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The Nature of Relationships in Alternative Dementia Care Environments*

Published online by Cambridge University Press:  31 March 2010

Elaine C. Wiersma  and
Alison Pedlar
Elaine C. Wiersma*
Affiliation:
Lakehead University
Alison Pedlar
Affiliation:
University of Waterloo
*
Requests for offprints should be sent to:/Les demandes de tirés-à-part doivent être adressées à: Elaine C. Wiersma, Master of Public Health Program, Lakehead University, 955 Oliver Road, Thunder Bay, ON P7B 5E1, ([email protected])
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Abstract

The purpose of this exploratory study was to examine the experiences of older adults with dementia while they were in long-term care and while they were in a summer-camp setting. Participant observation and interviews took place in both settings to gain an understanding of the experiences of seven residents of the long-term care facility. In the participants' experiences in the two contrasting environments, two types of relationships were evident—functional and supportive. Differing strategies were employed by residents within these two types of relationships. Notably, in supportive relationships, participants used humour and reminiscing in ways that reflected the depth of the relationship. At summer camp, in a more open and less constrained environment, relationships were dramatically altered and included elements of equality; personal interactions; and attention, reciprocity, and trust.

Résumé

Avec l'aide de sept entrevues et l'observation de terrain conduite dans deux contextes contrastes – un établissement spécialisé pour personnes âgées et un camp de vacances d'été, nous avons constatez dans cette enquête d'analyse, que deux stratégies différentes sont utilisées par des hommes âgés souffrant de démence. Le premier est un rapport fonctionnel, le deuxième est un rapport de support. Notamment, dans des rapports de support, les participants ont employé l'humour et la nostalgie. Tandis que dans un contexte plus sociable et dépourvu de règlements (le camp de vacances par exemple), les rapports ont changé, et inclus des principes d'égalité, d'interactions personnelles, la réciprocité, et de la confiance.

Keywords

vieillissementdémenceenvironnements alternatifssoin de longue duréerapports entre résidant et personnelagingalternative environmentsdementialong-term careresident-staff relationships
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 27 , Issue 1 , Spring/Printemps 2008 , pp. 101 - 108
Copyright
Copyright © Canadian Association on Gerontology 2008

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Footnotes

*

This research was made possible by a Practice-Based Research Award from the Sunnybrook and Women's College Health Sciences Centre. The researchers would like to thank the staff sincerely, particularly Bernice Miller, Julie Pepin, and Leslie Stephens for their input and contribution to the research. Most importantly, the researchers would, however, like to thank the residents who participated in the research.

References

Brooker, D. (2005). Dementia care mapping: A review of the research literature. Gerontologist, 45, 11–18.CrossRefGoogle ScholarPubMed
Donnenwerth, G.V., & Petersen, L.R. (1992). Institutionalization and well being among the elderly. Sociological Inquiry, 62(4), 437–449.CrossRefGoogle Scholar
Dupuis, S.L., Smale, B.J.A., & Wiersma, E. (2005). Creating open environments in long-term care settings: An examination of influencing factors. Therapeutic Recreation Journal, 39(4), 277–298.Google Scholar
Gieryn, T.F. (2000). A space for place in sociology. Annual Review of Sociology, 26, 463–496.CrossRefGoogle Scholar
Groger, L. (1995). A nursing home can be a home. Journal of Aging Studies, 9(2), 137–153.CrossRefGoogle Scholar
Henderson, J.N. (1995). The culture of care in a nursing home: Effects of a medicalized model of long-term care. In Henderson, J.N., & Vesperi, M.D. (Eds.), The culture of long-term care: Nursing home ethnography (pp. 37–54). Westport, CT: Bergin and Garvey.Google Scholar
Kahn, D.L. (1999). Making the best of it: Adapting to the ambivalence of a nursing home environment. Qualitative Health Research, 9(1), 119–132.CrossRefGoogle Scholar
Kirby, S., & McKenna, K. (1989). Experience research social change: Methods from the margins. Toronto, ON: Garamond Press.Google Scholar
Kitwood, T. (1997). Dementia reconsidered: The person comes first. Philadelphia, PA: Open University Press.Google Scholar
Kontos, P.C. (2004). Ethnographic reflections on selfhood, embodiment and Alzheimer's disease. Ageing and Society, 24, 829–849.CrossRefGoogle Scholar
Kontos, P.C. (2005). Embodied selfhood in Alzheimer's disease: Rethinking person-centred care. Dementia, 4, 553–570.CrossRefGoogle Scholar
Kuhn, D., Kasayka, R.E., & Lechner, C. (2002). Behavioral observations and quality of life among persons with dementia in 10 assisted living facilities. American Journal of Alzheimer's Disease and Other Dementias, 17(5), 291–298.CrossRefGoogle ScholarPubMed
McAllister, C.L., & Silverman, M.A. (1999). Community formation and community roles among persons with Alzheimer's disease: A comparative study of experiences in a residential Alzheimer's facility and a traditional nursing home. Qualitative Health Research, 9(1), 65–85.CrossRefGoogle Scholar
Parmalee, P.A., Katz, I.R., & Lawton, M.P. (1992a). Incidence of depression in long-term care settings. Journal of Gerontology, 47(6), M189–M196.CrossRefGoogle Scholar
Parmalee, P.A., Katz, I.R., & Lawton, M.P. (1992b). Depression and mortality among institutionalized aged. Journal of Gerontology, 47(1), P3–P10.CrossRefGoogle Scholar
Paterniti, D.A. (2000). The micropolitics of identity making in adverse circumstance: A study of identity making in a total institution. Journal of Contemporary Ethnography, 29, 93–119.CrossRefGoogle Scholar
Paterniti, D.A. (2003). Claiming identity in a nursing home. In Gubrium, J.F., & Holstein, J.A. (Eds.), Ways of Aging (pp. 58–74). Malden, MA: Blackwell.CrossRefGoogle Scholar
Sabat, S. (2001). The experience of Alzheimer's disease: Life through a tangled veil. Malden, MA: Blackwell.Google Scholar
Sabat, S. (2006). Mind, meaning, and personhood in dementia: The effects of positioning. In Hughes, J.C., Louw, S.J., & Sabat, S.R. (Eds.), Dementia: Mind, meaning and the person (pp. 287–302). Oxford: University of Toronto Press.Google Scholar
Slama, C.A., & Bergman-Evans, B. (2000). A troubling triangle: An exploration of loneliness, helplessness, and boredom of residents of a veterans home. Journal of Psychosocial Nursing, 38(12), 36–43.Google ScholarPubMed
Strauss, A.L. (1987). Qualitative analysis for social scientists. New York: Cambridge University Press.CrossRefGoogle Scholar
Sugarman, J., Cain, C., Wallace, R., & Welsh-Bohmer, K.A. (2001). How proxies make decisions about research for patients with Alzheimer's disease. Journal of American Geriatrics Society, 49, 1110–1119.CrossRefGoogle ScholarPubMed
Sullivan, A., Pedlar, A., & Miller, B. (2002). Experiencing leisure on a cognitive support unit. Society and Leisure, 25(2), 443–471.Google Scholar
Tappen, R.M., Williams, C., Fishman, S., & Touhy, T. (1999). Persistence of self in advanced Alzheimer's disease. Journal of Nursing Scholarship, 31(2), 121–125.Google ScholarPubMed
Taylor, S.J., & Bogdan, R. (1998). Introduction to qualitative research methods (3rd ed.). New York: John Wiley.Google Scholar
Vittoria, A.K. (1998). Preserving selves: Identity work and dementia. Research on Aging, 20(1), 91–136.CrossRefGoogle Scholar
Vittoria, A.K. (1999). “Our own little language”: Naming and the social construction of Alzheimer's disease. Symbolic Interaction, 22, 361–384.CrossRefGoogle Scholar