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The development of a congenital heart programme quality dashboard to promote transparent reporting of outcomes

Published online by Cambridge University Press:  16 December 2015

Vijay Anand ,
Dominic Cave ,
Heather McCrady ,
Mohammed Al-Aklabi ,
David B. Ross ,
Ivan M. Rebeyka  and
Ian Adatia
Vijay Anand*
Affiliation:
Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, Edmonton, Canada
Dominic Cave
Affiliation:
Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, Edmonton, Canada
Heather McCrady
Affiliation:
Family Centered Care Council, Stollery Children’s Hospital, Edmonton, Canada
Mohammed Al-Aklabi
Affiliation:
Division of Pediatric Cardiac Surgery, Stollery Children’s Hospital, Edmonton, Canada
David B. Ross
Affiliation:
Division of Pediatric Cardiac Surgery, Stollery Children’s Hospital, Edmonton, Canada
Ivan M. Rebeyka
Affiliation:
Division of Pediatric Cardiac Surgery, Stollery Children’s Hospital, Edmonton, Canada
Ian Adatia
Affiliation:
Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, Edmonton, Canada
*
Correspondence to: V. Anand, Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, T6G2B7 Edmonton, Canada. Tel: 7809352741; Fax: 7804073595; E-mail: [email protected]
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Abstract

In 2001, the Institute of Medicine identified healthcare transparency as a necessity for re-designing a quality healthcare system; however, despite widespread calls for publicly available transparent data, the goal remains elusive. The transparent reporting of outcome data and the results of congenital heart surgery is critical to inform patients and families who have both the wish and the ability to choose where care is provided. Indeed, in an era where data and means of communication of data have never been easier, the paucity of transparent data reporting is paradoxical. We describe the development of a quality dashboard used to inform staff, patients, and families about the outcomes of congenital heart surgery at the Stollery Children’s Hospital.

Keywords

Publictransparencyqualitydashboardpaediatriccardiaccritical care
Type
Original Articles
Information
Cardiology in the Young , Volume 25 , Issue 8: HeartWeek 2015 , December 2015 , pp. 1579 - 1583
Copyright
© Cambridge University Press 2015 

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