Hostname: page-component-586b7cd67f-l7hp2 Total loading time: 0 Render date: 2024-11-27T23:10:20.689Z Has data issue: false hasContentIssue false
  • English
  • Français

Daily life impairments associated with self-reported childhood/adolescent attention-deficit/hyperactivity disorder and experiences of diagnosis and treatment: Results from the European Lifetime Impairment Survey

Published online by Cambridge University Press:  15 April 2020

H. Caci ,
M. Doepfner ,
P. Asherson ,
R. Donfrancesco ,
S.V. Faraone ,
A. Hervas  and
M. Fitzgerald
H. Caci*
Affiliation:
Pediatric Department, Hôpitaux Pédiatriques de Nice, CHU Lenval, 57, avenue de la Californie, 06200Nice, France
M. Doepfner
Affiliation:
Department of Child and Adolescent Psychiatry, University of Cologne, Cologne, Germany
P. Asherson
Affiliation:
Social Genetic and Developmental Psychiatry (SGDP), King's College, Institute of Psychiatry, London, UK
R. Donfrancesco
Affiliation:
Child Neuropsychiatry Department, Sandro Pertini Hospital, Rome, Italy
S.V. Faraone
Affiliation:
Departments of Psychiatry and of Neuroscience and Physiology, SUNY Upstate Medical University, Syracuse, New York, NY, USA
A. Hervas
Affiliation:
Child and Adolescent Mental Health Unit, University Hospital Mutua of Terrassa, Barcelona, Spain
M. Fitzgerald
Affiliation:
Department of Psychiatry, Trinity College, Dublin, Ireland
*
*Corresponding author. Tel.: +33 4 92 03 08 71; fax: +33 4 92 03 05 58. E-mail address:[email protected] (H. Caci).
Get access

Abstract

The Lifetime Impairment Survey assessed impairment and symptoms of attention-deficit/hyperactivity disorder (ADHD) in children/adolescents from six European countries. Parents/caregivers of children/adolescents aged < 20 years with ADHD (ADHD group; n = 535) and without ADHD (control group; n = 424) participated in an online survey. History of ADHD diagnosis was self-reported. ADHD and control groups were compared using impairment and symptom scales; higher scores indicate greater impairment. Mean (SD) age at ADHD diagnosis was 7.0 (2.8) years, following consultation of 2.7 (2.6) doctors over 20.4 (23.9) months. Parents/caregivers (64%; 344/535) reported frustration with some aspect of the diagnostic procedure; 74% (222/298) were satisfied with their child's current medication. ADHD had a negative impact on children/adolescents in all aspects of life investigated. The ADHD group had a higher mean (SD) school impairment score (2.7 [0.7]) compared with the control group (2.1 [0.7]; P < 0.001) and were more likely to be in the bottom of their class (P < 0.001). These data provide insights into impairments associated with ADHD in childhood/adolescence, and identify areas for improvement in its management and treatment.

Keywords

ADHDFunctional impairmentTreatmentDiagnosis
Type
Original articles
Information
European Psychiatry , Volume 29 , Issue 5 , June 2014 , pp. 316 - 323
Copyright
Copyright © Elsevier Masson SAS 2014

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

1

These authors both contributed equally.

2

Tel.: +49 221 478 6105; fax: +49 221 478 3962.

3

Tel.: +44 2078 480 078; fax: +44 2078 480 866.

4

Tel.: +39 3397740368; fax: +39 0641435416.

5

Tel.: +1 315 464 3113; fax: +1 315 849 1839.

6

Tel.: +34 937365903.

7

Tel.: +353 086 859 75 47.

References

American Psychiatric Association, Attention-deficit and disruptive behavior disorders. Attention-deficit/hyperactivity disorder. Diagnostic and statistical manual of mental disorders. 4th ed. Text revision Washington, DC: American Psychiatric Association; 2000. p. 85–103.Google Scholar
Barkley, R.A., Fischer, M., Smallish, L., Fletcher, K.Young adult follow-up of hyperactive children: antisocial activities and drug use. J Child Psychol Psychiatry 2004;45:195–211.CrossRefGoogle ScholarPubMed
Barkley, R.A., Fischer, M., Smallish, L., Fletcher, K.Young adult outcome of hyperactive children: adaptive functioning in major life activities. J Am Acad Child Adolesc Psychiatry 2006;45:192–202.CrossRefGoogle ScholarPubMed
Barkley, R.A., Murphy, K.R., Fischer, M.Impairment in major life activities. ADHD in adults: what the science says. New York, NY: Guilford Press; 2008. p. 130–169.Google Scholar
Biederman, J., Faraone, S.V., Spencer, T.J., Mick, E., Monuteaux, M.C., Aleardi, M.Functional impairments in adults with self-reports of diagnosed ADHD: a controlled study of 1001 adults in the community. J Clin Psychiatry 2006;67:524–540.CrossRefGoogle Scholar
Biederman, J., Petty, C.R., Clarke, A., Lomedico, A., Faraone, S.V.Predictors of persistent ADHD: an 11-year follow-up study. J Psychiatr Res 2011;45:150–155.CrossRefGoogle Scholar
Biederman, J., Petty, C.R., Monuteaux, M.C., Fried, R., Byrne, D., Mirto, T.et al.Adult psychiatric outcomes of girls with attention deficit hyperactivity disorder: 11-year follow-up in a longitudinal case-control study. Am J Psychiatry 2010;167:409–417.CrossRefGoogle Scholar
British Healthcare Business Intelligence Association. Available at: http://www.bhbia.org.uk/guidelines/legalandethicalguidelines.aspx. Accessed: 20 November 2012.Google Scholar
Buitelaar, J.K., Barton, J., Danckaerts, M., Friedrichs, E., Gillberg, C., Hazell, P.L.et al.A comparison of North American versus non-North American ADHD study populations. Eur Child Adolesc Psychiatry 2006;15:177–181.CrossRefGoogle ScholarPubMed
Caci, H., Asherson, P., Doepfner, M., Donfrancesco, R., Faraone, S., Fitzgerald, M.et al.Attention deficit/hyperactivity disorder is associated with impairment in everyday life as reported by parents of affected children: results of the European Lifetime Impairment Study. Third International Congress on ADHD, Berlin, Germany. Attention Def Hyperact Disord 2011;2:197 [Abstract P-30-04].Google Scholar
Caci, H.M., Morin, A.J., Tran, A.Teacher ratings of the ADHD-RS IV in a community sample: results from the ChiP-ARD study. J Atten Disord 2013. http://dx.doi.org/10.1177/1087054712473834 [Epub ahead of print].Google Scholar
Coghill, D., Soutullo, C., d’Aubuisson, C., Preuss, U., Lindback, T., Silverberg, M.et al.Impact of attention-deficit/hyperactivity disorder on the patient and family: results from a European survey. Child Adolesc Psychiatry Ment Health 2008;2:31.CrossRefGoogle ScholarPubMed
Döpfner, M., Breuer, D., Wille, N., Erhart, M., Ravens-Sieberer, U.How often do children meet ICD-10/DSM-IV criteria of attention deficit-/hyperactivity disorder and hyperkinetic disorder? Parent-based prevalence rates in a national sample – results of the BELLA study. Eur Child Adolesc Psychiatry 2008;17(Suppl. 1):59–70.CrossRefGoogle Scholar
Dopfner, M., Steinhausen, H.C., Coghill, D., Dalsgaard, S., Poole, L., Ralston, S.J.et al.Cross-cultural reliability and validity of ADHD assessed by the ADHD Rating Scale in a pan-European study. Eur Child Adolesc Psychiatry 2006;15(Suppl. 1):I46–I55.CrossRefGoogle Scholar
DuPaul, G.J., McGoey, K.E., Eckert, T.L., VanBrakle, J.Preschool children with attention-deficit/hyperactivity disorder: impairments in behavioral, social, and school functioning. J Am Acad Child Adolesc Psychiatry 2001;40:508–515.CrossRefGoogle ScholarPubMed
Escobar, R., Montoya, A., Polavieja, P., Cardo, E., Artigas, J., Hervas, A.et al.Evaluation of patients’ and parents’ quality of life in a randomized placebo-controlled atomoxetine study in attention-deficit/hyperactivity disorder. J Child Adolesc Psychopharmacol 2009;19:253–263.CrossRefGoogle Scholar
Escobar, R., Soutullo, C.A., Hervas, A., Gastaminza, X., Polavieja, P., Gilaberte, I.Worse quality of life for children with newly diagnosed attention-deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 2005;116:e364–e369.CrossRefGoogle ScholarPubMed
European Pharmaceutical Market Research Association. Available at: http://www.ephmra.org/standards-code.aspx. Accessed: 20 November 2012.Google Scholar
Faraone, S.V., Mick, E.Molecular genetics of attention deficit hyperactivity disorder. Psychiatr Clin North Am 2010;33:159–180.CrossRefGoogle ScholarPubMed
Faraone, S.V., Sergeant, J., Gillberg, C., Biederman, J.The worldwide prevalence of ADHD: is it an American condition?. World Psychiatry 2003;2:104–113.Google ScholarPubMed
Gordon, M., Antshel, K., Faraone, S., Barkley, R., Lewandowski, L., Hudziak, J.J.et al.Symptoms versus impairment: the case for respecting DSM-IV's Criterion D. J Atten Disord 2006;9:465–475.CrossRefGoogle ScholarPubMed
Harrison, J.R., Vannest, K.J., Reynolds, C.R.Behaviors that discriminate ADHD in children and adolescents: primary symptoms, symptoms of comorbid conditions, or indicators of functional impairment?. J Atten Disord 2011;15:147–160.CrossRefGoogle ScholarPubMed
Hervas, A., Asherson, P., Caci, H., Doepfner, M., Donfrancesco, R., Faraone, S.et al.Parental experiences of diagnosis and treatment of attention deficit/hyperactivity disorder in children: results from the European Lifetime Impairment Survey. Third International Congress on ADHD, Berlin, Germany. Attention Def Hyperact Disord 2011;2:199 [Abstract P-31-01].Google Scholar
Hinshaw, S.P., Scheffler, R.M., Fulton, B.D., Aase, H., Banaschewski, T., Cheng, W.et al.International variation in treatment procedures for ADHD: social context and recent trends. Psychiatr Serv 2011;62:459–464.CrossRefGoogle ScholarPubMed
Hodgkins, P., Setyawan, J., Mitra, D., Davis, K., Quintero, J., Fridman, M.et al.Management of ADHD in children across Europe: patient demographics, physician characteristics and treatment patterns. Pediatr 2013;172:895–906.Google ScholarPubMed
Market Research Society. Available at: http://www.mrs.org.uk/standards/codeconduct.htm. Accessed: 20 November 2012.Google Scholar
Martenyi, F., Treuer, T., Gau, S.S., Hong, S.D., Palaczky, M., Suba, J.et al.Attention-deficit/hyperactivity disorder diagnosis, co-morbidities, treatment patterns, and quality of life in a pediatric population in central and eastern Europe and Asia. J Child. Adolesc Psychopharmacol 2009;19:363–376.CrossRefGoogle Scholar
Mick, E., Byrne, D., Fried, R., Monuteaux, M., Faraone, S.V., Biederman, J.Predictors of ADHD persistence in girls at 5-year follow-up. J Atten Disord 2011;15:183–192.CrossRefGoogle ScholarPubMed
Morin, A.J., Tran, A., Caci, H.Factorial validity of the ADHD adult symptom rating scale in a French community sample: results from the ChiP-ARDS study. J Atten Disord 2013. http://dx.doi.org/10.1177/1087054713488825 [Epub ahead of print].Google Scholar
Nazar, B.P., Pinna, C.M., Coutinho, G., Segenreich, D., Duchesne, M., Appolinario, J.C.et al.Review of literature of attention-deficit/hyperactivity disorder with comorbid eating disorders. Rev Bras Psiquiatr 2008;30:384–389.CrossRefGoogle ScholarPubMed
Park, J.H., Lee, S.I., Schachar, R.J.Reliability and validity of the child and adolescent functioning impairment scale in children with attention-deficit/hyperactivity disorder. Psychiatry Investig 2011;8:113–122.CrossRefGoogle ScholarPubMed
Polanczyk, G., de Lima, M.S., Horta, B.L., Biederman, J., Rohde, L.A.The worldwide prevalence of ADHD: a systematic review and metaregression analysis. Am J Psychiatry 2007;164:942–948.CrossRefGoogle ScholarPubMed
Riley, A.W., Spiel, G., Coghill, D., Doepfner, M., Falissard, B., Lorenzo, M.J.et al.Factors related to health-related quality of life (HRQoL) among children with ADHD in Europe at entry into treatment. Eur Child Adolesc Psychiatry 2006;15(Suppl. 1):I38–I45.CrossRefGoogle ScholarPubMed
Satterfield, J., Swanson, J., Schell, A., Lee, F.Prediction of antisocial behavior in attention-deficit hyperactivity disorder boys from aggression/defiance scores. J Am Acad Child Adolesc Psychiatry 1994;33:185–190.CrossRefGoogle ScholarPubMed
Seixas, M., Weiss, M., Muller, U.Systematic review of national and international guidelines on attention-deficit hyperactivity disorder. J Psychopharmacol 2012;26:753–765.CrossRefGoogle ScholarPubMed
Wilson, J.M., Marcotte, A.C.Psychosocial adjustment and educational outcome in adolescents with a childhood diagnosis of attention deficit disorder. J Am Acad Child Adolesc Psychiatry 1996;35:579–587.CrossRefGoogle ScholarPubMed
World Association of Research Professionals. Available at: http://www.esomar.org/. Accessed: 20 November 2012.Google Scholar
World Health Organization. International Statistical Classification of Diseases and Related Health Problems. Tenth Revision (ICD-10). Geneva, Switzerland: World Health Organization; 1992.Google Scholar
Supplementary material: File

Caci et al. supplementary material

Supplementary materials

Download Caci et al. supplementary material(File)
File 24.4 KB
Supplementary material: File

Caci et al. supplementary material

Supplementary materials

Download Caci et al. supplementary material(File)
File 19.4 KB
Supplementary material: File

Caci et al. supplementary material

Supplementary materials

Download Caci et al. supplementary material(File)
File 40 KB
Submit a response

Comments

No Comments have been published for this article.