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Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature

Published online by Cambridge University Press:  08 August 2017

Claire Morrisby ,
Annette Joosten  and
Marina Ciccarelli
Claire Morrisby*
Affiliation:
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Annette Joosten
Affiliation:
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia School of Allied Health, Australian Catholic University, Melbourne, Victoria, Australia
Marina Ciccarelli
Affiliation:
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
*
Correspondence should be addressed to: Claire Morrisby, Lecturer, School of Occupational Therapy and Social Work, Curtin University, Kent St, Bentley, WA 6102, Australia. Phone: +61 892663611. Email: [email protected].
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Abstract

Background:

Providing effective support to the increasing number of people with dementia to remain at home is a challenge for families, health professionals, service providers, and governments worldwide. The aim of this paper was to summarize and disseminate the current international research evidence on the met and unmet needs of people with dementia and their carers, to inform researchers and policy-makers.

Method:

A scoping review methodology was used to guide a search of studies published between 2004 and 2015 using specified search terms; 27 studies relevant to the aim were included. A constant comparison approach was used to thematically analyze the data.

Results:

Holistic needs encompassing basic human survival, medical, financial, and social needs were experienced by people with dementia and carers, regardless of country or methodology used to collect data. A gap was identified frequently between what was needed and the supports that were received; this gap encompassed quantity, quality, and flexibility of services underpinned by service delivery models.

Conclusion:

The needs of people with dementia and their carers were diverse and not always effectively met by the services designed to support them. Recommendations are offered to service providers, policy-makers, and researchers to support more effective service provision tailored to meet the needs of people with dementia and their carers while they are living in the community.

Keywords

dementiacommunitycarersaged careservices
Type
Review Article
Information
International Psychogeriatrics , Volume 30 , Issue 1 , January 2018 , pp. 5 - 14
Copyright
Copyright © International Psychogeriatric Association 2017 

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