Hostname: page-component-78c5997874-8bhkd Total loading time: 0 Render date: 2024-11-15T11:17:50.698Z Has data issue: false hasContentIssue false
  • English
  • Français

Health-related quality of life in children and adolescents living in the north-east of China before and after cardiac catheter interventional treatment

Published online by Cambridge University Press:  06 March 2017

Ling Li ,
Ping Lin  and
Xueqin Gao
Ling Li
Affiliation:
Department of Cardiology, The Second Affiliated Hospital of Harbin Medical University, Harbin, China
Ping Lin*
Affiliation:
School of Nursing, Harbin Medical University, Harbin, China
Xueqin Gao
Affiliation:
Department of Cardiology, The Second Affiliated Hospital of Harbin Medical University, Harbin, China
*
Correspondence to: P. Lin, School of Nursing, Harbin Medical University, 157 Baojian Road, Harbin 150086, China. Tel: +86 0451 8629 7428; Fax: +86 0451 8660 5180; E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Background

The goal of the present prospective study was to assess health-related quality of life in children and adolescents with CHD before and after cardiac catheter treatment.

Methods

The study enrolled 96 children/adolescents with CHD from the north-east of China who underwent cardiac catheter intervention treatment between March, 2013 and January, 2014. The health-related quality of life at 24 hours before treatment, 1 month after treatment, and 6 months after treatment was evaluated using Pediatric Quality of Life Inventory Measurement Models 4.0 (PedsQLTM 4.0) generic core scales, and the scores were further compared.

Results

Before treatment, each HRQOL domain score and the total score were obviously decreased than the post-treatment scores (1 month and 6 months). The total score and the scores in physical functioning and psychological functioning components were further increased 6 months after treatment than the scores 1 month after treatment.

Conclusion

The present study suggests that cardiac catheter interventional treatment improves the life quality of children or adolescents with CHD as time increases after the intervention.

Keywords

Health-related quality of lifechildrenadolescentsCHDcardiac catheter interventional treatment
Type
Original Articles
Information
Cardiology in the Young , Volume 27 , Issue 6 , August 2017 , pp. 1118 - 1122
Check for updates
Copyright
© Cambridge University Press 2017 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1. Daymont, C, Neal, A, Prosnitz, A, Cohen, MS. Growth in children with congenital heart disease. Pediatrics 2013; 131: e236–e242.CrossRefGoogle ScholarPubMed
2. Hoffman, JI, Kaplan, S. The incidence of congenital heart disease. J Am Coll Cardiol 2002; 39: 1890–1900.Google Scholar
3. Fryback, DG. Measuring health-related quality of life. Workshop on Advancing Social Science Theory: The Importance of Common Metrics. The National Academies, Division of Behavioral and Social Sciences and Education, Washington, DC, February 2010.Google Scholar
4. Goldbeck, L, Melches, J. Quality of life in families of children with congenital heart disease. Qual Life Res 2005; 14: 1915–1924.Google Scholar
5. Marino, BS, Uzark, K, Ittenbach, R, Drotar, D. Evaluation of quality of life in children with heart disease. Prog Pediatr Cardiol 2010; 29: 131–138.Google Scholar
6. Landolt, MA, Valsangiacomo Buechel, ER, Latal, B. Health-related quality of life in children and adolescents after open-heart surgery. J Pediatr 2008; 152: 349–355.Google Scholar
7. Chen, C-A, Liao, S-C, Wang, J-K, et al. Quality of life in adults with congenital heart disease: biopsychosocial determinants and sex-related differences. Heart 2011; 97: 38–43.CrossRefGoogle ScholarPubMed
8. Müller, J, Berner, A, Ewert, P, Hager, A. Reduced health-related quality of life in older patients with congenital heart disease: a cross sectional study in 2360 patients. Int J Cardiol 2014; 175: 358–362.Google Scholar
9. Mellion, K, Uzark, K, Cassedy, A, et al. Health-related quality of life outcomes in children and adolescents with congenital heart disease. J Pediatr 2014; 164: 781–788; e781.CrossRefGoogle ScholarPubMed
10. Varni, JW, Seid, M, Kurtin, PS. PedsQL™ 4.0: reliability and validity of the pediatric quality of life Inventory™ Version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800–812.Google Scholar
11. Uzark, K, Jones, K, Burwinkle, TM, Varni, JW. The Pediatric Quality of Life Inventory™ in children with heart disease. Prog Pediatr Cardiol 2003; 18: 141–149.Google Scholar
12. Varni, JW, Burwinkle, TM, Seid, M, Skarr, D. The PedsQL™* 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 2003; 3: 329–341.Google Scholar
13. Chaudhry, Z, Siddiqui, S. Health related quality of life assessment in Pakistani paediatric cancer patients using PedsQLTM 4.0 generic core scale and PedsQL™ cancer module. Health Qual Life Outcomes 2012; 10: 52.CrossRefGoogle ScholarPubMed
14. Hao, Y, Tian, Q, Lu, Y, Chai, Y, Rao, S. Psychometric properties of the Chinese version of the pediatric quality of life Inventory™ 4.0 generic core scales. Qual Life Res 2010; 19: 1229–1233.Google Scholar
15. Uzark, K, Jones, K, Slusher, J, Limbers, CA, Burwinkle, TM, Varni, JW. Quality of life in children with heart disease as perceived by children and parents. Pediatrics 2008; 121: e1060–e1067.CrossRefGoogle ScholarPubMed
16. Gilboa, SM, Salemi, JL, Nembhard, WN, Fixler, DE, Correa, A. Mortality resulting from congenital heart disease among children and adults in the United States, 1999 to 2006. Circulation 2010; 122: 2254–2263.CrossRefGoogle ScholarPubMed
17. Hoffman, TM, Wernovsky, G, Atz, AM, et al. Efficacy and safety of milrinone in preventing low cardiac output syndrome in infants and children after corrective surgery for congenital heart disease. Circulation 2003; 107: 996–1002.CrossRefGoogle ScholarPubMed
18. Mills, KI, Bergersen, LB, Jolley, M, Teele, SA, Mayer, JE, Salvin, JW. Safety and utility of cardiac catheterization in the early postoperative period following congenital cardiac surgery. Circulation 2014; 130: A12910.CrossRefGoogle Scholar
19. Lock, JE, Keane, JF, Perry, SB. Diagnostic and Interventional Catheterization in Congenital Heart Disease, 2nd edition. Boston/Dordrecht/London: Kluwer Academic Publishers, 2000.CrossRefGoogle Scholar
20. Lock, JE, Keane, JF, Fellows, KE. The use of catheter intervention procedures for congenital heart disease. J Am Coll Cardiol 1986; 7: 1420–1423.CrossRefGoogle ScholarPubMed
21. Feltes, TF, Bacha, E, Beekman, RH, et al. Indications for cardiac catheterization and intervention in pediatric cardiac disease a scientific statement from the American Heart Association. Circulation 2011; 123: 2607–2652.Google Scholar
22. Arora, R, Trehan, V, Kumar, A, Kalra, G, Nigam, M. Transcatheter closure of congenital ventricular septal defects: experience with various devices. J Interv Cardiol 2003; 16: 83–91.Google Scholar
23. Müller, J, Kühn, A, Vogt, M, Schreiber, C, Hess, J, Hager, A. Improvements in exercise performance after surgery for Ebstein anomaly. J Thorac Cardiovasc Surg 2011; 141: 1192–1195.CrossRefGoogle ScholarPubMed
24. Dua, JS, Cooper, AR, Fox, KR, Graham Stuart, A. Exercise training in adults with congenital heart disease: feasibility and benefits. Int J Cardiol 2010; 138: 196–205.Google Scholar
25. McCrindle, BW, Williams, RV, Mitchell, PD, et al. Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation 2006; 113: 1123–1129.Google Scholar
26. Moons, P, Van Deyk, K, De Geest, S, Gewillig, M, Budts, W. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 2005; 91: 1193–1198.CrossRefGoogle ScholarPubMed
27. Mokhles, MM, van de Woestijne, PC, de Jong, PL, et al. Clinical outcome and health-related quality of life after right-ventricular-outflow-tract reconstruction with an allograft conduit. Eur J Cardiothorac Surg 2011; 40: 571–578.Google ScholarPubMed