Hostname: page-component-78c5997874-v9fdk Total loading time: 0 Render date: 2024-11-14T23:21:46.364Z Has data issue: false hasContentIssue false
  • English
  • Français

The EAST-Dem study: a pilot cluster randomized controlled trial

Published online by Cambridge University Press:  07 November 2017

Naaheed Mukadam Open the ORCID record for Naaheed Mukadam [Opens in a new window] ,
Claudia Cooper  and
Gill Livingston
Naaheed Mukadam*
Affiliation:
Division of Psychiatry, UCL, London, UK
Claudia Cooper
Affiliation:
Division of Psychiatry, UCL, London, UK
Gill Livingston
Affiliation:
Division of Psychiatry, UCL, London, UK
*
Correspondence should be addressed to: Naaheed Mukadam, Division of Psychiatry, UCL, 6th Floor, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK. Phone: 02076799251; Fax: 02076799426. Email: [email protected].
Get access Rights & Permissions [Opens in a new window]

Abstract

We recruited eight general practice (GP) practices for a pilot cluster randomized controlled trial (RCT) of a digital versatile disc/leaflet encouraging South Asian people to seek timely help for memory problems. Primary outcomes were feasibility (proportion of patients expressing interest, consenting) and acceptability. Seventy-eight of one hundred and two (76%) potential participants consented; 76/78 (97%) were followed-up. Thirty-seven of forty-one (90%) receiving the intervention rated this acceptable. Only 17/41 (41%) accessed it; they appeared then to be more likely to seek timely help. The intervention was acceptable and feasible but a full-scale RCT would be very expensive. It may be proportionate to make this intervention available without a full-scale RCT.

Keywords

cross-culturaldementiadiagnosis and classificationeducation
Type
Brief Report
Information
International Psychogeriatrics , Volume 30 , Issue 5: Issue Theme: Brain Imaging , May 2018 , pp. 769 - 773
Copyright
Copyright © International Psychogeriatric Association 2017 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

This trial is listed on the ISRCTN registry with study ID ISRCTN67269658.

References

Ajzen, I. (1991). The theory of planned behavior. Organizational Behavior and Human Decision processes, 50, 179–211.Google Scholar
Hailstone, J., Mukadam, N., Owen, T., Cooper, C. and Livingston, G. (2016). The development of attitudes of people from ethnic minorities to help-seeking for dementia (APEND): a questionnaire to measure attitudes to help-seeking for dementia in people from South Asian backgrounds in the UK. International Journal of Geriatric Psychiatry, 32, 288–296.Google Scholar
Hewitson, P., Ward, A. M., Heneghan, C., Halloran, S. P. and Mant, D. (2011). Primary care endorsement letter and a patient leaflet to improve participation in colorectal cancer screening: results of a factorial randomised trial. British Journal of Cancer, 105, 475.Google Scholar
Jacqmin-Gadda, H., Sibillot, S., Proust, C., Moline, J.-M. and Thiebaut, R. (2007). Robustness of the linear mixed model to misspecified error distribution. Computational Statistics and Data Analysis, 51, 5142–5154.Google Scholar
Laird, N. M. and Ware, J. H. (1982). Random-effects models for longitudinal data. Biometrics, 38, 963–974.CrossRefGoogle ScholarPubMed
Mukadam, N., Cooper, C. and Livingston, G. (2011b). A systematic review of ethnicity and pathways to care in dementia. [Review]. International Journal of Geriatric Psychiatry, 26, 12–20.Google Scholar
Mukadam, N., Cooper, C., Basit, B. and Livingston, G. (2011a). Why do ethnic elders present later to UK dementia services? A qualitative study. International Psychogeriatrics, 23, 1070–1077.CrossRefGoogle Scholar
Mukadam, N., Waugh, A., Cooper, C. and Livingston, G. (2015). What would encourage help-seeking for memory problems among UK-based South Asians? A qualitative study. British Medical Journal Open, 5, e007990. doi: 10.1136/bmjopen-2015-007990.Google Scholar
Office for National Statistics (2007). Population Estimates by Ethnic Group. London: Palgrave Macmillan.Google Scholar
Prince, M., Wimo, A., Guerchet, M., Ali, G. C., Wu, Y. T. and Prina, M. (2015). World Alzheimer report 2015. The global impact of dementia. An analysis of prevalence, incidence, cost & trends. London: Alzheimer's Disease International.Google Scholar
Tuerk, R. and Sauer, J. (2015). Dementia in a Black and minority ethnic population: characteristics of presentation to an inner London memory service. British Journal of Psychiatry Bulletin, 39, 162–166.Google Scholar