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Continuity of care for children in the ‘too hard’ basket: a literature review of care needs in the health system

Published online by Cambridge University Press:  29 February 2016

Cas O'Neill
Affiliation:
Royal Children's Hospital
Julie Contole
Affiliation:
Royal Children's Hospital
Robyne Schwarz
Affiliation:
Royal Children's Hospital
Doug Bryan
Affiliation:
Royal Children's Hospital
Christine Minogue
Affiliation:
Royal Children's Hospital

Abstract

The following review of literature arose from Project Partnership, an initiative of the Royal Children's Hospital, Melbourne, which was set up to identify systemic and organisational changes which could improve continuity and quality of care for children with long-term and complex health care needs. This article examines research findings and other literature relevant to the experience of families whose children have complex health care needs; the experience of hospital based, health care professionals who care for this group of children; and the complexities of undertaking collaborative research in a large health bureaucracy.

Type
Research Article
Copyright
Copyright © Cambridge University Press 1996

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