Hostname: page-component-586b7cd67f-vdxz6 Total loading time: 0 Render date: 2024-11-28T06:06:32.407Z Has data issue: false hasContentIssue false
  • English
  • Français

Nurse and parent perceptions associated with the Parent Education Discharge Instruction Programme in southern India

Published online by Cambridge University Press:  12 October 2015

Sandra L. Staveski ,
V. P Parveen ,
Sai B. Madathil ,
Susan Kools  and
Linda S. Franck
Sandra L. Staveski*
Affiliation:
Cincinnati Children’s Hospital Medical Center, Research in Patient Services, Heart Institute, Cincinnati, Ohio, United States of America
V. P Parveen
Affiliation:
Amrita Institute of Medical Sciences, Ponekkara, Kochi, Kerala, India
Sai B. Madathil
Affiliation:
Amrita Institute of Medical Sciences, Ponekkara, Kochi, Kerala, India
Susan Kools
Affiliation:
Family, Community, and Mental Health Systems, University of Virginia School of Nursing, Charlottesville, Virginia, United States of America
Linda S. Franck
Affiliation:
Family Health Care Nursing, University of California San Francisco School of Nursing, San Francisco, California, United States of America
*
Correspondence to: S. L. Staveski, RN, PhD, Cincinnati Children’s Hospital Medical Center, Research in Patient Services, Heart Institute, 3333 Burnet Avenue, Cincinnati, Ohio 45229-3026, United States of America. Tel: 510 599 3994; Fax: 513 636 9765; E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Introduction

Parents of children with CHD require home care knowledge in order to ensure their child’s health and safety, but there has been no research on how to achieve this in a resource-constrained environment. The aim of this investigation was to compare parent and nurse perceptions of parent readiness for discharge after a structured nurse-led parent discharge teaching programme in India.

Materials and methods

A pre-post design was used to compare parent and nurse perceptions of parental uncertainty and readiness for hospital discharge before and after introduction of the parent education discharge instruction programme in a paediatric cardiac surgery unit.

Results

Parents (n=68) and nurses (n=63) participated in this study. After the discharge programme implementation, parents had less uncertainty (M=93.3 SD=10.7 versus M=83.6 SD=4.9, p=0.001) and ambiguity (M=40.8 SD=6.8 versus M=33.4 SD=3.7, p=0.001) about their child’s illness; however, they rated themselves as being less able to cope with the transition to home (M=24.3 SD=4.1 versus 23.1 SD=2.2, p=0.001) and as having less support at home than that required (M=31.5 SD=9.9 versus 30.9 SD=3.2, p=0.001). Parents’ and nurses’ perception of parental readiness for hospital discharge were more closely aligned after implementation of a nurse-led discharge programme (r=0.81, p=0.001).

Conclusion

The results of this study suggest that the discharge programme had positive and negative effects on parental perceptions of uncertainty and readiness for discharge. Further examination is warranted to delineate these influences and to design methods for supporting parents during the transition to home care.

Keywords

Parent educationcardiac surgerydischarge
Type
Original Articles
Information
Cardiology in the Young , Volume 26 , Issue 6 , August 2016 , pp. 1168 - 1175
Check for updates
Copyright
© Cambridge University Press 2015 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1. Lerret, S. Discharge readiness: an integrative review focusing on discharge following pediatric hospitalization. J Pediatr Nurs 2009; 14: 245–255.Google Scholar
2. Sparacino, PS, Tong, EM, Messias, DK, Foote, D, Chesla, C, Gilliss, CL. The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart Lung 2007: 187–195.Google Scholar
3. Cua, YM, Kripalani, S. Medication use in the transition from hospital to home. Ann Acad Med Singapore 2008; 37: 136–141.CrossRefGoogle ScholarPubMed
4. Dewalt, DA, Hink, A. Health literacy and child outcomes: a systematic review of the literature. Pediatrics 2009; 124: S265–S274.Google Scholar
5. Franck, LS, Mcquillan, A, Wray, J, Grocott, MPW, Goldman, A. Parent stress levels during children’s hospital recovery after congenital heart surgery. Pediatr Cardiol 2010; 31: 961–968.Google Scholar
6. Curley, MAQ. Mutuality – an expression of nursing presence. J Pediatr Nurs 1997; 12: 208–213.Google Scholar
7. Staveski, SL, Zheleva, B, Paul, R, et al. Pediatric cardiac surgery parent education discharge instruction (PEDI) program: a pilot study. World J Pediatr Congenit Heart Surg 2105; 6: 18–25.Google Scholar
8. Mishel, MH. Parents’ perception of uncertainty concerning their hospitalized child. Nurs Res 1983; 32: 324–330.Google Scholar
9. Weiss, ME, Johnson, NL, Malin, S, Jerofke, T, Lang, C, Sherburne, E. Readiness for discharge in parents of hospitalized children. J Pediatr Nurs 2008; 23: 282–295.CrossRefGoogle ScholarPubMed
10. Lerret, S, Weiss, ME. How ready are they? Parents of pediatric solid organ transplant recipients and the transition from hospital to home following transplant. Pediatr Transplant 2011; 15: 606–616.CrossRefGoogle ScholarPubMed
11. Mishel, MH. The measurement of uncertainty in illness. Nurs Res 1981; 30: 258–263.Google Scholar
12. Mishel, MH. Uncertainty in acute illness. Ann Rev Nurs Res 1997; 15: 57–80.Google Scholar
13. Liu, YM, Yeh, CH. Pediatric oncology: the use of cluster analysis to examine maternal concerns. Oncol Nurs Forum 2010; 37: E304–E311.Google Scholar
14. Sanatacroce, SJ. Measuring parental uncertainty during diagnosis phase of serious illness in a child. J Pediatr Nurs 2001; 16: 3–12.Google Scholar
15. Rai, K, Supriva, S, Hedge, AM. Oral health status of children with congenital heart disease and the awareness, attitude and knowledge of their parents. J Clin Pediatr Dent 2009; 33: 315–318.Google Scholar
16. Arya, B, Glickstein, J, Levasseur, SM, Williams, IA. Parents of children with congenital heart disease prefer more information than cardiologists provide. Congenit Heart Dis 2012; 8: 78–85.CrossRefGoogle ScholarPubMed
17. Wray, J, Maynard, L. The needs of families of children with heart disease. JDBP 2006; 27: 11–17.Google Scholar
18. Yang, HL, Chen, YC, Mao, HC, Gau, BS, Wang, JK. Effect of systematic nursing discharge plan on mothers’ knowledge and confidence in caring for infants with congenital heart disease at home. J Formos Med Assoc 2004; 103: 47–52.Google Scholar
19. Lerret, SM, Weiss, ME, Stendahl, GL, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant 2015; 19: 118–129.Google Scholar
20. Werner, H, Latal, B, Buechel, EV, Beck, I, Landholt, MA. The impact of an infant’s severe congenital heart disease on the family: a prospective cohort study. Congenit Heart Dis 2013: 1–7.Google Scholar
21. Fincher, W, Shaw, J, Ramelet, A. The effectiveness of a standardized preoperative preparation in reducing child and parent anxiety: a single-blind randomized controlled trial. J Clin Nurs 2012; 21: 946–955.Google Scholar
22. Chahal, N, Manlhiot, C, Colapinto, K, Van Alphen, J, McCrindle, BW, Rush, J. Association between parental anxiety and compliance with preoperative requirements for pediatric outpatient surgery. J Pediatr Health Care 2009; 23: 372–377.CrossRefGoogle ScholarPubMed
23. Stinson, J, McKeever, PS. Mothers’ information needs related to caring for infants at home following heart surgery. J Pediatr Nurs 1995; 10: 48–57.Google Scholar
24. Smith, L, Daughtrey, H. Weaving the seamless web of care: an analysis of parents’ perceptions of their needs following discharge of their child from hospital. J Adv Nurs 2000; 31: 812–820.Google Scholar
25. Weiss, M, Yakusheva, O, Bobay, K. Nurse and patient perceptions of discharge readiness in relation to postdischarge utilization. Med Care 2010; 48: 482–486.Google Scholar