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Employment and advice regarding careers for adults with congenital heart disease

Published online by Cambridge University Press:  13 July 2005

David S. Crossland ,
Susan P. Jackson ,
Rosalind Lyall ,
John Burn  and
John J. O'Sullivan
David S. Crossland
Affiliation:
Department of Paediatric Cardiology, Freeman Hospital, Newcastle upon Tyne, United Kingdom
Susan P. Jackson
Affiliation:
Department of Paediatric Cardiology, Freeman Hospital, Newcastle upon Tyne, United Kingdom
Rosalind Lyall
Affiliation:
Department of Paediatric Cardiology, Freeman Hospital, Newcastle upon Tyne, United Kingdom
John Burn
Affiliation:
Department of Clinical Genetics, International Centre for Life, Newcastle upon Tyne, United Kingdom
John J. O'Sullivan
Affiliation:
Department of Paediatric Cardiology, Freeman Hospital, Newcastle upon Tyne, United Kingdom
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Abstract

Aims: To compare the rates of employment, and advice offered concerning careers, in adults with congenital heart disease and controls. To assess the impact of the severity of the congenital cardiac malformation on the chances for employment. Methods: We solicited responses from 299 adults with congenitally malformed hearts, asking them to answer questions from a questionnaire posed at interview by a trained nurse. The adults were asked to give an identical questionnaire to a friend to act as a control. We received responses from 177 of the controls. Results: The responses showed that 51 of 156 (33 per cent) adults with congenital heart disease were unemployed, and 37 of 151 (25 per cent) had been unemployed for more than a year. This is significantly more than 25 of 156 (16 per cent) matched controls unemployed, and 5 of 151 (3 per cent) controls unemployed for more than a year. Almost one-fifth of the adults with congenital heart disease (19 per cent) had received advice regarding their career which they found helpful, which is significantly fewer than the 31 per cent of controls. More (42 per cent) had been given advice against certain occupations than controls (11 per cent). Receiving career advice was significantly associated with employment in the population with congenitally malformed hearts, with almost three-quarters (73 per cent) of those given advice being employed compared to 46 per cent of those not given advice. This pattern was not seen in controls. The severity of the congenital cardiac malformation did not significantly affect the rates of unemployment. Conclusions: Whatever the severity of their disease, adults with congenitally malformed hearts are more likely to be unemployed than matched controls. They are less likely to receive useful advice regarding potential careers, and find the advice given less helpful, than controls, although receiving suitable advice is associated with being employed in the population with congenital cardiac disease.

Keywords

Congenitally malformed heartsgrown-up congenital heart diseaseunemployment
Type
Original Article
Information
Cardiology in the Young , Volume 15 , Issue 4 , August 2005 , pp. 391 - 395
Copyright
© 2005 Cambridge University Press

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References

Wren C, O'Sullivan JJ. Survival with congenital heart disease and need for follow up in adult life. Heart 2001; 85: 438–443.Google Scholar
Celermajer DS, Deanfield JE. Adults with congenital heart disease. BMJ 1991; 303: 1413–1414.Google Scholar
van Rijen EH, Utens EM, Roos-Hesselink JW, et al. Psychosocial functioning of the adult with congenital heart disease: a 20–33 years follow-up. Eur Heart J 2003; 24: 673–683.Google Scholar
Lane DA, Lip GYH, Millane TA. Quality of life in adults with congenital heart disease. Heart 2002; 88: 71–75.Google Scholar
Kamphuis M, Ottenkamp J, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 2002; 87: 356–362.Google Scholar
Saliba Z, Butera G, Bonnet D, et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 2001; 86: 69–73.Google Scholar
Van Doorn C, Yates R, Tunstill A, Elliot M. Quality of life in children following mitral valve replacement. Heart 2000; 84: 643–647.Google Scholar
Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of fallot and for atrial septal defect. Pediatr Cardiol 2001; 22: 128–132.Google Scholar
Popelova J, Slavik Z, Skovranek J. Are cyanosed adults with congenital cardiac malformations depressed? Cardiol Young 2001; 11: 379–384.Google Scholar
Gersony WM, Hayes CJ, Driscoll DJ, et al. Second natural history study of congenital heart defects: quality of life in patients with aortic stenosis, pulmonary stenosis, or ventricular septal defect. Circulation 1993; 87 (1 Suppl): 52–65.Google Scholar
Kokkonen J, Paavilainen T. Social adaptation of young adults with congenital heart disease. Int J Cardiol 1992; 36: 23–29.Google Scholar
Celermajer DS, Deanfield JE. Employment and insurance for young adults with congenital heart disease. Br Heart J 1993; 69: 539–543.Google Scholar
Kamphuis M, Vogels T, Ottenkamp J, Van der Wall EE, Verloove-Vanhorick SP, Vliegen HW. Employment in adults with congenital heart disease. Arch Pediatr Adolesc Med 2002; 156: 1143–1148.Google Scholar
Office for National Statistics. Region in figures, North East. Winter 2000, No. 2. Table 4.1.
Celermajer DS, Greaves K. Survivors of coarctation repair: fixed but not cured. Heart 2002; 88: 113–114.Google Scholar
van Doorn C. The unnatural history of tetralogy of Fallot: surgical repair is not as definitive as previously thought. Heart 2002; 88: 447–448.Google Scholar
Deanfield J, Thaulow E, Warnes C, et al. Management of grown up congenital heart disease. Eur Heart J 2003; 24: 1035–1084.Google Scholar
Bridging the Gaps: Health Care for Adolescents. The intercollegiate working party on adolescent health. Royal College of Paediatrics and Child Health, June 2003.
Kantoch MJ, Collins-Nakai RL, Medwid S, Ungstad E, Taylor DA. Adult patients' knowledge about their congenital heart disease. Can J Cardiol 1997; 13: 641–645.Google Scholar