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Development of a clinician–parent home care education intervention

Published online by Cambridge University Press:  30 August 2019

Blake Lane ,
Samuel P. Hanke ,
Barbara Giambra ,
Nicolas L. Madsen  and
Sandra L. Staveski
Blake Lane*
Affiliation:
Live Well Collaborative, Cincinnati, OH, USA College of Design, Architecture, Art & Planning, University of Cincinnati, Cincinnati, OH, USA
Samuel P. Hanke
Affiliation:
Department of Research in Patient Services, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
Barbara Giambra
Affiliation:
Department of Research in Patient Services, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
Nicolas L. Madsen
Affiliation:
Department of Heart Institute, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
Sandra L. Staveski
Affiliation:
Department of Family Health Care Nursing, University of California San Francisco, San Francisco, CA, USA
*
Author for correspondence: Blake Lane, PhDc, Live Well Collaborative, 2900 Reading Road, Suite 350, Cincinnati, OH 45206, USA. E-mails: [email protected]; [email protected]
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Abstract

Objectives:

To examine the strengths and opportunities for improvement of current home care education practices to inform the development of the Home Care for Heart Health intervention, and to develop a web-based intervention for parents and clinicians with complimentary print materials that could provide the right education at the right time to foster a safer transition from hospital to home.

Methods:

An inter-professional focus group of parents, clinicians, and designers was formed to co-create a home care education intervention for parents of children with congenital heart disease (CHD) and their care team. We used the Integrated New Product Development process model created by Jonathon Cagan and Craig Vogel at Carnegie Mellon University to develop the intervention. This process model is a way of thinking that combines horizontal and inter-disciplinary teams, stakeholder-centric focus, and a system of qualitative discovery and development evolving towards quantitative methods of refinement.

Results:

Our team developed the Home Care for Heart Health intervention. The evidenced-based intervention includes a quick reference guide for parents of children with CHD, an accompanying app, family-friendly pathways, and clinician education.

Conclusion:

Using an inter-professional approach, our team of clinicians, parents, and design experts were able to co-create a clinician–parent home care education intervention with broad application and lifelong relevance to the Congenital Heart Disease Community.

Practice Implications:

Our intervention has the potential to be used as a model for other home care education interventions for parents of children with chronic illnesses.

Keywords

Parent home care educationdischarge educationdesign-thinking methodology
Type
Original Article
Information
Cardiology in the Young , Volume 29 , Issue 10 , October 2019 , pp. 1230 - 1235
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Copyright
© Cambridge University Press 2019 

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