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Balancing Formal and Informal Care for Older Persons: How Case Managers Respond

Published online by Cambridge University Press:  29 April 2014

Allie Peckham*
Affiliation:
Institute of Health Policy, Management and Evaluation, University of Toronto
A. Paul Williams
Affiliation:
Institute of Health Policy, Management and Evaluation, University of Toronto
Sheila Neysmith
Affiliation:
Factor-Inwentash Faculty of Social Work, University of Toronto
*
*Correspondence and requests for offprints should be sent to / La correspondance et les demandes de tirés-à-part doivent être adressées à: / Allie Peckham, MSW, Ph.D. Candidate Institute of Health Policy, Management and Evaluation University of Toronto 155 College Street, Suite 425 Toronto, ON M5T 3M6 ([email protected])

Abstract

This study examined how front-line home and community-care (H&CC) case managers view the role of informal caregivers, and the factors that contribute to H&CC managers’ resource allocation decisions. The study research used two methods of data collection: (a) secondary analysis of the results from balance of care (BoC) simulations conducted in nine regions of Ontario, and (b) in-depth follow-up interviews with participating BoC case managers. Results suggest that case managers unanimously agree that the unit of care in the H&CC sector is not confined to the individual, as in acute care, but encompasses both the individual and the caregiver. We found, however, considerable variation in the mix and volume of H&CC services recommended by case managers. We conclude that variability in decision making may reflect the lack of regulations, best practices, and accountability guidelines in the H&CC sector.

Résumé

Cette étude a examiné la façon dont les gestionnaires de cas de soins à domicile et en milieu communautaire dans la première ligne de la profession voir le rôle des aidants naturels et les facteurs qui contribuent aux décisions de ces gestionnaires en ce qui concerne l’allocation des ressources. La recherche pour l’étude a utilisé deux méthodes de collecte de données: (a) l’analyse secondaire des résultats de simulations de la balance de soins, réalisées dans neuf régions de l’Ontario, et (b) des entretiens en profondeur de suivi avec les différents gestionnaires de la B de S. Les résultats indiquent que les gestionnaires de cas sont d’accord à l’unanimité que l’unité des soins dans le secteur SDMC ne se limite pas à l’individu, tel qu’en soins aigus, mais englobe à la fois l’individu et le soignant. Nous avons constaté, cependant, des variations considérables dans l’assortiment et le volume des services SDMC recommandés par les gestionnaires de cas. Nous concluons que la variabilité de la prise de décision peut refléter la manque de réglementation, de meilleures pratiques, et de lignes directrices pour la responsabilité dans le secteur SDMC.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2014 

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References

Brookman, C., Holyoke, P., Toscan, J., Bender, D., & Tapping, B. (2011). Promising practices and indicators for caregiver education and support programs. Markham, ON: Saint Elizabeth Research Department.Google Scholar
Brown, A. (2009). Caring about caregivers: Long-range scenario planning supporting caregiving into 2033. Retrieved fromhttp://theconference.ca/pdf/abrown_Caring_About_Caregivers_Final_Report.pdf Ontario Ministry of Health and Long-term Care.Google Scholar
Canadian Institute for Health Information [CIHI]. (2010). Supporting informal caregivers: The heart of home care. Analysis in brief: Health system performance. Retrieved fromhttps://secure.cihi.ca/free_products/Caregiver_Distress_AIB_2010_EN.pdf.Google Scholar
Central East Local Health Integration Network [LHIN]. (2010). Aging at home: Year 3 presentation to Central East LHIN Board [PDF document]. Retrieved fromhttp://www.centraleastlhin.on.ca/uploadedFiles/Home_Page/Board_of_Directors/Board_Meeting_Submenu/3.1_-_Year_3_AAH_Presentation_to_Board_Feb_16_2010.pdf.Google Scholar
Central Local Health Integration Network [LHIN]. (2007). Integrated health service plan 2007–2010. Retrieved fromhttp://www.centrallhin.on.ca/integratedhealthserviceplan.aspx?ekmensel=e2f22c9a_72_204_btnlink.Google Scholar
Challis, D., & Hughes, J. (2002). Frail old people at the margins of care: Some recent research findings. British Journal of Psychiatry, 180, 126130.CrossRefGoogle ScholarPubMed
Change-Ability Inc. (2009). Caring-about-caregivers: Policy implications of long-range scenario planning. Report to Ontario Ministry of Health and Long-Term Care. Retrieved fromhttp://www.psno.ca/uploads/1/0/1/9/10197937/caring_about_caregivers_policy_implications.pdf.Google Scholar
Change Foundation. (2011). Because this is the rainy day: A discussion paper on home care and informal caregiving for seniors with chronic health conditions. Retrieved fromhttp://www.changefoundation.ca/docs/ElderlyInformal.pdf.Google Scholar
Chou, K. (2000). Caregiver burden: A concept analysis. International Pediatric Nursing, 15(6), 398407.Google Scholar
Clarkson, P., Hughes, J., & Challis, D. (2005). The potential impact of changes in public funding for residential and nursing-home care in the United Kingdom: The residential allowance. Aging and Society, 25(2), 159180.Google Scholar
Denton, M. (1997). The linkages between informal and formal care of the elderly. Canadian Journal on Aging, 16(1), 3050.Google Scholar
Dilworth-Anderson, P., Brummett, B., Goodwin, P., Williams, S., William, R., & Siegler, I. (2005). Effect of race on cultural justification for caregiving. The Journals of Gerontology, 60B, S257S263.Google Scholar
Downe-Wamboldt, B. (1992). Content analysis: Method, applications, and issues. Health Care for Women International, 13(3), 313321.Google Scholar
Drummond, D., & Burleton, D. (2010). Health care needs a checkup. The Toronto Star. Retrieved fromhttp://www.thestar.com/opinion/editorialopinion/article/814981–health-care-needs-a-checkup.Google Scholar
Edelman, P., & Hughes, S. (1990). The impact of community care on provision of informal care to homebound elderly persons. Journal of Gerontology, 45(2), S74S84.CrossRefGoogle ScholarPubMed
Elo, S., & Kyngäs, H. (2007). The qualitative content analysis process. Journal of Advanced Nursing, 62(2), 107115.CrossRefGoogle Scholar
Ettner, S. (1994). The effect of the Medicaid home care benefit on long-term care choices of the elderly. Economic Inquiry, 32, 103128.Google Scholar
Evans, R. (2010). Public health care as sustainable as we want it to be: Claim that Medicare is too costly to maintain is based on economic and political myths. The Toronto Star. Retrieved fromhttp://www.thestar.com/opinion/editorialopinion/article/817249–public-health-care-as-sustainable-as-we-want-it-to-be.Google Scholar
Grant, K., Amaratunga, C., Armstrong, P., Boscoe, M., Pederson, A., & Willson, K. (2004). Caring for/caring about women, home care, and unpaid caregiving. Aurora, ON: Garamound Press.Google Scholar
Health Council of Canada. (2012). Seniors in need, caregivers in distress: What are the home care priorities for seniors in Canada? Retrieved fromhttp://www.healthcouncilcanada.ca/rpt_det_gen.php?id=348.Google Scholar
Hollander, J., Liu, G., & Chappell, N. (2009). Who cares and how much? The imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Healthcare Quarterly, 12(2), 4249.CrossRefGoogle Scholar
Hsiegh, H., & Shannon, S. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15, 12771288.Google Scholar
Karp, A., Ebrahimi, R., Marengoni, A., & Fratiglioni, L. (2010). Informal care and voluntary assistance: A systematic literature review of quantitative and qualitative aspects of assistance to elderly persons in Sweden, Italy, the United Kingdom and Canada. Retrieved from http://www.palliativ.kiev.ua/upload/10.pdf Report. The Social Council.Google Scholar
Keefe, J. (2011). Supporting caregivers and caregiving in an aging Canada. IRPP Study. Retrieved 16 November 2011 fromhttp://www.irpp.org/pubs/IRPPstudy/IRPP_Study_no23.pdf.Google Scholar
Keefe, J., & Rajnovich, B. (2007). To pay or not to pay: Examining underlying principles in the debate on financial support for family caregivers. Canadian Journal on Aging, 26(Suppl. 1), 7790.Google Scholar
Keith, P., Wacker, R., & Collins, S. (2009). Family influence on caregiver resistance, efficacy and use of services in family elder care. Journal of Gerontological Social Work, 52(4), 377400.Google Scholar
Kuluski, K., Williams, AP., Berta, W., & Laporte, A. (2012). Home care or long-term care? Setting the balance of care in urban and rural northwestern Ontario, Canada. Health and Social Care in the Community, 20(4), 438448.Google Scholar
Lai, D. (2007). Cultural predictors of caregiving burden of Chinese-Canadian family caregivers. Canadian Journal on Aging, 26, 133149.Google Scholar
LIHN. (2006). Aging at home strategy. Retrieved 10 June 2008 fromhttp://www.lhins.on.ca/page.aspx?id=880.Google Scholar
Lipsky, M. (1980). Street-level bureaucracy: Dilemmas of the individual in public services. New York: Russell Sage Foundation.Google Scholar
Navaie-Waliser, M., Feldman, P., Gould, D., Levine, C., Kuerbis, A., & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92(3), 409413.Google Scholar
Neumann, B., Crewe, C., Clow, B., & Amaratunga, C. (2007). Priorities for caregivers: Executive Summary. Halifax, NS: Healthy Balance Research Program. Retrieved from http://www.dal.ca/content/dam/dalhousie/pdf/ace-women-health/Healthy%20Balance/ACEWH_hbrp_priorities_for_caregivers.pdf.Google Scholar
Ontario Association of Community Care Access Centres. (2007). Building bridges to better health: Submission to the Standing Committee on Finance and Economic Affairs. Author. Retrieved 11 March 2007 fromhttp://www.oaccac.on.ca/media/Budget_Submission_07.doc.Google Scholar
Organization for Economic Co-operation and Development (OECD). (2010). Long-term care workforce and financing: Initial findings and progress. Paper presented at OECD Conference Centre, 29–30 April 2010, Paris.Google Scholar
Organization for Economic Co-operation and Development (OECD). (2011). The impact of caring on family carers. In: Help wanted? Providing and paying for long-term care. Author. Retrieved from http://www.oecd.org/document/23/0,3746,en_2649_37407_47659479_1_1_1_37407,00.html.Google Scholar
Penning, M. (1990). Receipt of assistance by elderly people: Hierarchical selection and task specificity. The Gerontologist, 30(2), 220227.Google Scholar
Rajnovich, B., Keefe, J., & Fast, J. (2005). Supporting caregivers of dependent adults in the 21st century. CPRN Background Paper. Healthy Balance Research Program. Retrieved from http://www.dal.ca/content/dam/dalhousie/pdf/ace-women-health/Healthy%20Balance/ACEWH_hbrp_supporting_caregivers_of_dependent_adults_21st_century.pdf.Google Scholar
Shaver, S., & Fine, M. (1995). Social policy and personal life: Changes in state, family and community in the support of informal care. Discussion paper no. 65. Social Policy Research Centre (SPRC).Google Scholar
Stabile, M., Laporte, A., & Coyte, P. (2006). Household responses to public home care programs. Journal of Health Economics, 25(4). 674701.Google Scholar
Tucker, S., Hughes, J., Burns, A., & Challis, D. (2008). The balance of care: Reconfiguring services for older people with mental health problems. Aging & Mental Health, 12(1), 8191.Google Scholar
Ward-Griffin, C., & Marshall, V. (2003). Reconceptualizing the relationship between “public” and “private” eldercare. Journal of Aging Studies, 17(2), 189208.Google Scholar
Williams, P., Challis, D., Deber, R., Watkins, J., Kuluski, K., Lum, L., et al. (2009a). Balancing institutional and community based care: Why some older persons can age successfully at home while others require residential long-term care. Healthcare Quarterly, 12, 95105.Google Scholar
Williams, P., Kuluski, K., Watkins, J., Montgomery, R., Lum, J., Ying, A. (2009b). In focus fact sheet: The balance of care. Toronto, ON: Canadian Research Network for Care in the Community. Retrieved from http://www.crncc.ca/knowledge/factsheets/pdf/InFocusBoCNovember2009FINAL.pdf.Google Scholar
Williams, P., Spalding, K., Deber, R., & McKeever, P. (2005). Prescriptions for pediatric home care: analyzing the impact of the shift from hospital to home and community on children and families. Department of Health Policy, Management and Evaluation and Medicare to Home and Community (M-THAC) Research Unit, University of Toronto.Google Scholar
Williams, A. P., Peckham, A., Rudoler, D., Watkins, J., & Tam, T. (2013a). Caregiver support project: Formative evaluation. Final report. Alzheimer Society of Toronto.Google Scholar
Williams, A. P., Spalding, K., Peckham, A., Rudoler, D., Salib, D., Watkins, J., et al. (2013b). Caregiver framework for children with medical complexity: Formative evaluation. Final report prepared for the Hospital for Sick Children.Google Scholar