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How does HTA addresses current social expectations? An international survey

Published online by Cambridge University Press:  28 October 2020

Hubert Gagnon
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5
Georges-Auguste Legault
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Faculté de Droit, Université de Sherbrooke, 2500 Boul. de l'Université, Sherbrooke, QC, Canada, J1K 2R1
Christian A. Bellemare
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Centre Intégré Universitaire de Santé et Services Sociaux (CIUSSS) de l'Estrie – Centre Hospitalier de l'Université de Sherbrooke (CHUS), 580 rue Bowen sud, Sherbrooke, QC, Canada
Monelle Parent
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5
Pierre Dagenais
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Centre Intégré Universitaire de Santé et Services Sociaux (CIUSSS) de l'Estrie – Centre Hospitalier de l'Université de Sherbrooke (CHUS), Centre de Recherche Clinique du CHUS, 3001, 12e Avenue nord Sherbrooke, QC, Canada, J1H 5N4 Faculté de Médecine et des Sciences de la Santé de l'Université de Sherbrooke, Sherbrooke, QC, Canada, J1K 2R1
Suzanne K.-Bédard
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Centre Intégré Universitaire de Santé et Services Sociaux (CIUSSS) de l'Estrie – Centre Hospitalier de l'Université de Sherbrooke (CHUS), 580 rue Bowen sud, Sherbrooke, QC, Canada
Danielle Tapin
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5
Louise Bernier
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Faculté de Droit, Université de Sherbrooke, 2500 Boul. de l'Université, Sherbrooke, QC, Canada, J1K 2R1
Jean-Pierre Béland
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Unité d'Enseignement en Éthique, Département des Sciences Humaines, Université du Québec à Chicoutimi (UQAC), Chicoutimi, QC, Canada, G7X 2B1
Charles-Étienne Daniel
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Faculté de Droit, Université de Sherbrooke, 2500 Boul. de l'Université, Sherbrooke, QC, Canada, J1K 2R1
Johane Patenaude*
Affiliation:
Institut Interdisciplinaire d'Innovation Technologique (3IT) de l'Université de Sherbrooke, Parc Innovation P2, 3000 boulevard de l'Université Sherbrooke, Sherbrooke, QC, Canada, J1K 0A5 Faculté de Médecine et des Sciences de la Santé de l'Université de Sherbrooke, Sherbrooke, QC, Canada, J1K 2R1
*
Author for correspondence: Johane Patenaude, E-mail: [email protected]

Abstract

Objectives

Integration of ethics into technology assessment in healthcare (HTA) reports is directly linked to the need of decision makers to provide rational grounds justifying their social choices. In a decision-making paradigm, facts and values are intertwined and the social role of HTA reports is to provide relevant information to decision makers. Since 2003, numerous surveys and discussions have addressed different aspects of the integration of ethics into HTA. This study aims to clarify how HTA professionals consider the integration of ethics into HTA, so an international survey was conducted in 2018 and the results are reported here.

Methods

A survey comprising twenty-two questions was designed and carried out from April 2018 to July 2018. Three hundred and twenty-eight HTA agencies from seventy-five countries were invited to participate in this survey.

Results

Eighty-nine participants completed the survey, representing a participation rate of twenty-seven percent. As to how HTA reports should fulfill their social role, over 84 percent of respondents agreed upon the necessity to address this role for decision makers, patients, and citizens. At a lower level, the same was found regarding the necessity to make value-judgments explicit in different report sections, including ethical analysis. This contrasts with the response-variability obtained on the status of ethical analysis with the exception of the expertise required. Variability in stakeholder-participation usefulness was also observed.

Conclusions

This study reveals the importance of a three-phase approach, including assessment, contextual data, and recommendations, and highlights the necessity to make explicit value-judgments and have a systematic ethical analysis in order to fulfill HTA's social role in guiding decision makers.

Type
Method
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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