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Long-Term Care Residents with Cancer and their Health Care Providers Reflect on Hope*

Published online by Cambridge University Press:  25 July 2012

Maggie Gibson  and
Eunice Gorman
Maggie Gibson*
Affiliation:
St. Joseph’s Health Care London
Eunice Gorman
Affiliation:
King’s University College
*
†Correspondence and requests for offprints should be sent to / La correspondance et les demandes de tirés-à-part doivent être adressées à: Maggie Gibson, Ph.D., C.Psych. Veterans Care Program St. Joseph’s Health Care London 801 Commissioners Road East London, Ontario N6C 5J1 ([email protected])
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Abstract

This study examined hope in long-term care residents with cancer from the perspectives of both residents and health care providers (HCPs). Clinical data established that the prevalence of a cancer diagnosis in the study facility (15%) was similar to other estimates in the literature. Eight experienced HCPs were interviewed. Ten residents with a cancer diagnosis were interviewed, and they completed the Herth Hope Index (HHI). Dimensions of hope and contextual factors that shape hope emerged as themes for both HCPs and residents, but reflected their different perspectives. HCPs identified hope as integral to care. HHI scores were high, indicating residents were generally hopeful. The study findings suggest that for the small but complex subgroup of long-term care (LTC) residents who have a diagnosis of cancer, hope is not lost, but rather it is relevant, nuanced, and possible to attain.

Résumé

Cette étude a examiné l’espoir parmi les résidents avec le cancer en soins de longue durée et a évalué les points de vue des résidents et aussi des prestataires de soins de santé (PSS). Les données cliniques ont établi que la prévalence d’un diagnostic de cancer dans l’établissement d’étude (15%) était semblable à d’autres estimations dans la littérature. On a fait passer une entrevue parmi huit PSS experimentés. Dix résidents avec un diagnostic de cancer ont été interrogés, et ils ont complété l’index d’espoir Herth (IEH). Les dimensions de l’espoir et les facteurs contextuels qui forment l’espoir sont manifestés comme des thèmes, et pour less PSS et pour les résidents, mais reflétaient leurs points de vue différents. En tant que partie intégrante des soins, l’espoir était un thème pour PSS. Les scores d’IEH étaient élevés, ce qui indique que les résidents étaient généralement optimistes. Les résultats de l’étude suggèrent que, pour le sous-groupe petit mais complexe de résidents en soins de longue durée qui a un diagnostic de cancer, l’espoir n’est pas perdu, mais plutôt il est pertinent, nuancé et possible d’atteindre.

Keywords

soins de longue duréecancerl’espoiraînéprestataires de soins de santélong-term carecancerhopeolder adultshealth care providers
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 31 , Issue 3 , September 2012 , pp. 285 - 293
Copyright
Copyright © Canadian Association on Gerontology 2012

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Footnotes

*

We thank the veterans, family members, health care providers, support personnel, and administrators who facilitated this study.

References

Alzheimer Society of Canada. (2011). Guidelines for care: Person-centred care of people with dementia living in care homes. Toronto, Ontario, Canada: Author. Retrieved from http://www.alzheimer.ca/english/care/framework.pdf.Google Scholar
Beach, M.C., & Inui, T. (2006). Relationship-centered care. A constructive reframing. Journal of General Internal Medicine, 21(Suppl. 1), 3–8.CrossRefGoogle Scholar
Brandt, H.E., Deliens, L., Ooms, M.E., van der Steen, J.T., van der Wal, G., & Ribbe, M.W. (2005). Symptoms, signs, problems, and diseases of terminally ill nursing home patients: A nationwide observational study in the Netherlands. Archives of Internal Medicine, 165(3), 314–320.CrossRefGoogle ScholarPubMed
Buchanan, R.J., Barkley, J., Wang, S., & Kim, M. (2005). Analyses of nursing home residents with cancer at admission. Cancer Nursing, 28(5), 406–414.CrossRefGoogle ScholarPubMed
Chen, J.H., Chan, D.C., Kiely, D.K., Morris, J.N., & Mitchell, S.L. (2007). Terminal trajectories of functional decline in the long-term care setting. Journal of Gerontology A: Biological Sciences and Medical Sciences, 62(5), 531–536.Google ScholarPubMed
Cutcliffe, J.R., & Grant, G. (2001). What are the principles and processes of inspiring hope in cognitively impaired older adults within a continuing care environment? Journal of Psychiatric and Mental Health Nursing, 8(5), 427–436.CrossRefGoogle ScholarPubMed
Duggleby, W., Hicks, C., Nekolaichuk, C., Holtslander, L., Williams, A., & Chambers, T. (2012). Hope, older adults and chronic illness: A metasynthesis of qualitative research. Journal of Advanced Nursing, 68(6), 1211–1223.CrossRefGoogle ScholarPubMed
Duggleby, W., Holtslander, L., Steeves, M., Duggleby-Wendzel, S., & Cunningham, S. (2010). Discursive meaning of hope for older persons with advanced cancer and their caregivers. Canadian Journal of Aging, 29(3), 361–367.CrossRefGoogle ScholarPubMed
Duggleby, W.D., Degner, L., Williams, A., Wright, K., Cooper, D., Popkin, D., et al. . (2007). Living with hope: initial evaluation of a psychosocial hope intervention for older palliative home care patients. Journal of Pain and Symptom Management, 33(3), 247–257.CrossRefGoogle ScholarPubMed
Duggleby, W., & Wright, W. (2005). Transforming hope: How elderly palliative patients live with hope. Canadian Journal of Nursing Research, 37(2), 70–84.Google ScholarPubMed
Eliott, J.A., & Olver, I.N. (2009). Hope, life, and death: A qualitative analysis of dying patients’ talk about hope. Death Studies, 33(7), 609–638.CrossRefGoogle Scholar
Gibson, M., & Gorman, E. (2010). Contextualizing end-of-life care for ageing veterans: Family members’ thoughts. International Journal of Palliative Nursing, 16(7), 339–343.CrossRefGoogle Scholar
Hall, P., Schroder, C., & Weaver, L. (2002). The last 48 hours of life in long-term care: A focused chart audit. Journal of the American Geriatrics Society, 50(3), 501–506.CrossRefGoogle ScholarPubMed
Hatcher, D., Macdonald, J., Bauer, C., & Wilson, C. (1999). Hope, who needs it? A study of hope in older people in a residential care facility. Geriaction, 17(2), 6–12.Google Scholar
Herth, K. (1990). Fostering hope in terminally ill people. Journal of Advanced Nursing, 15(11), 1250–1259.CrossRefGoogle ScholarPubMed
Herth, K. (1992). Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing, 17(10), 1251–1259.CrossRefGoogle ScholarPubMed
Herth, K. (1993). Hope in older adults in community and institutional settings. Issues in Mental Health Nursing, 14(2), 139–156.CrossRefGoogle ScholarPubMed
Hughes, J.C., Bamford, C., & May, C. (2008). Types of centredness in health care: Themes and concepts. Medicine, Health Care and Philosophy, 11(4), 455–463.CrossRefGoogle ScholarPubMed
Morris, J.N., Murphy, K., & Nonemaker, S. (1995). Long-term care resident assessment instrument user’s manual. Version 2.0. Baltimore, MD: Health Care Financing Administration.Google Scholar
National Citizens’ Coalition for Nursing Home Reform. (2006). Culture change in nursing homes: Consumer fact sheet no. 19. Washington, DC: Author. Retrieved from http://www.allhealth.org/briefingmaterials/nccnhrculturechange06-909.pdf.Google Scholar
Touhy, T.A. (2001). Nurturing hope and spirituality in the nursing home. Holistic Nursing Practice, 15(4), 45–56.CrossRefGoogle ScholarPubMed
Westburg, A.G. (2003). Hope, laughter, and humor in residents and staff at an assisted living facility. Journal of Mental Health Counseling, 25(1), 16–32.CrossRefGoogle Scholar
Wiles, R., Cott, C., & Gibson, B.E. (2008). Hope, expectations and recovery from illness: a narrative synthesis of qualitative research. Journal of Advanced Nursing, 64(6), 564–573.CrossRefGoogle ScholarPubMed