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Direct non-medical and indirect costs for families with children with congenital cardiac defects in Germany: a survey from a university centre

Published online by Cambridge University Press:  04 March 2010

Andreas U. Gerber ,
Agnieszka Hompanera Torre ,
Guido Büscher ,
Stephanie A.K. Stock ,
Christine Graf ,
Sabine Schickendantz ,
Konrad Brockmeier  and
Markus Lüngen
Andreas U. Gerber*
Affiliation:
Institute for Health Economics and Clinical Epidemiology, University of Cologne, Gleueler Strasse, Cologne, Germany
Agnieszka Hompanera Torre
Affiliation:
Institute for Health Economics and Clinical Epidemiology, University of Cologne, Gleueler Strasse, Cologne, Germany
Guido Büscher
Affiliation:
Institute for Health Economics and Clinical Epidemiology, University of Cologne, Gleueler Strasse, Cologne, Germany
Stephanie A.K. Stock
Affiliation:
Institute for Health Economics and Clinical Epidemiology, University of Cologne, Gleueler Strasse, Cologne, Germany
Christine Graf
Affiliation:
Institute for Cardiovascular Research and Sports Medicine, German Sport University Cologne, Carl-Diem-Weg 6, Cologne, Germany
Sabine Schickendantz
Affiliation:
Department of Pediatric Cardiology, Heart Center University Hospital Cologne/Herzzentrum Universitätsklinik Köln, University of Cologne, Kerpener Strasse, Cologne, Germany
Konrad Brockmeier
Affiliation:
Department of Pediatric Cardiology, Heart Center University Hospital Cologne/Herzzentrum Universitätsklinik Köln, University of Cologne, Kerpener Strasse, Cologne, Germany
Markus Lüngen
Affiliation:
Institute for Health Economics and Clinical Epidemiology, University of Cologne, Gleueler Strasse, Cologne, Germany
*
Correspondence to: Andreas U. Gerber, Institute for Health Economics and Clinical Epidemiology, University of Cologne, Gleueler Strasse 176-78, 50935 Cologne, Germany. Tel: 0049 221 4679-0; Fax: 0049 221 430-2304; E-mail: [email protected]
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Abstract

Introduction

Parents of children with congenital cardiac disease suffer from psychological stress and financial burdens. These costs have not yet been quantified.

Materials and methods

In cooperation with paediatricians, social workers, and parents, a questionnaire was devised to calculate direct non-medical and indirect costs. Direct non-medical costs include all costs not directly related to medical services such as transportation. Indirect costs include lost productivity measured in lost income from wages. Parents were retrospectively queried on costs and refunds incurred during the child’s first and sixth year of life. The questionnaire was sent out to 198 families with children born between 1980 and 2000. Costs were adjusted for inflation to the year 2006. Children were stratified into five groups according to the severity of their current health status.

Results

Fifty-four families responded and could be included into the analysis (27.7%). Depending on severity, total direct non-medical and indirect costs in the first year of life ranged between an average of €1654 in children with no or mild (remaining) cardiac defects and an average €2881 in children with clinically significant (residual/remaining) findings. Mean expenses in the sixth year of life were as low as €562 (no or mild (remaining) cardiac defects) and as high as €5213 (potentially life-threatening findings). At both points in time, the highest costs were lost income and transportation; and day care/ babysitting for siblings was third.

Discussion

Families of children with congenital cardiac disease and major sequelae face direct non-medical and indirect costs adding up to €3000 per year on average. We should consider compensating families from low socioeconomic backgrounds to minimise under-use of non-medical services of assistance for their children.

Keywords

Congenital cardiac diseaseinborn cardiac defectcostslost productivitytransportation
Type
Original Articles
Information
Cardiology in the Young , Volume 20 , Issue 2 , April 2010 , pp. 178 - 185
Copyright
Copyright © Cambridge University Press 2010

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