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Using EQ-5D in children with asthma, rheumatic disorders, diabetes, and speech/language and/or hearing disorders

Published online by Cambridge University Press:  21 July 2009

Daniëlle C. M. Willems ,
Manuela A. Joore ,
Fred H. M. Nieman ,
Johan L. Severens ,
Emiel F. M. Wouters  and
Johannes J. E. Hendriks
Daniëlle C. M. Willems
Affiliation:
Maastricht University Medical Centre
Manuela A. Joore
Affiliation:
Maastricht University Medical Centre
Fred H. M. Nieman
Affiliation:
Maastricht University Medical Centre
Johan L. Severens
Affiliation:
Maastricht University Medical Centre
Emiel F. M. Wouters
Affiliation:
Maastricht University Medical Centre
Johannes J. E. Hendriks
Affiliation:
Maastricht University Medical Centre
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Abstract

Objectives: This study explores several variables of the EQ-5D child version, a multi-attribute utility instrument, in children with chronic conditions.

Methods: A convenience sample was selected from hospital outpatient records and school records. The sample included children aged 7–18 years with the following chronic conditions: asthma, rheumatic disorders, diabetes, and speech/language and/or hearing disorders. The practicality, convergent validity, and discriminant power were compared with a generic quality of life questionnaire for children (TACQOL) and the 2-week test–retest reliability was assessed.

Results: A total of 182 children or their parents completed the first questionnaire and 161 children/parents completed both questionnaires. The practicality of the EQ-5D was good. Low to moderate correlations were found between the utilities and VAS scores and the TACQOL scales. The discriminant power of the EQ-5D items was low overall and was greater for children with a rheumatic disorder than for children with the other conditions. In the subset of children who experienced no health change between the test and the retest, the reliability of the EQ-5D was moderate to high.

Conclusions: The EQ-5D seems suitable for children, although the use of an additional disease-specific questionnaire is still recommended. The EQ-5D seems the most suitable for children with a chronic physical condition and appears to be reliable for children with a stable health status.

Keywords

EQ-5DChildChronic diseaseQuality of lifeReliability and validity
Type
Research Reports
Information
International Journal of Technology Assessment in Health Care , Volume 25 , Issue 3 , July 2009 , pp. 391 - 399
Copyright
Copyright © Cambridge University Press 2009

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