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Patients, users, caregivers, and citizens' involvement in local health technology assessment unit in Quebec: a survey

Published online by Cambridge University Press:  29 September 2020

Thomas G. Poder Open the ORCID record for Thomas G. Poder [Opens in a new window] ,
Catherine Safianyk ,
Monique F. Fournier ,
Isabelle Ganache ,
Moustapha Touré ,
Marie-Pascale Pomey Open the ORCID record for Marie-Pascale Pomey [Opens in a new window]  and
Marie-Pierre Gagnon Open the ORCID record for Marie-Pierre Gagnon [Opens in a new window]
Thomas G. Poder*
Affiliation:
School of Public Health, Université de Montréal, Montreal, Canada Centre de recherche de l'IUSMM, CIUSSS de l'Est de l'île de Montréal, Montreal, Canada
Catherine Safianyk
Affiliation:
CIUSSS de la Capitale Nationale, Quebec, Canada
Monique F. Fournier
Affiliation:
Research Consultant, Montreal, Canada
Isabelle Ganache
Affiliation:
Institut national d'excellence en santé et en services sociaux, Montreal, Canada
Moustapha Touré
Affiliation:
School of Public Health, Université de Montréal, Montreal, Canada Department of Economics, Business School, University of Sherbrooke, Sherbrooke, Canada
Marie-Pascale Pomey
Affiliation:
School of Public Health, Université de Montréal, Montreal, Canada
Marie-Pierre Gagnon
Affiliation:
Faculty of Nursing Sciences, Université Laval, Quebec, Canada
*
Author for correspondence: Thomas G. Poder, E-mail: [email protected]
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Abstract

Objectives

Increasing emphasis is given on involving patients in health technology assessment (HTA). While this is mainly done at the level of regional and national HTA agencies, this tendency is also emerging in local HTA units. In this study, we provide the results of a survey conducted in local HTA units in the province of Quebec, Canada. The aim of the survey was to provide an overview of local HTA unit practices to involve patients, users, caregivers, and citizens in their process, their interest in doing so, and their information needs for this.

Methods

The survey was conducted in 2017 with a response rate of eleven units over a possibility of twelve.

Results

Three units out of eleven (27.3 percent) never involved patients or members of the public in their processes and all indicated that they will involve them in the next few years. The three most important needs for support identified in the HTA units were in: recruiting and selecting patients; integrating experiential knowledge; and knowing and implementing the best methods and practices for partnership.

Conclusion

Patient involvement in local HTA units is quickly evolving and that is why they urgently need tools to involve more effectively patients and members of the public in their process.

Keywords

Local HTA unitHospital-based HTAPatientsProcessSurveyQuebec
Type
Assessment
Information
International Journal of Technology Assessment in Health Care , Volume 37 , Issue 1 , 2021 , e5
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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References

Gagnon, MP, Desmartis, M, Gagnon, J, St-Pierre, M, Rhainds, M, Coulombe, M, et al. Framework for user involvement in health technology assessment at the local level: Views of health managers, user representatives, and clinicians. Int J Technol Assess Health Care. 2015;31:68–77.CrossRefGoogle ScholarPubMed
Abelson, J, Wagner, F, DeJean, D, Boesveld, S, Gauvin, FP, Bean, S et al. Public and patient involvement in health technology assessment: A framework for action. Int J Technol Assess Health Care. 2016;32:256–64.CrossRefGoogle Scholar
Scott, AM, Wale, JL. Patient advocate perspectives on involvement in HTA: An international snapshot. Res Involv Engagem. 2017;3:2.CrossRefGoogle Scholar
Single, ANV, Facey, KM, Livingstone, H, Silva, AS. Stories of patient involvement impact in health technology assessments: A discussion paper. Int J Technol Assess Health Care. 2019;35:266–72.CrossRefGoogle ScholarPubMed
Facey, K, Ploug Hansen, H, Single, A. Patient involvement in health technology assessment. Springer Nature Singapore Pte Ltd: Adis; 2017:434p.CrossRefGoogle Scholar
Weeks, L, Polisena, J, Scott, AM, Holtorf, AP, Staniszewska, S, Facey, K. Evaluation of patient and public involvement initiatives in health technology assessment: A survey of international agencies. Int J Technol Assess Health Care. 2017;33:715–23.CrossRefGoogle ScholarPubMed
Nabarette, H. [Involving patients in the evaluation of health technologies at the French National Authority for Health (HAS)]. Santé Publique. 2018;30:767–75.CrossRefGoogle Scholar
Sampietro-Colom, L, Martin, J. Hospital-based health technology assessment. The next frontier for health technology assessment. Switzerland: Adis; 2016:397p.CrossRefGoogle Scholar
Poder, TG, Bellemare, CA. Importance of contextual data in producing health technology assessment recommendations: A case study. Int J Technol Assess Health Care. 2018;34:63–67.CrossRefGoogle ScholarPubMed
Poder, TG, Bellemare, CA, Bédard, SK, Fisette, JF, Dagenais, P. Impact of health technology assessment reports on hospital decision makers—10-year insight from a hospital unit in Sherbrooke, Canada: Impact of health technology assessment on hospital decisions. Int J Technol Assess Health Care. 2018;34:393–9.CrossRefGoogle ScholarPubMed
Sampietro-Colom, L, Lach, K, Pasternack, I, Wasserfallen, J-B, Cicchetti, A, Marchetti, M et al. Guiding principles for good practices in hospital-based health technology assessment units. Int J Technol Assess Health Care. 2015;31:457–65.CrossRefGoogle ScholarPubMed
Roy, M, Ganache, I, Dagenais, P. Advocating for a better engagement of patients, users, caregivers, and citizens in healthcare and social services technology assessment (HSTA). Int J Hospital-Based Health Technol Assess. 2018;1:15–18.Google Scholar
Gagnon, M-P, Candas, B, Desmartis, M, Rhainds, M, Coulombe, M, Gagnon, J et al. Engaging patient representatives in the identification and prioritization of health technology assessment topics. Int J Hospital-Based Health Technol Assess. 2016;1:31–40.Google Scholar
Tantchou, M, Gagnon, M-P, Poder, T. PP115 Patient and public involvement In health technology assessment: Update of a systematic review. Int J Technol Assess Health Care. 2017;33:126.CrossRefGoogle Scholar
Ocloo, J, Matthews, R. From tokenism to empowerment: Progressing patient and public involvement in healthcare improvement. BMJ Qual Saf. 2016;25:626–32.CrossRefGoogle ScholarPubMed
Vanstone, M, Abelson, J, Bidonde, J, Bond, K, Burgess, R, Canfield, C et al. Ethical challenges related to patient involvement in health technology assessment. Int J Technol Assess Health Care. 2019;35:253–6.CrossRefGoogle ScholarPubMed
Gagnon, MP, Desmartis, M, Poder, T, Witteman, W. Effects and repercussions of local/hospital-based health technology assessment (HTA): A systematic review. Syst Rev. 2014;3:129.CrossRefGoogle ScholarPubMed
Ryan, M, Moran, PS, Harrington, P, Murphy, L, O'Neill, M, Whelan, M et al. Contribution of stakeholder engagement to the impact of a health technology assessment: An Irish case study. Int J Technol Assess Health Care. 2017;33:424–9.CrossRefGoogle ScholarPubMed
Seidl, KL, Newhouse, RP. The intersection of evidence-based practice with 5 quality improvement methodologies. JONA. 2012;42:299–304.CrossRefGoogle ScholarPubMed
Carvalho, VKDS, de Sousa, MSA, Barreto, JOM, da Silva, EN. Public engagement in health technology assessment in Brazil: The case of the trastuzumab public consultation. BMC Health Serv Res. 2019;19:762.CrossRefGoogle ScholarPubMed
Oxman, AD, Lewin, S, Lavis, JN, Fretheim, A. SUPPORT Tools for evidence-informed health Policymaking (STP) 15: Engaging the public in evidence-informed policymaking. Health Res Policy Syst. 2009;7:S15.CrossRefGoogle ScholarPubMed
Pomey, MP, Brouillard, P, Ganache, I, Lambert, L, Boothroyd, L, Collette, C et al. Co-construction of health technology assessment recommendations with patients: An example with cardiac defibrillator replacement. Health Expect. 2020;23:182–92.CrossRefGoogle ScholarPubMed
Poder, TG, Carrier, N, Bédard, SK. Health technology assessment unit processes for the validation of an informal tool to involve patients in the safety of their care. Int J Technol Assess Health Care. 2018;34:378–87.CrossRefGoogle Scholar