Hostname: page-component-cc8bf7c57-n7qbj Total loading time: 0 Render date: 2024-12-12T00:54:12.310Z Has data issue: false hasContentIssue false

Predictors of advance directives among nursing home residents with dementia

Published online by Cambridge University Press:  29 August 2017

Hsiu-Li Huang*
Affiliation:
Department of Long-Term Care, College of Health Technology, National Taipei University of Nursing and Health Sciences, Taipei, Taiwan
Yea-Ing Lotus Shyu
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan Healthy Aging Research Center, Chang Gung University, Tao-Yuan, Taiwan Traumatological Division, Department of Orthopedics, Chang Gung Memorial Hospital, Tao-Yuan, Taiwan Department of Gerontological Care and Management, Chang Gung University of Science and Technology, Tao-Yuan, Taiwan
Li-Chueh Weng
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan Department of General Surgery, Chang Gung Memorial Hospital, Tao-Yuan, Taiwan
Kang-Hua Chen
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan Department of Cardiovascular surgery, Chang Gung Memorial Hospital, Tao-Yuan, Taiwan
Wen-Chuin Hsu
Affiliation:
Department of Neurology, Chang Gung Memorial Hospital, Tao-Yuan, Taiwan
*
Correspondence should be addressed to: Hsiu-Li Huang, No. 83-1, Nei-Chiang St., Wan-Hwa, Taipei 10845, Taiwan. Phone: +886(2) 28227101-6131. Email: [email protected].

Abstract

Background:

Advance directives are important for nursing home residents with dementia; for those with advanced dementia, surrogates determine medical decisions. However, in Taiwan, little is known about what influences the completion of these advance directives. The purpose of this study was to identify factors, which influence the presence of advance directives for nursing home residents with dementia in Taiwan.

Method:

Our cross-sectional study analyzed a convenience sample of 143 nursing home dyads comprised of residents with dementia and family surrogates. Documentation of residents’ advance directives, physical and cognitive status was obtained from medical charts. Surrogates completed the stress of end-of-life care decision scale and a questionnaire regarding their demographic characteristics. Nursing home characteristics were obtained from each chief administrator.

Results:

Less than half of the nursing home residents (39.2%) had advance directives and most (96.4%) had been completed by family surrogates. The following were predictors of an advance directive: surrogates had previously signed a do-not-resuscitate as a proxy and had been informed of advance directives by a healthcare provider; nursing homes had policies for advance directives and a religious affiliation.

Conclusions:

Advance directives were uncommon for nursing home residents with dementia. Presence of an advance directive was associated with surrogate characteristics and the nursing home facilities; there was no association with characteristics of the nursing home resident. Our findings emphasize the need to develop policies and strategies, which ensure that all residents of nursing homes and their surrogates are aware of their right to an advance directive.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2017 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Aaltonen, M., Raitanen, J., Forma, L., Pulkki, J., Rissanen, P. and Jylhä, M. (2014). Burdensome transitions at the end of life among long-term care residents with dementia. Journal of the American Medical Directors Association, 15, 643648. doi: 10.1016/j.jamda.2014.04.018Google Scholar
Chan, A., Choi, A., Chiu, H. and Lam, L. (2003). Clinical validity of the Chinese version of Mattis dementia rating scale in differentiating dementia of Alzheimer's type in Hong Kong. Journal of the International Neuropsychological Society, 9, 4555.CrossRefGoogle ScholarPubMed
Chen, T. F. et al. (2007). Institution type-dependent high prevalence of dementia in long-term care units. Neuroepidemiology, 28, 142149. doi:10.1159/000102142Google Scholar
de Boer, M. E., Hertogh, C. M., Dröes, R. M., Jonker, C. and Eefsting, J. A. (2010). Advance directives in dementia: issues of validity and effectiveness. International Psychogeriatrics, 22, 201208. doi: 10.1017/S1041610209990706.CrossRefGoogle ScholarPubMed
De Gendt, C. et al. (2013). Advance care planning and dying in nursing homes in Flanders, Belgium: a nationwide survey. Journal of Pain & Symptom Management, 45, 223234. doi: 10.1016/j.jpainsymman.2012.02.011.Google Scholar
del Pozo Puente, K., Hidalgo, J. L., Herraez, M. J., Bravo, B. N., Rodriguez, J. O. and Guillen, V. G. (2014). Study of the factors influencing the preparation of advance directives. Archives of Gerontology and Geriatrics, 58, 2024. doi: 10.1016/j.archger.2013.07.009.Google Scholar
De Vleminck, A. et al. (2014). Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences. PLoS One, 9. doi: 10.1371/journal.pone.0084905CrossRefGoogle Scholar
Faul, F., Erdfelder, E., Lang, A. G. and Buchner, A. (2007). G*Power 3: a flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175191.CrossRefGoogle ScholarPubMed
Gastmans, C. et al. (2006). Prevalence and content of written ethics policies on euthanasia in Catholic healthcare institutions in Belgium (Flanders). Health Policy, 76, 169178. doi:10.1016/j.healthpol.2005.09.003.Google Scholar
Gaugler, J. E. et al. (2007). Predicting nursing home admission in the U.S: a meta-analysis. BMC Geriatrics, 7, 114. doi: 10.1186/1471-2318-7-13Google Scholar
Hirschman, K. B. et al. (2012). What factors are associated with having an advance directive among older adults who are new to long term care services?. Journal of the American Medical Directors Association, 13, e7e1. doi: https://doi.org/10.1016/j.jamda.2010.12.010.Google Scholar
Huang, C. H. et al. (2008). The practicalities of terminally ill patients signing their own DNR orders–a study in Taiwan. Journal of Medical Ethics and History of Medicine, 34, 336340. doi:10.1136/jme.2007.020735Google Scholar
Lingler, J. H. et al. (2008). Frequency and correlates of advance planning among cognitively impaired older adults. American Journal of Geriatric Psychiatry, 16, 643649. doi: 10.1097/JGP.0b013e31816b7324.Google Scholar
Lo, Y. et al. (2010). Prevalence and related factors do-not-resuscitate directives among nursing home residents in Taiwan. Journal of the American Medical Directors Association, 11, 436442. doi: 10.1016/j.jamda.2009.10.006.Google Scholar
Mann, E. et al. (2013). Do-not-hospitalize orders for individuals with advanced dementia: healthcare proxies' perspectives. Journal of the American Geriatrics Society, 61, 15681573. doi: 10.1111/jgs.12406Google Scholar
McAuley, W. J. and Travis, S. S. (2003). Advance care planning among residents in long-term care. American Journal of Hospice & Palliative Care, 20, 353359.Google Scholar
McMahan, R. D. et al. (2013). Advance care planning beyond advance directives: perspectives from patients and surrogates. Journal of Pain and Symptom Management 46, 355365. doi: 10.1016/j.jpainsymman.2012.09.006.CrossRefGoogle ScholarPubMed
Mignani, V., Ingravallo, F., Mariani, E. and Chattat, R. (2017). Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis. Clinical Interventions in Aging, 12, 475484. doi:10.2147/CIA.S128937Google Scholar
Ministry of Health and Welfare R.O.C. (2013). The name list of general nursing home accreditation (2010–2013). Available at: http://www.mohw.gov.tw/MOHW_Upload/doc/100-1020042702002.pdf; last accessed 4 October 2014.Google Scholar
Ministry of Health and Welfare. (2016). Taiwan, ROC. Hospice-Palliative Care Act. Available at: http://www.nhi.gov.tw/webdata/webdata.aspx?menu=20&menu_id=712&webdata_id=3651.Google Scholar
Ministry of the Interior R.O.C. (2012). The results of senior welfare institution accreditations 2010. Available at: http://webarchive.ncl.edu.tw/archive/disk19/26/23/80/56/92/201001083095/20120515/web/sowf.moi/04/19/19.htm; last accessed 4 October 2014.Google Scholar
Mitchell, S. L. et al. (2007). Decisions to forgo hospitalization in advanced dementia: a nationwide study. Journal of the American Geriatrics Society, 55, 432438. doi: 10.1111/j.1532-5415.2007.01086.xCrossRefGoogle ScholarPubMed
Pasman, H. R. et al. (2009). Policy statements and practice guidelines for medical end-of-life decisions in Dutch health care institutions: developments in the past decade. Health Policy, 92, 7988. doi: 10.1016/j.healthpol.2009.02.008Google Scholar
Prince, M. et al. (2013). The global prevalence of dementia: a systematic review and metaanalysis. Alzheimer's & Dementia, 9, 6375. doi: 10.1016/j.jalz.2012.11.007.Google Scholar
Reisberg, B. et al. (1982). The global deterioration scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 139, 11361139. doi: 10.1176/ajp.139.9.1136Google Scholar
Robinson, L. et al. (2012). A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age & Ageing, 41, 263269. doi:10.1093/ageing/afr148Google Scholar
Shyu, Y. I. and Yip, P. K. (2001). Factor structure and explanatory variables of the Mini-Mental State Examination (MMSE) for elderly persons in Taiwan. Journal of the Formosan Medical Association, 100, 676683.Google Scholar
Steinberg, S. M. (2011). Cultural and religious aspects of palliative care. International Journal of Critical Illness and Injury Science, 1, 154156. doi: 10.4103/2229-5151.84804Google Scholar
Sung, H., Chang, S., Lee, W. and Lee, M. (2006). The effects of group music with movement intervention on agitated behaviours of institutionalized elders with dementia in Taiwan. Complementary Therapies in Medicine, 14, 113119. doi: 10.1016/j.ctim.2006.03.002Google Scholar
Takezako, Y. et al. (2013). Advance directives in Japanese nursing homes. Journal of Pain & Symptom Management, 45, 6370.e67. doi: http://dx.doi.org/10.1016/j.jpainsymman.2011.12.287Google Scholar
Triplett, P. et al. (2008). Content of advance directives for individuals with advanced dementia. Journal of Aging & Health, 20, 583596. doi: 10.1177/0898264308317822.Google Scholar
van der Steen, J. T. et al. (2014). Factors associated with initiation of advance care planning in dementia: a systematic review. Journal of Alzheimers Disease, 40, 743757. doi: 10.3233/JAD-131967.CrossRefGoogle ScholarPubMed
van Soest-Poortvliet, M. C. et al. (2015). Advance care planning in nursing home patients with dementia: a qualitative interview study among family and professional caregivers. Journal of the American Medical Directors Association, 16, 979989. doi: 10.1016/j.jamda.2015.06.015CrossRefGoogle ScholarPubMed
Vandervoort, A. et al. (2014). Quality of dying in nursing home residents dying with dementia: does advanced care planning matter? A nationwide postmortem study. PLoS ONE, 9, e91130. doi: 10.1371/journal.pone.0091130Google Scholar
Weiner, M. F. et al. (2000). The quality of life in late-stage dementia (QUALID) scale. Journal of American Medical Directors Association, 1, 114116.Google Scholar
Wen, K. Y. et al. (2013). Insights into Chinese perspectives on do-not-resuscitate (DNR) orders from an examination of DNR order form completeness for cancer patients. Supportive Care in Cancer, 21, 25932598. doi: 10.1007/s00520-013-1827-2Google Scholar
Wu, Y. T. et al. (2013). Prevalence studies of dementia in Mainland China, Hong Kong and Taiwan: a systematic review and meta-analysis. PLoS One, 8, e66252. doi:10.1371/journal.pone.0066252Google Scholar
Yang, C. L. et al. (2011). Which factors have the greatest influence on bereaved families' willingness to execute advance directives in Taiwan? Cancer Nursing, 34, 98106. doi: 10.1097/NCC.0b013e3181f22cacGoogle Scholar