Hostname: page-component-cd9895bd7-fscjk Total loading time: 0 Render date: 2024-12-26T18:33:49.123Z Has data issue: false hasContentIssue false

Mapping a Research Agenda for Home Care Safety: Perspectives from Researchers, Providers, and Decision Makers*

Published online by Cambridge University Press:  25 May 2011

Marilyn Macdonald*
Affiliation:
School of Nursing at Dalhousie University
Ariella Lang
Affiliation:
Research Scientist Victorian Order of Nurses Canada
Jo-Anne MacDonald
Affiliation:
St. F.X. University
*
Correspondence and requests for offprints should be sent to / La correspondance et les demandes de tirés-à-part doivent être adressées à: Marilyn Macdonald, R.N., Ph.D. Associate Professor School of Nursing at Dalhousie University Halifax, Nova Scotia ([email protected])

Abstract

The purpose of this qualitative interpretive design was to explore the perspectives of researchers, health care providers, policy makers, and decision makers on key risks, concerns, and emerging issues related to home care safety that would inform a line of research inquiry. Defining safety specifically in this home care context has yet to be described; consequently, gaining insight from various stakeholders about safety issues relevant to the home care sector is necessary in order to inform strategic directions for future research. To begin to map a research agenda, a three-part environmental scan was conducted: (a) a pilot study with home care recipients and providers; (b) key informant interviews with researchers, health care providers, policy makers, and decision makers; and (c) a review of literature in three topic areas. Only the results of the key informant interviews are reported here.

Résumé

Le but de cette conception qualitative et interprétative était d’examiner les perspectives des chercheurs, des pourvoyeurs de soins de santé et et des décideurs aux sujets des risques principaux, des préoccupations et des problèmes émergents rattachées à la sécurité de soins à domicile qui informerait une ligne d’enquête de recherche. La sécurité, tel qu’elle s’applique spécifiquement à ce context des soins à domicile, n’a pas encore été définie. Par conséquent, afin de profiter de diverses parties prenantes sur les questions de securité relatives aux soins à domicile est nécessaire afin d’informer les orientations stratégiques pour la recherche future. Afin de commencer à tracer un programme de recherche, une analyse en trois parties de l’environnement a été realisée: (a) une étude pilote avec les bénéficiaires et les fournisseurs de soins à domicile; (b) des entretiens avec des informateurs clés, les chercheurs, les fournisseurs de soins de santé, et les décideurs; et (c) une revue de la littérature dans trois domaines thématiques. Seulement les résultats des entrevues des informateurs clés sont présentés ici.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2011

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

*

This study was funded by the Canadian Patient Safety Institute (CPSI). Ariella Lang is currently supported as a Chercheure Boursière by Fonds de la Recherche en Santé Québec (FRSQ). We extend thanks to Serena Corsini-Munt for her help as project coordinator and for her skill in helping with the key informant interviews. We thank Farraminah Francis for her hard work and help with the analysis of the interview transcripts. We also thank the other members of the research team – Jan Storch, Lynn Stevenson, Susan Donaldson, Hélène LaCroix, and the advisory committee – for their time, support, and feedback. The authors declare that they have no competing interests. MM prepared the research proposal, conducted interviews, analyzed the data, and revised the manuscript as needed for publication. AL prepared the research proposal, conducted interviews, analyzed the data, and edited several editions of the final manuscript. JM prepared the initial draft manuscript for submission.

References

Angus, J., Kontos, P., Dyck, I., McKeever, P., & Poland, B. (2005). The personal significance of home: Habitus and the experience of receiving long-term home care. Sociology of Health and Illness, 27(2), 161187.CrossRefGoogle ScholarPubMed
Ballestine, N. (2008). Polypharmacy in the elderly: Maximizing benefit, minimizing harm. Critical Care Nursing Quarterly, 31(1), 4045.Google Scholar
Banning, M. (2009). A review of interventions used to improve adherence to medication in older people. International Journal of Nursing Studies, 26, 15051515.Google Scholar
Baumrucker, S., Sheldon, J., Stolick, M., Oertli, K., Harrington, D., Vandekeift, G., et al. . (2009). Providing care in an unacceptable environment. American Journal of Hospice and Palliative Medicine, 26(6), 493499.CrossRefGoogle Scholar
Bussing, A., & Hoge, T. (2004). Aggression and violence against home care workers. Journal of Occupational Health Psychology, 9(3), 206219.Google Scholar
Canadian Home Care Association (CHCA) (2008). Home care the next essential service: Meeting the needs of our aging population. Mississauga, ON: Canadian Home Care Association.Google Scholar
Canadian Nurses Association (2009). Maximizing health human resources: Valuing unregulated health workers. Ottawa, ON: Canadian Nurses Association. Retrieved fromhttp://www.cna-nurses.ca/cna/documents/pdf/publications/UHW_Final_Report_e.pdfGoogle Scholar
Carretero, S., Garce, J., Rodenas, F., & Sanjose, V. (2009). The informal caregiver’s burden of dependent people: Theory and empirical review. Archives of Gerontology and Geriatrics, 49, 7479.CrossRefGoogle ScholarPubMed
Coughlin, J., Pope, J., & Leedle, B. (2006). Old age, new technology, and future innovations in disease management and home health care. Home Health Care Management and Practice, 18(3), 196207.CrossRefGoogle Scholar
Denholm, E. (2009). What’s so special about home care? Nurse Leader, 7(4), 3537.Google Scholar
Erikson, J., & Millar, S. (2005). Caring for patient while respecting their privacy: Renewing our commitment. Online Journal of Issues in Nursing, 10(2), 113. Retrieved fromwww.nursingworld.org/ojin/topic27/tpc27_1.htmGoogle Scholar
Exley, C., & Allen, D. (2007). A critical examination of home care: End of life care as an illustrative case. Social Science and Medicine, 65, 23172327.Google Scholar
Fiske, S. (2004). Developing a program of research. In Sansone, C., Morf, C., & Panter, A. (Eds.). Handbook of methods in social psychology (4th ed.) (pp.7190). Thousand Oaks, CA: Sage Publications.Google Scholar
Forbes, D., Markle-Reid, M., Hawranik, P., Peacock, S., Kingston, D., Morgan, D., et al. . (2008). Availability and acceptability of Canadian home and community-based services: Perspectives of family caregivers of persons with dementia. Health Care Services Quarterly, 27(2), 7599.Google Scholar
Gershon, R., Pearson, J., Sherman, M., Samar, S., Canton, A., & Stone, P. (2009). The prevalence and risk factors for percutaneous injuries in registered nurses in the home health care sector. American Journal of Infection Control, 37, 525533.CrossRefGoogle ScholarPubMed
Gorwitz, R., Fridkin, S., & Worowski, K. (2008). More challenges in the prevention and management of community-associated, methicillin-resistant staphylococcus aureus skin disease. Annals of Internal Medicine, 148(4), 310313.Google Scholar
Grossman, S., & DeBartolomeo, D. (2008). Managing the threat of methicillin-resistant staphylococcus aureus in home care. Home Healthcare Nurse, 26(6), 356364.CrossRefGoogle ScholarPubMed
Hall Ellenbecker, C., Frazier, S., & Verney, S. (2004). Nurses’ observations and experiences of problems and adverse effects of medication management in home care. Geriatric Nursing, 25(3), 164170.CrossRefGoogle Scholar
Health Canada (2004). Home and community care. Ottawa, ON, Canada: Author. Retrieved from Health Canada website: http://www.hc-sc.gc.ca/hcs-sss/home-domicile/commun/index-eng.phpGoogle Scholar
Hogh, A., Sharipova, M., & Borgm, V. (2008). Incidence and recurrent work-related violence towards healthcare workers and subsequent health effects. A one-year follow-up study. Scandinavian Journal of Public Health, 36, 706712.CrossRefGoogle ScholarPubMed
Kenneley, I. (2010). Infection control and the home care environment. Home Health Care Management and Practice, 22(3), 195201.CrossRefGoogle Scholar
Lang, A., & Edwards, N. (2006). Safety in home care: Broadening the patient safety agenda to include home care services. Edmonton, AB, Canada: Canadian Patient Safety Institute (CPSI).Google ScholarPubMed
Lehoux, P., Pineault, R., Richard, L., St. Arnaud, J., Law, S., & Rosendal, H. (2003). Issues in high-tech home care: Sources of information and staff training in Quebec primary care organizations and relationships with hospitals. International Journal of Healthcare Quality Assurance, 16(1), 3746.Google Scholar
Leiss, J., Lyden, J., Mathews, R., Sitzman, K., Vanderpuije, A., May, D., et al. . (2009). Blood exposure incidence rates from the North Carolina study of home care and hospice nurses. American Journal of Industrial Medicine, 52, 99104.CrossRefGoogle ScholarPubMed
Levine, C., & Zukerman, C. (2000). Hands on/hands off: Why health care professionals depend on families but keep them at arm’s length. Journal of Law, Medicine, and Ethics, 28(1), 518.Google Scholar
Luker, K.A., Austin, L., Caress, A., & Hallett, C.E. (2000). The importance of ‘knowing the patient’: Community nurses’ constructions of quality in providing palliative care. Journal of Advanced Nursing, 31(4), 775782.Google Scholar
Macdonald, M. (2008). Technology and its effect on knowing the patient. Clinical Nurse Specialist, 22(3), 149155.Google Scholar
McGoldrick, M. (2008). Infection prevention and control: Achieving a culture of zero tolerance. Home Healthcare Nurse, 26(1), 6768.Google Scholar
McGraw, C., Drennan, V., & Humphrey, C. (2008). Understanding risk and safety in home health care: The limits of generic frameworks. Quality in Primary Care, 16(4), 239248.Google Scholar
Patte, R., Drouvot, V., Quenon, J.L., Denic, L., Briand, V., & Patris, B. (2005). Prevalence of hospital-acquired infections in a home care setting. Journal of Hospital Infection, 59, 148151.CrossRefGoogle Scholar
Payne, M. (2007). Safeguarding adults at end of life: Audit and case analysis in a palliative care setting. Journal of Social Work in End-Of-Life and Palliative Care, 3(4), 3146.CrossRefGoogle ScholarPubMed
Proot, I., Abu-Saad, H., Crebolder, H., Goldsteen, M., Luker, K., & Widdershoven, G. (2003). Vulnerability of family caregivers in terminal palliative care at home: Balancing between burden and capacity. Scandinavian Journal of Caring Sciences, 17(2), 113121.CrossRefGoogle ScholarPubMed
Radwin, L.E. (1996). Knowing the patient: A review of research on an emerging concept. Journal of Advanced Nursing, 23, 11421146.Google Scholar
Reynolds, A. (2009). Patient-centered care. Radiologic Technology, 81(2), 133147.Google Scholar
Ski, C., & O’Connell, B. (2007). Stroke: The increasing complexity of carer needs. Journal of Neuroscience Nursing, 39(3), 172179.CrossRefGoogle ScholarPubMed
Tanner, C., Benner, P., Chesla, C. & Gordon, D. (1993). The phenomenology of knowing the patient. Image: The Journal of Nursing Scholarship, 25, 273280.Google Scholar
Thorne, S. (2008). Interpretive description. Walnut Creek, CA: Left Coast Press.Google Scholar
Thorne, S., Reimer Kirkham, S., & MacDonald-Emes, J. (1997). Interpretive description: A noncategorical qualitative alternative for developing nursing knowledge. Research in Nursing and Health, 20, 169177.3.0.CO;2-I>CrossRefGoogle ScholarPubMed
Tracey, S., Drummond, N., Ferris, L., Globerman, J., Hebert, P., Pringle, D., et al. . (2004). To tell or not to tell? Professional and lay perspectives on the disclosure of personal health information in community-based dementia care. Canadian Journal on Aging, 23(3), 203215.Google Scholar
Xanthopoulou, D., Bakker, A., Dollard, M., Demerouti, E., Schaufeli, W., Taris, T., et al. . (2007). When do job demands particularly predict burnout? Journal of Managerial Psychology, 22(8), 766786.Google Scholar
Zanoni, J., Kauffman, K., McPhaul, K., Nickels, L., Hayden, M., Glassman, M., et al. . (2007). Personal care assistants and blood exposure in the home environment: Focus group findings. Progress in Community Health Partnerships: Research, Education, and Action, 1(2), 125131.Google Scholar