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Treatment Outcomes and Quality of Life

Published online by Cambridge University Press:  10 March 2009

Stephen R. Ebbs ,
Lesley J. Fallowfield ,
Simon C. A. Fraser  and
Michael Baum
Stephen R. Ebbs
Affiliation:
King' College School of Medicine and Dentistry, Rayne Institute
Lesley J. Fallowfield
Affiliation:
King' College School of Medicine and Dentistry, Rayne Institute
Simon C. A. Fraser
Affiliation:
King' College School of Medicine and Dentistry, Rayne Institute
Michael Baum
Affiliation:
King' College School of Medicine and Dentistry, Rayne Institute
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Extract

Physicians through the ages have practiced their trade with more or less regard to the effects of their treatment on their patients' sense of well-being, if not as much as on the disease itself.

Until recently, however, little attempt has been made to measure the effect of disease upon quality of life and how this quality is or is not improved by the treatment. Several means have now evolved and in areas of medicine where the treatment may profoundly affect the patient's sense of well-being, effort is being made to gauge these consequences.

Type
Special Section: Technology Assessment and Surgical Policy
Information
International Journal of Technology Assessment in Health Care , Volume 5 , Issue 3 , July 1989 , pp. 391 - 400
Copyright
Copyright © Cambridge University Press 1989

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References

REFERENCES

A'Hern, R. P., Ebbs, S. R., & Baum, M.Does chemotherapy improve survival in advanced breast cancer? A statistical overview. British Journal of Cancer, 1988, 57, 615–18.CrossRefGoogle ScholarPubMed
Aitken, R. C. B.Measurement of feelings using visual analogue scales. Proceedings of the Royal Society of Medicine, 1969, 62, 989–93.CrossRefGoogle ScholarPubMed
Alexander, J. L., & Willems, E. P. (1981). Quality of life: Some measurement requirements. Archives of Physiotherapy and Medical Rehabilitation, 1981, 62, 261–65.Google ScholarPubMed
Bardelli, D., & Saracci, R. Measuring the quality of life in cancer clinical trials: A sample survey of published trials. In Armitage, P. & Bardelli, D. (Eds.), Methods and impact of controlled therapeutic trials in cancer, UICC Technical Report Series, 1978, 36, 75–94.Google Scholar
Bell, D. R., Tannock, I. F., & Boyd, N. F.Quality of life measurement in breast cancer patients. British Journal of Cancer, 1985, 51, 577–80.CrossRefGoogle ScholarPubMed
Bond, A., & Lader, M.The use of analogue scales in rating subjective feelings. British Journal of Medical Psychology, 1974, 47, 211–18.CrossRefGoogle Scholar
Burge, P. S., Prankerd, T. A., Richards, J. D. M., Sare, M., Thompson, D. S., & Wright, P.Quality and quantity of survival in acute myeloid leukaemia. Lancet, 1975, 2, 621–24.CrossRefGoogle ScholarPubMed
Calman, K. C.Quality of life in cancer patients – an hypothesis. Journal of Medical Ethics, 1984, 10, 124–127.CrossRefGoogle ScholarPubMed
Cassileth, B. R., Lusk, E. J., Miller, D. S., Brown, L. L., & Miller, C.Psychosocial correlates of survival in advanced malignant disease? New England Journal of Medicine, 1985, 312, 1551–55.CrossRefGoogle ScholarPubMed
Clark, P. R. F., & Spear, F. G.Reliability and sensitivity in the self-assessment of well-being. Journal of the British Psychological Society, 1964, 17, 18A.Google Scholar
Clark, A., & Fallowfield, L. J.Quality of life measurements in patients with malignant disease: A review. Journal of the Royal Society of Medicine, 1986, 79, 1.CrossRefGoogle ScholarPubMed
Clement-Jones, V.Cancer and beyond: The formation of BACUP. British Medical Journal, 1985, 291, 1021–23.CrossRefGoogle ScholarPubMed
Craig, I.J., Comstock, G. W., & Geiser, P. B.The quality of survival in breast cancer: A case-control comparison. Cancer, 1974, 33, 1451–57.3.0.CO;2-G>CrossRefGoogle ScholarPubMed
DiClemente, R. J., & Temoshok, L.Psychological adjustment to having cutaneous malignant melanoma as a predictor of follow-up clinical status. Psychosomatic Medicine, 1985, 47, 81.Google Scholar
Duncan, W.Caring or curing: The conflicts of choice. Journal of the Royal Society of Medicine, 1985, 78, 526–35.CrossRefGoogle ScholarPubMed
Fallowfield, L. J., Baum, M., & Maguire, G. P.Effects of breast conservation on psychological morbidity associated with diagnosis and treatment of early breast cancer. British Medical Journal, 1986, 293, 1331–34.CrossRefGoogle ScholarPubMed
Fallowfield, L. J., Baum, M., & Maguire, G. P.Do psychological studies upset patients? Journal of the Royal Society of Medicine, 1987, 80, 59.CrossRefGoogle ScholarPubMed
Fayers, P. M., & Jones, D. R.Measuring and analysing quality of life in cancer clinical trials: A review. Statistics in Medicine, 1983, 2, 429–46.CrossRefGoogle ScholarPubMed
Gough, I. R., Furnival, C. M., Schilder, L., & Grove, W.Assessment of the quality of life of patients with advanced cancer. European Journal of Clinical Oncology, 1983, 19, 1161–65.CrossRefGoogle ScholarPubMed
Greer, S., Morris, T., & Pettingale, K. W.Psychological response to breast cancer: Effect on outcome. Lancet, 1979, 2, 785–7.CrossRefGoogle Scholar
Greico, A., & Long, C. J.Investigation of the Karnofsky Performance Status as a measure of quality of life. Health Psychology, 1984, 3, 129–43.CrossRefGoogle Scholar
Hinton, J.Comparison of places and policies for terminal care. Lancet, 1979, 1, 29–32.CrossRefGoogle ScholarPubMed
Izsak, F. C., & Medalie, J. H.Comprehensive follow-up of carcinoma patients. Journal of Chronic Disease, 1971, 24, 179–91.CrossRefGoogle ScholarPubMed
Kalton, G., & Schuman, H.The effect of the question on survey responses: A review. Journal of the Royal Statistical Society, 1982, 145, 42–73.CrossRefGoogle Scholar
Karnofsky, D. A., & Burchenal, J. H. The clinical evaluation of chemotherapeutic agents in cancer. In MacLeod, C. M. (Ed.), Evaluation of chemotherapeutic agents. New York: Columbia University Press, 1949, 191–205Google Scholar
Kennedy, I. “Unmasking medicine,” The Reith Lectures, BBC Radio, 1980. In The unmasking of medicine. London: George Allen and Unwin, 1981.Google Scholar
Lowrey, S.Chemotherapy free survival. Lancet, 1987, 2, 853.CrossRefGoogle Scholar
Maguire, G. P. The psychological and social sequelae of mastectomy. In Howell, J. G. (Ed.), Modern perspectives in the psychiatric aspects of surgery. New York: Brunner-Mazel, 1976, 390–421.CrossRefGoogle Scholar
Maguire, G. P., Lee, E. G., Bevington, D. J., Kuchemann, C. S., Crabtree, R. J., & Cornell, C. E.Psychiatric problems in the first year after mastectomy. British Medical Journal, 1978, 1, 963–5.CrossRefGoogle ScholarPubMed
McNeil, B. J., Weichselbaum, R., & Pauker, S. G.Fallacy of the five year survival in lung cancer. New England Journal of Medicine, 1978, 299, 1397–1401.CrossRefGoogle ScholarPubMed
McNeil, B. J., Weichselbaum, R., & Pauker, S. G.Speech and survival, trade-offs between quality and quantity of life in laryngeal cancer. New England Journal of Medicine, 1981, 305, 982–7.CrossRefGoogle Scholar
Morris, J. N., Suissa, S., Sherwood, S., Wright, S. M., & Greer, D.Last days: A study of terminally ill cancer patients. Journal of Chronic Disease, 1986, 39, 47–62.CrossRefGoogle Scholar
Mosteller, F., Gilbert, J. P., & McPeek, B.Reporting standards and research strategies for controlled trials: Agenda for the editor. Controlled Clinical Trials, 1980, 1, 37–58.CrossRefGoogle Scholar
O'Donnell, M. A load of QALYs. Guardian, 11 5, 1986.Google Scholar
O'Young, J., & McPeek, B.Quality of life variables in surgical trials. Journal of Chronic Disease, 1987, 40, 513–22.CrossRefGoogle ScholarPubMed
Padilla, G., Presant, C. A., Grant, M., Baer, C., & Metter, G. Assessment of quality of life in cancer patients. Proceedings of the American Association of Cancer Research, 1981, 397.Google Scholar
Palmer, B. V., Walsh, G. A., McKinna, J. A., & Greening, W. P.Adjuvant chemotherapy for breast cancer: Side effects and quality of life. British Medical Journal, 1980, 281, 1594–97CrossRefGoogle ScholarPubMed
Patterson, W. B.The quality of survival in response to treatment. Journal of the American Medical Association, 1975, 233, 280–81.CrossRefGoogle ScholarPubMed
Penta, J. S., Poster, D. S., Bruno, S., & Jacobs, E. M.Cancer and chemotherapy-induced nausea and vomiting in adult and pediatric patients. American Society of Clinical Oncology, 1981, 4, 396.Google Scholar
Pirsig, R.Zen and the art of motorcycle maintenance. London: The Bodley Head, 1974.Google Scholar
Presser, S., & Schuman, H.The measurement of a middle position in attitude surveys. Public Opinion Quarterly, 1980, 44, 70–85.CrossRefGoogle Scholar
Priestman, T. J, & Baum, M.Evaluation of quality of life in patients receiving treatment for advanced breast cancer. Lancet, 1976, 1, 899–901.CrossRefGoogle ScholarPubMed
Priestman, T. J.Quality of life after cytotoxic chemotherapy: Discussion paper. Journal of the Royal Society of Medicine, 1984, 77, 492–5.CrossRefGoogle ScholarPubMed
Sackett, D. L., Chambers, L. W., MacPherson, A. S., Goldsmith, C. H., & McAuley, R. G.The development and application of indices of health: General methods and a summary of results. American Journal of Public Health, 1977, 65, 423–8.CrossRefGoogle Scholar
Schmale, A. H.Clinical trials in psychological medicine: Methodologic and statistical considerations. Cancer Treatment Reports, 1980, 64, 2–3.Google Scholar
Selby, P. J., Chapman, J. A. W., Etzadi-Amoli, J., Dailey, D., & Boyd, N. F.The development of a method for assessing the quality of life of cancer patients. British Journal of Cancer, 1984, 50, 13–22.CrossRefGoogle ScholarPubMed
Silberfarb, P. L., Maurer, H. L., & Crouthamel, C. S.Psychological aspects of neoplastic disease: Functional status of breast cancer patients during different treatment regimens. American Journal of Psychiatry, 1980, 137, 450–55.Google Scholar
Slevin, M. L., Plant, H., Lynch, D., Drinkwater, J., & Gregory, W. M.Who should measure quality of life, the doctor or the patient? British Journal of Cancer, 1988, 57, 109–12.CrossRefGoogle ScholarPubMed
Spitzer, W. O., Dobson, A. J., Hall, J., Chesterman, E., Levi, J., Shepherd, R., Battista, R. N., & Catchlove, B. R.Measuring the quality of life of cancer patients: A concise quality of life index for use by physicians. Journal of Chronic Disease, 1981, 34, 585–97.CrossRefGoogle ScholarPubMed
Starzl, T. E., Koep, L. J., Schroter, G. P. J., Hood, J., Halgrimson, C. G., Porter, K. A., & Weil, R.The quality of life after liver transplantation. Transplantation Proceedings, 1979, 11, 252–56.Google ScholarPubMed
Sugarbaker, P. H., Barofsky, I., Rosenberg, S. A., & Gianola, F. J.Quality of life assessment of patients in extremity sarcoma clinical trials. Surgery, 1982, 91, 17–23.Google ScholarPubMed
Torrance, G. W.A generalised cost-effectiveness model for the evaluation of health programs. Research Services No. 101, Faculty of Business, McMaster University, 1970.Google Scholar
Van Dam, F., Linssen, C. A., & Couzyn, A. L. Evaluating “quality of life” in cancer clinical trials. In Straquet, M. & Sylvester, R. J. (Eds.), Cancer clinical trials – Methods and practice. Oxford: Oxford University Press, 1984.Google Scholar
Wallenstein, S. L.Measurement of pain and analgesia in cancer patients. Cancer, 1984, 53, 2260–66.CrossRefGoogle ScholarPubMed
Ware, J. E.Conceptualising disease impact and treatment outcomes. Cancer, 1984, 53, 2316–27.CrossRefGoogle ScholarPubMed
Ware, J. E.Standards for validating health measures: Definition and content. Journal of Chronic Disease, 1987, 40, 473–80.CrossRefGoogle ScholarPubMed
Weddington, W. W., Segraves, K. B., & Simon, M. A.Psychologic outcome of extremity sarcoma survivors undergoing amputation or limb salvage. Journal of Clinical Oncology, 1985, 3, 1393–99.CrossRefGoogle ScholarPubMed
Williams, A.Economics of coronary artery bypass grafting. British Medical Journal, 1985, 291, 326–9.CrossRefGoogle ScholarPubMed
Yates, J. W., Chalmer, B., & McKegney, P.Evaluation of patients with advanced cancer using Karnofsky Performance Status. Cancer, 1980, 45, 2220–24.3.0.CO;2-Q>CrossRefGoogle ScholarPubMed