Hostname: page-component-cd9895bd7-7cvxr Total loading time: 0 Render date: 2024-12-25T04:32:19.442Z Has data issue: false hasContentIssue false

Dutch psychogeriatric day-care centers: a qualitative study of the needs and wishes of carers

Published online by Cambridge University Press:  27 February 2009

Jeltsje D. de Jong
Affiliation:
Nursing Home Vierackers, Mental Health Center Drenthe, Assen, The Netherlands
F. Boersma*
Affiliation:
Section Nursing Home Medicine, Department of General Medicine and Geriatrics, University Medical Center Groningen, Groningen, The Netherlands
*
Correspondence should be addressed to: Dr. Froukje Boersma, Section Nursing Home Medicine, Department of General Medicine and Geriatrics, University Medical Center Groningen, P.O. Box 30001, 9700 RB Groningen, The Netherlands. Phone: +31 (0)50 3610163; Fax: +31 (0)50 3619069. Email: [email protected].
Get access

Abstract

Background: In the past day-care facilities for people with dementia were developed with little input from the users. As these facilities play an increasingly important role in the lives of the growing number of community-living persons with dementia and their caregivers, it now seems obvious to incorporate users' perspectives when establishing or optimizing day care. This study addresses the needs and wishes of informal caregivers when providing skilled psychogeriatric day-care in the Netherlands.

Method: This is a qualitative, exploratory study, based on interviews with family caregivers and professional focus groups as the primary data source.

Results: Using data from the interviews, the needs and wishes of carers were classed into three general domains: (1) approach to care – relating to shared and tailored care and confidence in professionals as well as the facility as important themes; (2) professional expertise – relating to the carers' need for education and information regarding dementia, available resources, as well as cooperation between professionals; and (3) the day program – concerning the content and structure of the day care.

Conclusions: The interviews with the caregivers suggest that the relationship with day-care personnel is an important aspect of psychogeriatric day-care. Caregivers have high expectations regarding the expertise of professionals, but seem to be unaware of available resources and services. Professionals should play a more active role in providing education, advice and support. Above all, the attendees must have a positive experience of the day-care facilities and its activities.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2009

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Beeckaert, B. (2004). [Needs, Wishes and Problems in Home-dwelling Persons with Huntington's Disease]. Brussels: Vrije Universiteit Brussels.Google Scholar
Boyatzis, R. E. (1998). Transforming Qualitative Information: Thematic Analysis and Code Development. London: Sage.Google Scholar
Brodaty, H., Thomson, C., Thompson, C. and Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537546.CrossRefGoogle ScholarPubMed
Carroll, A. M., Vetor, K. and Holmes, S. (2005). Ask the consumer: an innovative approach to dementia-related adult day service evaluation. American Journal of Alzheimer's Disease and Other Dementias, 20, 290294.CrossRefGoogle ScholarPubMed
Chenoweth, L. and Kilstoff, K. (1998). Facilitating positive changes in community dementia management through participatory action research. International Journal of Nursing Practice, 4, 175188.CrossRefGoogle ScholarPubMed
de Vugt, M. E. et al. (2004). Do caregiver management strategies influence patient behaviour in dementia? International Journal of Geriatric Psychiatry, 19, 8592.CrossRefGoogle ScholarPubMed
Diesfeldt, H. (1992). Psychogeriatric day-care outcome: a 5-year follow-up. International Journal of Geriatric Psychiatry, 7, 673679.CrossRefGoogle Scholar
Dröes, R. M., Meiland, F., Schmitz, M. and Tilburg, W. van. (2004). Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. International Journal of Geriatric Psychiatry, 19, 673684.CrossRefGoogle ScholarPubMed
Ferri, C. P. et al. (2005). Global prevalence of dementia: a Delphi consensus study. Lancet, 366, 21122117.CrossRefGoogle ScholarPubMed
Health Council of the Netherlands (2002). Dementia. Publication no. 2002/04 Den Haag: Health Council of the Netherlands [in Dutch].Google Scholar
Heyn, P., Abreu, P. C. and Ottenbacher, K. J. (2004). The effects of exercise training on elderly persons with cognitive impairment and dementia: a meta-analysis. Archives of Physical Medicine and Rehabilitation, 85, 16941704.CrossRefGoogle ScholarPubMed
Hoe, J., Ashaye, K. and Orrell, M. (2005). Don't seize the day hospital! Recent research on the effectiveness of day hospitals for older people with mental health problems. International Journal of Geriatric Psychiatry, 20, 694698.CrossRefGoogle ScholarPubMed
Huijvenaar, M. L., Borghouts, C. G., Lakerveld, A., Hogeling, J. J. and ten Horn, G. H. (2001). [Day-care and day-treatment in psychogeriatrics: changes in the characteristics of users in the course of a year]. Tijdschrift voor Gerontologie en Geriatrie, 32, 265270.Google ScholarPubMed
Jeon, Y.-H., Brodaty, H. and Chesterson, J. (2005). Respite care for caregivers and people with severe mental illness: literature review. Journal of Advanced Nursing, 49, 297306.CrossRefGoogle ScholarPubMed
Lee, H. and Cameron, M. (2008). Respite care for people with dementia and their carers. Cochrane Database of Systematic Reviews, 1. Art. no.: CD004396. doi: 10.1002/14651858.CD004396.pub2.CrossRefGoogle Scholar
Leitsch, S. A., Zarit, S. H., Townsend, A. and Greene, R. (2001). Medical and social adult day service programs. A comparison of characteristics, dementia clients, and their family caregivers. Research on Aging, 23, 473498.CrossRefGoogle Scholar
Ministry of Health, Welfare and Sport. (2005). Brancherapport Care: Verpleging en Verzorging; Feiten en Cijfers. The Hague: Social and Cultural Planning Office.Google Scholar
Moise, P., Schwarzinger, M. and Um, M-Y. (2004). Dementia Care in 9 OECD Countries: A Comparative Analysis. OECD Health Working Papers No. 13. http://www.oecd.org/dataoecd/10/52/33661491.pdf. Last accessed June 2008.Google Scholar
NICE-SCIE. (2007). Dementia. A NICE-SCIE Guideline on Supporting People with Dementia and Their Carers in Health and Social Ccare. London: British Psychological Society and the Royal College of Psychiatrists. http://www.nice.org.uk/nicemedia/pdf/CG42Dementiafinal.pdf. Last accessed June 2008.Google Scholar
Peters, V. (2005). Kwalitan 5.0. Nijmegen, The Netherlands. Also available at www.kwalitan.net.Google Scholar
Reilly, S., Venables, D., Hughes, J., Challis, D. and Abendstern, M. (2006). Standards of care in day hospitals and day centres: a comparison of services for older people with dementia. International Journal of Geriatric Psychiatry, 21, 460468.CrossRefGoogle ScholarPubMed
Reisberg, B., Ferris, S. H., de Leon, M. J. and Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia.American Journal of Psychiatry. 139, 11361139.Google ScholarPubMed
Ribbe, M. W. (1993). Care for the elderly: the role of the nursing home in the Dutch health care system. International Psychogeriatrics, 5, 213222.CrossRefGoogle ScholarPubMed
Schols, J. M., Frijters, D. H., Koopmans, R. T., Diederiks, J. P., Sturmans, F. and Crebolder, H. F. (1998). [Nursing home day-care: a growing function for a rather stable patient group]. Tijdschrift voor Gerontologie en Geriatrie, 29, 244249.Google Scholar
Shanley, C. (2006). Developing more flexible approaches to respite for people living with dementia and their carers. American Journal of Alzheimer's Disease and Other Dementias, 21, 234241.CrossRefGoogle ScholarPubMed
Tester, S. (1999). Useful services for families: research findings and directions – Commentary. International Journal of Geriatric Psychiatry, 14, 178180.3.0.CO;2-B>CrossRefGoogle Scholar
Whitlatch, C. J., Feinberg, L. F. and Tucke, S. S. (2005). Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. Gerontologist, 45, 370380.CrossRefGoogle ScholarPubMed
Wimo, A., Jonsson, L. and Winblad, B. (2006). An estimate of the worldwide prevalence and direct costs of dementia in 2003. Dementia and Geriatric Cognitive Disorders, 21, 175181.CrossRefGoogle ScholarPubMed