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L’après-parents: étude exploratoire sur les perceptions de mères qui vieillissent avec un adulte ayant une déficience intellectuelle

Published online by Cambridge University Press:  17 February 2012

Marc-André Bernard  and
Georgette Goupil
Marc-André Bernard*
Affiliation:
Département de psychologie, Université du Québec à Montréal
Georgette Goupil
Affiliation:
Département de psychologie, Université du Québec à Montréal
*
*La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to : Georgette Goupil, Ph.D. Département de psychologie Université du Québec à Montréal CP 8888, Succ. Centre-Ville, Montréal, QC H3C 3P8 ([email protected])
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Abstract

Families of adults with an intellectual disability (ID) face post-parent transition when they can no longer assume their son’s or daughter’s care. This exploratory study aims to assess the perceptions of 12 mothers (Mage = 65.1; years, SD: 11) sharing a household with an adult with an ID (Mage = 36.9; SD: 11.4)): benefits and constraints of cohabitation, residence transition planning, perceptions and emotions about the future. The results of a questionnaire completed in an interview indicate that several mothers can envision siblings becoming potential caregivers for the future and that the transition generates emotions relating to their son’s or daughter’s welfare. However, participants’ planning of the transition is not advanced in most cases.

Résumé

Les mères d’un adulte ayant une déficience intellectuelle (DI) doivent faire face au moment elles ne peuvent plus assumer la responsabilité de leur enfant. Cette étude exploratoire évalue les perceptions de 12 mères (Mâge=65,1; ans, ÉT: 11) vivant avec leur fils ou leur fille adulte (Mâ=36,9; ÉT: 11,4)) ayant une DI: avantages et contraintes de la cohabitation, planification de la transition à l’extérieur du domicile familial, perceptions sur l’avenir. Les résultats d’un questionnaire complété en entrevue indiquent que plusieurs mères anticipent comme relève la fratrie et que la transition génère des émotions relatives au bien-être de la personne qui a une DI. La planification des mères se révèle aussi peu avancée.

Keywords

intellectual disabilitytransitionafter-parentsdéficience intellectuelletransitionaprès-parents
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 31 , Issue 1 , March 2012 , pp. 65 - 72
Copyright
Copyright © Canadian Association on Gerontology 2012

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References

Références

American Psychiatric Association. (2003). Manuel diagnostique et statistique des troubles mentaux (4e éd., texte révisé). Paris: Masson.Google Scholar
Bighy, C., Bowers, B., et Webber, R. (2010). Planning and decision making about the future care of older group home residents and transition to residential aged care. Journal of Intellectual Disability Research, 55, 777–789.Google Scholar
Chappell, N.L., et Dujela, C. (2008). Caregiving: Predicting at-risk status. Canadian Journal on Aging, 27, 169–179.CrossRefGoogle ScholarPubMed
Chou, Y.-C., Lee, Y.-C., Lin, L.-C., Kröger, T., et Chang, A.-N. (2009). Older and younger family caregivers of adults with intellectual disability: Factors associated with future plans. Intellectual and Developmental Disabilities, 47, 282–294.CrossRefGoogle ScholarPubMed
Findler, L., et Vardi, A. (2009). Psychological growth among siblings of children with and without intellectual disabilities. Intellectual and Developmental Disabilities, 47, 1–12.CrossRefGoogle ScholarPubMed
Freedman, R.I., Krauss, M.W., et Seltzer, M.M. (1997). Aging parents’ residential plans for adult children with mental retardation. Mental Retardation, 35, 114–123.2.0.CO;2>CrossRefGoogle ScholarPubMed
Griffiths, D.L., et Unger, D.G. (1994). Views about planning for the future among parents and siblings of adults with mental retardation. Family Relations, 43, 221–227.CrossRefGoogle Scholar
Hanneman, R., et Blacher, J. (1997). Predicting placement in families who have children with severe handicaps: A longitudinal analysis. American Journal on Mental Retardation, 102, 392–408.2.0.CO;2>CrossRefGoogle Scholar
Heller, T., et Caldwell, J. (2006). Supporting aging caregivers and adults with developmental disabilities in future planning. Mental Retardation, 44, 189–202.CrossRefGoogle ScholarPubMed
Heller, T., et Factor, A. (1991). Permanency planning for adults with mental retardation living with family caregivers. American Journal on Mental Retardation, 96, 163–176.Google ScholarPubMed
Heller, T., et Kramer, J. (2009). Involvement of adult siblings of persons with developmental disabilities in future planning. Intellectual and Developmental Disabilities, 47, 208–219.CrossRefGoogle ScholarPubMed
Joffres, C. (2002). Barriers to residential planning: Perspectives from selected older parents caring for adult offspring with lifelong disabilities. Canadian Journal on Aging, 21, 303–311.CrossRefGoogle Scholar
Krauss, M.W., et Seltzer, M.M. (1997). Life course perspectives on mental retardation research: The case of family caregiving. In Burack, J.A., Hodapp, R.M., & Zigler, E. (Eds.), Handbook on mental retardation and development. Cambridge, NY: Cambridge University Press.Google Scholar
Lacasse-Bédard, J. (2009). Dimensions subjectives de l’expérience de planification d’arrangements de vie futurs chez les parents perpétuels vieillissants vivant avec un adulte présentant un syndrome de Down (Mémoire de maîtrise non publié). Université de Sherbrooke, Sherbrooke, Québec, Canada.Google Scholar
Mencap, (2002). The housing timebomb: The housing crisis facing people with a learning disability and their older parents. London: Campaigns.Google Scholar
Miles, M.B., et Huberman, M.A. (2003). Analyse des données qualitatives. Bruxelles, Belgique: DeBoeck-Wemael.Google Scholar
Navaie-Waliser, M., Spriggs, A., et Feldman, P.H. (2002). Informal caregiving: Differential experiences by gender. Medical Care, 40, 1249–1259.CrossRefGoogle ScholarPubMed
Pruchno, R.A., et Patrick, J.H. (1999) Effects of formal and familial residential plans for adults with mental retardation on their aging mothers. American Journal on Mental Retardation, 104, 38–52.2.0.CO;2>CrossRefGoogle ScholarPubMed
Ravaud, J.-F., et Ville, I. (2003). Les disparités de genre dans le repérage et la prise en charge des situations de handicap. Revue Française des Affaires sociales, 1–2, 226–253.Google Scholar
Rizzolo, M.C., Hemp, R., Braddock, D., et Pomeranz-Essley, A. (2004). The state of the states in developmental disabilities. Washington, DC: American Association on Mental Retardation.Google Scholar
Rizzolo, M.C., Hemp, R., Braddock, D., et Schindler, A. (2009). Family support services for persons with intellectual and developmental disabilities: Recent national trends. Intellectual and Developmental Disabilities, 47, 152–155.CrossRefGoogle ScholarPubMed
Seltzer, M.M., et Heller, T. (1997). Families and caregiving across the life course: Research advances on the influence of context. Family Relations, 46, 321–323.Google Scholar
Smith, G.C., Tobin, S.S., et Fullmer, E.M. (1995). Elderly mothers caring at home for offspring with mental retardation: a model of permanency planning. American Journal on Mental Retardation, 99, 487–499.Google Scholar