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Is there an “optimal time” to move to a care home for a person with dementia? A systematic review of the literature

Published online by Cambridge University Press:  18 April 2018

Laura Cole ,
Kritika Samsi  and
Jill Manthorpe
Laura Cole
Affiliation:
Social Care Workforce Research Unit, King's College London, London, UK
Kritika Samsi*
Affiliation:
Social Care Workforce Research Unit, King's College London, London, UK
Jill Manthorpe
Affiliation:
Social Care Workforce Research Unit, King's College London, London, UK
*
Correspondence should be addressed to: Dr Kritika Samsi, Social Care Workforce Research Unit, King's College London, Strand, WC2R 2LS, UK. Phone: +44-20-7848-1665. Email: [email protected].
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Abstract

Background:

There is limited evidence regarding how the decision evolves about whether and when it is best for a person with dementia to move to a care home. The factors leading to the timing of the decision remain particularly unclear. This systematic review of existing literature aims to gain an understanding of the decision-making timing and process to distinguish the drivers of these decisions, and to identify if there is an “optimal” or best time (if any) for a person with dementia to move to a care home.

Methods:

Six English language electronic databases were searched up to the end of 2016, along with included papers’ reference lists. Papers were screened against the inclusion criteria and rated for quality. Extracted data were thematically analyzed.

Results:

The review identified 16 relevant papers. Seven themes were identified: (1) what happened before the move; (2) planning for the move, (3) weighing up the decision, (4) lack of support, (5) drivers of the decision, (6) emotional significance of the move, and (7) continued reflection on the decision. “Time” of the move was largely absent from much of the literature, although inferences were made. Overall, the decision-making process appeared to be cyclic, with family carers constantly re-evaluating when might be the time to make the move with some continuing to reflect on this even subsequently.

Conclusions:

Further research is required to understand the “optimal” or best time (if any) for when a person with dementia moves to a care home, and how to determine when someone is ready to move.

Keywords

carerscare homecare-transitiondecision-makingdementiareview
Type
Review Article
Information
International Psychogeriatrics , Volume 30 , Special Issue 11: Social Aspects of Dementia and Dementia Practice , November 2018 , pp. 1649 - 1670
Copyright
Copyright © International Psychogeriatric Association 2018 

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References

Alzheimer's Society (2013a). Outcomes of the James Lind Alliance Dementia Priority Setting Partnership. London: Alzheimer's Society.Google Scholar
Alzheimer's Society (2013b). Low Expectations: Attitudes on Choice, Care and Community for People with Dementia in Care Homes. London: Alzheimer's Society.Google Scholar
Aminzadeh, F., Dalziel, W. B., Molnar, F. J. and Garcia, L. J. (2009). Symbolic meaning of relocation to a residential care facility for persons with dementia. Aging and Mental Health, 13, 487–496. doi: 10.1080/13607860802607314.Google Scholar
Armstrong, M. (1999). Factors affecting the decision to place a relative with dementia into residential care. Nursing Standard, 14, 33–37.Google Scholar
Ashton, S., Roe, B. and Jack, B. (2016). Choosing a care home: families need more support. Journal of Dementia Care, 24, 22–24.Google Scholar
Butcher, H. K., Holkup, P. A., Park, M. and Maas, M. (2001). Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit. Research in Nursing and Health, 24, 470–480.Google Scholar
Cahill, S. M. (1997). ‘I often think I wish he were here’. Why do primary carers institutionalise family members with dementia? Australian Social Work, 50, 13–19.Google Scholar
Caldwell, L., Low, L. F. and Brodaty, H. (2014). Caregivers' experience of the decision-making process for placing a person with dementia into a nursing home: comparing caregivers from Chinese ethnic minority with those from English-speaking backgrounds. International Psychogeriatrics, 26, 413–424. doi: 10.1017/S1041610213002020.Google Scholar
Caron, C. D., Ducharme, F. and Griffith, J. (2006). Deciding on institutionalization for a relative with dementia: the most difficult decision for caregivers. Canadian Journal on Aging, 25, 193–205.Google Scholar
Chang, Y. P. and Schneider, J. K. (2010). Decision-making process of nursing home placement among Chinese family caregivers. Perspectives in Psychiatric Care, 46, 108–118 111p. doi: 10.1111/j.1744-6163.2010.00246.x.Google Scholar
Chang, Y. P., Schneider, J. K. and Sessanna, L. (2011). Decisional conflict among Chinese family caregivers regarding nursing home placement of older adults with dementia. Journal of Aging Studies, 25, 436–444. doi:10.1016/j.jaging.2011.05.001.Google Scholar
Chene, B. (2006). Dementia and residential placement: a view from the carers’ perspective. Qualitative Social Work, 5, 187–215. doi: 10.1177/1473325006064257.Google Scholar
Crawford, K., Digby, R., Bloomer, M., Tan, H. and Williams, A. (2015). Transitioning from caregiver to visitor in a long-term care facility: the experience of caregivers of people with dementia. Aging and Mental Health, 19, 739–746. doi: 10.1080/13607863.2014.962008.Google Scholar
Duncan, M. T. (1992). Alzheimer's Disease Caregivers: The Transition From Home Care to Formal Care. Dissertations and Theses. Paper 3228. Portland State University Dissertations and theses. Available at: http://pdxscholar.library.pdx.edu/cgi/viewcontent.cgi?article=4238&context=open_access_etds.Google Scholar
Elliott, B. A., Gessert, C. E. and Peden-McAlpine, C. (2007). Decision-making on behalf of elders with advanced cognitive impairment: Family transitions. Alzheimer's Disease and Associated Disorders, 21, 49–54.Google Scholar
Elliott, B. A., Gessert, C. E. and Peden-McAlpine, C. (2009). Family decision-making in advanced dementia: narrative and ethics. Scandinavian Journal of Caring Sciences, 23, 251–258. doi: 10.1111/j.1471-6712.2008.00613.x.Google Scholar
Hagen, B. (2001). Nursing home placement. Factors affecting caregivers’ decisions to place family members with dementia. Journal of Gerontological Nursing, 27, 44–53.Google Scholar
Joanna Briggs Institute (2011). Joanna Briggs Institute Reviewers’ Manual: 2011 Edition. Adelaide: The Joanna Briggs Institute.Google Scholar
Kmet, L. M., Lee, R. C. and Cook, L. S. (2004). Standard Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields. Alberta: Alberta Heritage Foundation for Medical Research.Google Scholar
Lord, K., Livingston, G., Robertson, S. and Cooper, C. (2016). How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study. BMC Geriatrics, 16, 68. doi: 10.1186/s12877-016-0242-1.Google Scholar
Mamier, I. and Winslow, B. W. (2014). Divergent views of placement decision-making: a qualitative case study. Issues in Mental Health Nursing, 35, 13–20. doi: 10.3109/01612840.2013.834014.Google Scholar
Mistric, M. L. (2008). “Coming to Terms”: A Grounded Theory of Dementia Caregivers' Journeys and Expectations of Care. PhD, The University of Texas Medical Branch Graduate School of Biomedical Sciences. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=cin20&AN=109851495&site=ehost-live.Google Scholar
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G. and Group, The PRISMA (2009). Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement. PLoS Med, 6, e1000097.Google Scholar
Orellana, K., Manthorpe, J. and Moriarty, J. (2017). What do we know about care home managers? Findings of a scoping review. Health & Social Care in the Community, 25, 366–377. doi:10.1111/hsc.12313.Google Scholar
Park, M., Butcher, H. K. and Maas, M. L. (2004). A thematic analysis of Korean family caregivers' experiences in making the decision to place a family member with dementia in a long-term care facility. Research in Nursing and Health, 27, 345–356. doi: 10.1002/nur.20031.Google Scholar
Pierre-Louis, M. (2012). Decision-Making Process of African Americans Caring for Parents with Alzheimer's. Dissertations and theses. John F. Kennedy University, California.Google Scholar
Sandberg, J., Lundh, U. and Nolan, M. R. (2001). Placing a spouse in a care home: the importance of keeping. Journal of Clinical Nursing, 10, 406–416.Google Scholar
Sanford, A. M. et al. (2015). An international definition for “nursing home”. JAMDA: Journal of the American Medical Directors Association, 16, 181–184. doi: 10.1016/j.jamda.2014.12.013.Google Scholar
Strang, V. R., Koop, P. M., Dupuis-Blanchard, S., Nordstrom, M. and Thompson, B. (2006). Family caregivers and transition to long-term care. Clinical Nursing Research, 15, 27–45. doi: 10.1177/1054773805282356.Google Scholar
The Commission on Residential Care (2014). A Vision for Care Fit for the Twenty-First Century. London: DEMOS.Google Scholar
Thein, N. W., D'Souza, G. and Sheehan, B. (2011). Expectations and experience of moving to a care home: perceptions of older people with dementia. Dementia, 10, 7–18. doi: 10.1177/1471301210392971.Google Scholar
Tilse, C. (1998). Continuing or refusing to care: the meaning of placing a spouse in long term care. American Journal of Alzheimer's Disease, Jan/Feb, 29–33.Google Scholar