia care in Australia. International Journal of Geriatric Psychiatry, 12, 165–171.3.0.CO;2-K>CrossRefGoogle ScholarPubMed
Hsu, M. C., Moyle, W., Creedy, D. and Venturato, L. (2005). An investigation of aged care mental health knowledge of Queensland aged care nurses. International Journal of Mental Health Nursing, 14, 16–23.CrossRefGoogle ScholarPubMed
Janes, N., Sidani, S., Cott, C. and Rappolt, S. (2008). Figuring it out in the moment: a theory of unregulated care providers' knowledge utilization in dementia care settings. Worldviews on Evidence-Based Nursing, 5, 13–24.CrossRefGoogle Scholar
Kiata, L., Kerse, N. and Dixon, R. (2005). Residential care workers and residents: the New Zealand story. New Zealand Medical Journal, 118, U1445.Google ScholarPubMed
Kümpers, S., Mur, I., Hardy, B., Maarse, H. and van Raak, A. (2006). The importance of knowledge transfer between specialist and generic services in improving health care: a cross-national study of dementia care in England and The Netherlands. International Journal of Health Planning and Management, 21, 151–167.Google ScholarPubMed
Larson, J. S., Chernoff, R. and Sweet-Holp, T. J. (2004). An evaluation of provider educational needs in geriatric care. Evaluation and the Health Professions, 27, 95–103.CrossRefGoogle ScholarPubMed
Low, L.-F. and Anstey, K. J. (2007). The public's perception of the plausibility of dementia risk factors is not influenced by scientific evidence. Dementia and Geriatric Cognitive Disorders, 23, 202–206.CrossRefGoogle Scholar
Maust, D. T. et al. (2006). Predictors of caregiver unawareness and nontreatment of dementia among residents of assisted living facilities: the Maryland Assisted Living Study. American Journal of Geriatric Psychiatry, 14, 668–675.CrossRefGoogle ScholarPubMed
McKenna, K., Bennett, S., Dierselhuis, Z., Hoffmann, T., Tooth, L. and McCluskey, A. (2005). Australian occupational therapists' use of an online evidence-based practice database (OTseeker). Health Information and Libraries Journal, 22, 205–214.CrossRefGoogle ScholarPubMed
Menne, H. L. and Whitlatch, C. J. (2007). Decision-making involvement of individuals with dementia. The Gerontologist, 47, 810–819.CrossRefGoogle ScholarPubMed
Mundt, J. C., Kaplan, D. A. and Greist, J. H. (2001). Meeting the need for public education about dementia. Alzheimer Disease and Associated Disorders, 15, 26–30.CrossRefGoogle ScholarPubMed
National Institute For Health and Clinical Excellence (2006). Donepezil, galantamine, rivastigmine (review) and memantine for the treatment of Alzheimer's disease. Available at: http://www.nice.org.uk/guidance/index.jsp?action=downloadando=33725; last accessed 30 September 2008.Google Scholar
Pfeffer, J. and Sutton, R. I. (2003). The knowing-doing gap: how smart companies turn knowledge into action. Available at: http://www.personnel.ky.gov/NR/rdonlyres/C1C65A3B-65B4-48A1-99CC-9DD68BA78CA0/0/KnowingDoingGapKnowlBrief.pdf; last accessed 28 October 2008.Google Scholar
Pravikoff, D. S., Tanner, A. B. and Pierce, S. T. (2005). Readiness of U.S. nurses for evidence-based practice: many don't understand or value research and have had little or no training to help them find evidence on which to base their practice. American Journal of Nursing, 105, 40–51.CrossRefGoogle ScholarPubMed
Pulsford, D., Hope, K. and Thompson, R. (2007). Higher education provision for professionals working with dementia: a scoping exercise. Nurse Education Today, 27, 5–13.CrossRefGoogle ScholarPubMed
Richards, D., Toop, L. and Graham, P. (2003). Do clinical practice education groups result in sustained change in GP prescribing? Family Practice, 20, 199–206.CrossRefGoogle ScholarPubMed
Richardson, S. and Martin, B. (2004). The Care of Older Australians: A Picture of the Residential Aged Care Workforce. Adelaide: National Institute of Labour Studies, Flinders University.Google Scholar
Roberts, J. (2000). From know-how to show-how? Questioning the role of information and communication technologies in knowledge transfer. Technology Analysis and Strategic Management, 12, 429–443.CrossRefGoogle Scholar
Robinson, A. L. and Cubit, K. (2007). Caring for older people with dementia in residential care: nursing students' experiences. Journal of Advanced Nursing, 59, 255–263.CrossRefGoogle ScholarPubMed
Runge, C., Forster-Jones, J. and Peut, A. (in press). Transitions in care of people with dementia: a systematic review of the literature. Report for the Primary Dementia Collaborative Research Centre. Coogee, Australia: DCRC.Google Scholar
Shaji, K. S., Smitha, K., Lal, K. P. and Prince, M. J. (2003). Caregivers of people with Alzheimer's disease: a qualitative study from the Indian 10/66 Dementia Research Network. International Journal of Geriatric Psychiatry, 18, 1–6.CrossRefGoogle ScholarPubMed
Tetroe, J. M. et al. (2008). Health research funding agencies' support and promotion of knowledge translation: an international study. Milbank Quarterly, 86, 125–155.CrossRefGoogle ScholarPubMed
Thompson, C., Spilsbury, K., Hall, J., Birks, Y., Barnes, C. and Adamson, J. (2007). Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7, 18.CrossRefGoogle ScholarPubMed
Thompson, G. N., Estabrooks, C. A. and Degner, L. F. (2006). Clarifying the concepts in knowledge transfer: a literature review. Journal of Advanced Nursing, 53, 691–701.CrossRefGoogle ScholarPubMed
Turner, S. et al. (2004). General practitioners' knowledge, confidence and attitudes in the diagnosis and management of dementia. Age and Ageing, 33, 461–467.CrossRefGoogle ScholarPubMed
Vernooij-Dassen, M. J. F. J. et al. (2005). Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma. International Journal of Geriatric Psychiatry, 20, 377–386.CrossRefGoogle ScholarPubMed
Vollmar, H. C, Butzlaff, M. E., Lefering, R. and Rieger, M. A. (2007). Knowledge translation on dementia: a cluster randomized trial to compare a blended learning approach with a ‘classical’ advanced training in GP quality circles. BMC Health Services Research, 7, 92 doi:10.1186/1472-6963-7-92.CrossRefGoogle Scholar
Wackerbarth, S. B. and Johnson, M. M. (2002a). The carrot and the stick: benefits and barriers in getting a diagnosis. Alzheimer Disease and Associated Disorders, 16, 213–220.CrossRefGoogle ScholarPubMed
Wackerbarth, S. B. and Johnson, M. M. (2002b). Essential information and support needs of family caregivers. Patient Education and Counseling, 47, 95–100.CrossRefGoogle ScholarPubMed
Waldemar, G. et al. (2007). Recommendations for the diagnosis and management of Alzheimer's disease and other disorders associated with dementia: EFNS guideline. European Journal of Neurology, 14, E1–E26.CrossRefGoogle ScholarPubMed
Weih, M., Reinhold, A., Richter-Schmidinger, T., Sulimma, A., Klein, H. and Kornhuber, J. (2008). Unsuitable readability levels of patient information petaining to dementia and related diseases: a comparative analysis. International Psychogeriatrics, 20, 1116–1123.CrossRefGoogle ScholarPubMed
Wells, K., Miranda, J., Bruce, M. L., Alegria, M. and Wallerstein, N. (2004). Bridging Community Intervention and Mental Health Services Research. American Journal of Psychiatry, 161, 955–963.CrossRefGoogle ScholarPubMed
Werner, P. (2003). Knowledge about symptoms of Alzheimer's disease: correlates and relationship to help-seeking behavior. International Journal of Geriatric Psychiatry, 18, 1029–1036.CrossRefGoogle ScholarPubMed
Williams, J. S., Byrne, J. and Pond, D. (2007). Dementia identification, assessment and management in community-based primary health care: a review of the international literature, 1995–2006 Summary Report. Available at: http://www.dementia.unsw.edu.au/DCRCweb.nsf/resources/Products2/$file/GP_Lit+Review+Summary.pdf; last accessed 9 October 2008.Google Scholar
Xiao, L. D., Paterson, J., Henderson, J. and Kelton, M. (2008). Gerontological education in undergraduate nursing programs: an Australian perspective. Educational Gerontology, 34, 763–781.CrossRefGoogle Scholar