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Provision of services for rehabilitation of children and adolescents with congenital cardiac disease: a survey of centres for paediatric cardiology in the United Kingdom

Published online by Cambridge University Press:  30 July 2009

Robert J.P. Lewin ,
Lynne Kendall  and
Patricia Sloper
Robert J.P. Lewin*
Affiliation:
British Heart Foundation Rehabilitation Research Unit, University of York, York
Lynne Kendall
Affiliation:
Paediatric Cardiac Unit, Yorkshire Heart Centre, Leeds General Infirmary, Leeds
Patricia Sloper
Affiliation:
Social Policy Research Unit, University of York, York, UK
*
British Heart Foundation Rehabilitation Research Unit, Health Sciences Research, University of York, Seebohm Rowntree Building, York YO10 5DD, UK. Tel: 01904 321336; Fax: 01904 321 383; E-mail: [email protected]
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Abstract

A postal questionnaire survey of the 17 centres for paediatric cardiology in the UK investigated the attitudes of staff towards rehabilitation and the current level of provision. The majority of respondents (82%) believed they should provide rehabilitation for their patients, but only one centre had a programme for rehabilitation. Few respondents (18%) believed they were meeting the needs of their patients' for rehabilitation. Major barriers to providing rehabilitation were funding and the wide geographical catchment areas.

Keywords

Congenital cardiac diseasesurveychildrenrehabilitation
Type
Brief Reports
Information
Cardiology in the Young , Volume 12 , Issue 4 , July 2002 , pp. 408 - 410
Copyright
Copyright © Cambridge University Press 2002

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References

1.Fredriksen, PM, Kahrs, N, Blaasvaer, S et al. , Effects of physical training in children and adolescents with congenital heart disease. Cardiol Young 2000; 10: 107–114.CrossRefGoogle ScholarPubMed
2.Gupta, S, Mitchell, I, Giuffre, RM, Crawford, S.Covert fears and anxiety in asthma and congenital heart disease. Child: Care, Health and Development 2001; 27: 335–348.CrossRefGoogle ScholarPubMed
3.Kendall, L, Lewin, RJP, Quirk, J, Parsons, JM, Veldtman, GR, Hardman, GF.Factors associated with self-perceived state of health in adolescents with congenital cardiac disease attending paediatric cardiologic clinics. Cardiol Young 2001; 11: 431–438.CrossRefGoogle ScholarPubMed
4.Galioto, FM, Tomassoni, TL.Exercise rehabilitation in congenital heart disease. Prog Pediatr Cardiol 1993; 2: 50–54.CrossRefGoogle Scholar
5.The Bristol Royal Infirmary Inquiry, 07 2001.Google Scholar
6.Department of Health. The Welfare of Children and Young People in Hospital. HMSO, London, 1991.Google Scholar
7.NHS Centre for Reviews and Dissemination. Cardiac Rehabilitation. Effective Health Care 1998; 4 (4).Google Scholar
8.Lewin, RJP, Ingleton, R, Newens, AJ, Thompson, DR.Adherence to cardiac rehabilitation guidelines: a survey of rehabilitation programmes in the United Kingdom. BMJ 1998; 316: 1354–1355.CrossRefGoogle ScholarPubMed
9.Thompson, DR, Bowman, GS, Kitson, AL, de Bono, DP, Hopkins, A.Cardiac rehabilitation in the United Kingdom: guidelines and audit standards. Heart 1996; 75: 89–93.CrossRefGoogle ScholarPubMed