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Assessing the generalisability of the Pediatric Cardiac Quality of Life Inventory in the United Kingdom

Published online by Cambridge University Press:  26 February 2013

Jo Wray ,
Kate Brown ,
Rodney Franklin ,
Amy Cassedy  and
Bradley S. Marino
Jo Wray*
Affiliation:
Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom Royal Brompton and Harefield NHS Foundation Trust, London, United Kingdom
Kate Brown
Affiliation:
Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom
Rodney Franklin
Affiliation:
Royal Brompton and Harefield NHS Foundation Trust, London, United Kingdom
Amy Cassedy
Affiliation:
Cincinnati Children's Hospital Medical Center, Cincinnati, United States of America
Bradley S. Marino
Affiliation:
Cincinnati Children's Hospital Medical Center, Cincinnati, United States of America
*
Correspondence to: Dr J. Wray, Cardiorespiratory Department, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London WC1N 3JH, United Kingdom. Tel: +020 78298630; Fax: +020 78138440; E-mail: [email protected]
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Abstract

Purpose

To demonstrate the generalisability of the Pediatric Cardiac Quality of Life Inventory in the United Kingdom.

Methods

Children and adolescents with heart disease were recruited from three tertiary paediatric cardiac centres in the United Kingdom and completed the Pediatric Cardiac Quality of Life Inventory. Item response option variability, total and subscale scores, patterns of correlation, and internal consistency were compared between the three sites.

Results

A total of 1537 participants – 768 children/adolescents and 769 parents – were evaluated from the three sites. Patterns of item response option variability were similar and acceptable for all samples – child, adolescent, parent of child, and parent of adolescent. Internal consistency was high (0.82–0.96) for all samples from each site, and item–subscale, subscale–subscale, subscale–total, and item–total correlations were moderate to excellent for each centre. Comparisons of patterns of subscale and total score correlations between the three sites revealed no significant differences.

Conclusion

Scores on the Pediatric Cardiac Quality of Life Inventory are generalisable in the United Kingdom, supporting the use of this measure for multi-centre studies of health-related quality of life of children and adolescents with heart disease.

Keywords

Health-related quality of lifevaliditycongenitalacquired
Type
Original Articles
Information
Cardiology in the Young , Volume 24 , Issue 2 , April 2014 , pp. 220 - 228
Copyright
Copyright © Cambridge University Press 2013 

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