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Messages to use in population-level campaigns to reduce mental health-related stigma: consensus development study

Published online by Cambridge University Press:  11 April 2011

Sarah Clement*
Affiliation:
Health Service and Population Research Department, Institute of Psychiatry, King's College London, London (United Kingdom)
Manuela Jarrett
Affiliation:
Health Service and Population Research Department, Institute of Psychiatry, King's College London, London (United Kingdom)
Claire Henderson
Affiliation:
Health Service and Population Research Department, Institute of Psychiatry, King's College London, London (United Kingdom)
Graham Thornicroft
Affiliation:
Health Service and Population Research Department, Institute of Psychiatry, King's College London, London (United Kingdom)
*
Address for correspondence: Dr. S. Clement, Section of Community Mental Health (Box P029), Health Service and Population Research Department, Institute of Psychiatry, King's College London, De Crespigny Park, London SE5 8AF (United Kingdom). Fax: +44 (0)20 7848 1462 E-mail: [email protected]

Extract

Aim-To develop and measure consensus about which type of message should be included in population-level campaigns to reduce mental health-related stigma. Methods - A panel of 32 experts attending an international conference on mental health stigma participated in a consensus development exercise. A modified nominal group technique was used incorporating two voting rounds, an overview of research evidence and group discussion. Results - There was high consensus (≥ 80°) regarding the inclusion of two of the message types presented - (i) recovery-oriented and (ii) see the person messages, and reasonable consensus (≥ 70°) regarding (iii) social inclusion / human rights and (iv) high prevalence of mental disorders messages. Ratings differed according to whether the participant was a psychiatrist or had personal experience of mental ill health. Analysis of the qualitative data revealed four themes: (i) benefits of messages countering the ‘otherness’ of people with mental ill health; (ii) problematic nature of messages referring to aetiology; (iii) message impact being dependent on the particular audience; (iv) need for specific packages of messages. Conclusions - This study supports the use of recovery-oriented messages and see the person messages. Social inclusion / human rights messages and high prevalence of mental disorders messages also merit consideration.

Declaration of Interest: This study was funded through a National Institute for Health Research (NIHR) Applied Programme grant awarded to the South London and Maudsley NHS Foundation Trust, and in relation to the NIHR Specialist Mental Health Biomedical Research Centre at the Institute of Psychiatry, King's College London and the South London and Maudsley NHS Foundation Trust. The views and opinions expressed herein are the authors and do not necessarily reflect those of the funding bodies. GT has received an unrestricted educational grant from Lundbeck and commissions from the Commonwealth of Australia for a review of their mental health plan. GT and CH lead the independent evaluation team for the UK ‘Time to Change: Let's end mental health discrimination now’ programme. GT has been a member of the independent evaluation team for Scotland's ‘See Me’ campaign.

Type
Original Articles
Copyright
Copyright © Cambridge University Press 2010

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References

Angermeyer, M.C. & Matschinger, H. (2005). Causal beliefs and attitudes to people with schizophrenia: Trend analysis based on data from two population surveys in Germany. British Journal of Psychiatry 186, 331334.Google Scholar
Brody, D. (2008). Normal People Don't Want to Know Us: First-hand Experiences and Perspectives on Stigma and Discrimination. California Network of Mental Health Clients. Retrieved December 4, 2009, from http://delphinegrrl.googlepages.com/reportsGoogle Scholar
Business Research Centre (1997). Modifying the Community's Attitudes to People with Mental Illness. New Zealand Ministry of Health: Aukland.Google Scholar
Callard, F., Main, L., Myers, F., Pynnonen, A-M., Thornicroft, G., Jenkins, R., Pinfold, V. & Sartorius, N. (2008). Stigma: A Guidebook for Action. Health Scotland. Retrieved December 4, 2009, from http://www.healthscotland.com/uploads/documents/6421- Stigma_Guidebook_for_Action%202635.pdfGoogle Scholar
Corrigan, P.W., Rowan, D., Green, A., Lundin, R., River, P., Uphoff-Wasowski, K., White, K. & Kubiak, M.A. (2002). Challenging two mental illness stigmas: Personal responsibility and dangerousness Schizophrenia Bulletin 28, 293309.CrossRefGoogle ScholarPubMed
Dietrich, S., Beck, M., Bujantugs, B., Kenzine, D., Matschinger, H. & Angermeyer, M.C. (2004). The relationship between public causal beliefs and social distance toward mentally ill people. Australia and New Zealand Journal of Psychiatry 38, 348354.Google Scholar
Estroff, S.E., Penn, D.L. & Toporek, J.R. (2004). From stigma to discrimination: an analysis of community efforts to reduce the negative consequences of having a psychiatric disorder and label. Schizophrenia Bulletin 30, 493509.CrossRefGoogle ScholarPubMed
Farina, A., Fisher, J.D., Getter, H. & Fischer, E.H. (1978). Some consequences of changing people' s views regarding the nature of mental illness. Journal of Abnormal Psychology 87, 272279.CrossRefGoogle ScholarPubMed
Fisher, J.D. & Farina, A. (1979). Consequences of beliefs about the nature of mental disorders. Journal of Abnormal Psychology 88, 320327.CrossRefGoogle ScholarPubMed
Gaebel, W., Zaske, H., Baumann, A.E., Klosterkotter, J., Maier, W., Decker, P., Moller, H. (2008). Evaluation of the German WPA “program against stigma and discrimination because of schizophrenia - Open the Doors”: results from representative telephone surveys before and after three years of anti-stigma interventions. Schizophrenia Research 98, 184–93.CrossRefGoogle Scholar
Health Education Authority (1997). Young People's Resources to Combat Stigma Around Mental Health Issues. Health Education Authority: London.Google Scholar
Jones, J. & Hunter, D. (1995). Qualitative research: consensus methods for medical and health services research. British Medical Journal 311, 376380.CrossRefGoogle Scholar
Knifton, L., Gervais, M., Newbigging, K., Mirza, N., Quinn, N., Wilson, N. & Hunkins-Hutchinson, E. (in press). Community conversation: addressing mental health stigma with ethnic minority communities. Social Psychiatry and Psychiatric Epidemiology.Google Scholar
Lauber, C. (2008). Stigma and discrimination against people with mental illness: A critical appraisal. Epidemologogia e Psychiatria Sociale 17, 1013.Google Scholar
Like Minds Like Mine (2008). Project to Counter Stigma and Discrimination Associated with Mental Illness. Like Minds Like Mine, New Zealand. Retrieved December 4, 2009, from http://www.likeminds.org.nz/file/downloads/pdf/file_24.pdfGoogle Scholar
Lincoln, T.M., Arens, E., Berger, C. & Rief, W. (2008). Can antistigma campaigns be improved? A test of the impact of biogenetic vs psychosocial causal explanations on implicit and explicit attitudes to schizophrenia. Schizophrenia Bulletin 34, 98994.CrossRefGoogle ScholarPubMed
Martin, J.K., Pescosolido, B.A. & Tuch, S.A. (2000). Of fear and loathing: The role of ‘disturbing behavior,’ labels, and causal attributions in shaping public attitudes toward people with mental illness. Journal of Health and Social Behavior 41, 208223.Google Scholar
McDaid, D. (2008). Countering the Stigmatisation and Discrimination of People with Mental Health Problems in Europe. European Commission. Retrieved December 4, 2009, from http://ec.europa. eu/health/ph_determinants/life_style/mental/docs/stigma_paper_en.pdfGoogle Scholar
Mehta, S. & Farina, A. (1997). Effect of the disease view of mental disorder on stigma. Journal of Social and Clinical Psychology 16, 405419.CrossRefGoogle Scholar
Mulligan, K. (2005). Federal agency escalates battle against stigma. Psychiatry Online 40, 911.Google Scholar
Murphy, M.K., Black, N., Lamping, D.L., McKee, C.M., Sanderson, C.F.B., Askham, J. & Marteau, T. (1998). Consensus Development Methods and Their Use in Clinical Guideline Development. Health Technology Assessment 2(3). Retrieved December 4 2009, from http://www.hta.ac.uk/fullmono/mon203.pdfGoogle Scholar
National Alliance on Mental Illness (2008). What is Mental Illness? Mental Illness Facts. National Alliance on Mental Illness, USA. Retrieved December 4 2009, from http://www.nami.org/Content/ NavigationMenu/Inform_Yourself/About_Mental_Illness/About_ Mental_Illness.htmGoogle Scholar
Paschos, D. (2006). Review of reducing the stigma of mental illness: A report from a Global Programme of the World Psychiatric Association. Journal of Intellectual Disability Research 50, 617–8.CrossRefGoogle Scholar
Penn, D.L., Kommana, S., Mansfield, M. & Link, B.G. (1999). Dispelling the stigma of schizophrenia: II. The impact of information on dangerousness. Schizophrenia Bulletin 25, 437446.CrossRefGoogle ScholarPubMed
Penn, D.L., Chamberlain, C. & Mueser, K.T. (2003) The effects of a documentary film about schizophrenia on psychiatric stigma. Schizophrenia Bulletin 29, 383391.CrossRefGoogle ScholarPubMed
Phelan, J.C. (2005). Geneticization of deviant behavior and consequences for stigma: The case of mental illness. Journal of Health and Social Behavior 46, 307322.CrossRefGoogle ScholarPubMed
Read, J. & Law, A. (1999). The relationship of causal beliefs and contact with users of mental health services to attitudes to the ‘mentally ill. International Journal of Social Psychiatry 45, 216229.Google Scholar
Rethink (2008). How We Can Help: Campaigning for Change. Rethink, Northern Ireland. Retrieved December 4 2009, from http://www.rethink.org/how_we_can_help/campaigning_for_change/Google Scholar
Rogers, A. & Pilgrim, D. (1997). The contribution of lay knowledge to the understanding and promotion of mental health. Journal of Mental Health 6, 2336.Google Scholar
Sartoriu, N. & Schulze, H. (2005). Reducing the Stigma of Mental Illness: A Report from a Global Programme of the World Psychiatric Association. Cambridge University Press: Cambridge.CrossRefGoogle Scholar
Sayce, L. (2000). From Psychiatric Patient to Citizen: Overcoming Discrimination and Social Exclusion. Macmillan: London.Google Scholar
Schnittker, J. (2008). An uncertain revolution: Why the rise of a genetic model of mental illness has not increased tolerance. Social Science and Medicine 67, 13701381.Google Scholar
Thornicroft, G. (2006). Shunned: Discrimination Against People with Mental Illness. Oxford University Press: Oxford.Google Scholar
Thornicroft, G., Brohan, E., Rose, D., Sartorius, N., Leese, M. & the INDIGO group. (2009). Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. Lancet 373 (9661), 408415.CrossRefGoogle ScholarPubMed
Vaughan, G. & Hansen, C. (2004). 'Like Minds, Like Mine: a New Zealand project to counter the stigma and discrimination associated with mental illness. Australasian Psychiatry 12, 113117.Google Scholar
Wahl, O.F. (1999) Mental health consumers' experience of stigma. Schizophrenia Bulletin 25, 467478.CrossRefGoogle ScholarPubMed
Walker, I. & Read, J. (2002). The differential effectiveness of psychosocial and biogenetic causal explanations in reducing negative attitudes toward “mental illness”. Psychiatry 65, 313325.CrossRefGoogle ScholarPubMed
Warner, R. (2008). Implementing local projects to reduce the stigma of mental illness. Epidemiologia e Psychiatria Sociale 17, 19.Google Scholar