Hostname: page-component-586b7cd67f-l7hp2 Total loading time: 0 Render date: 2024-11-20T17:43:10.081Z Has data issue: false hasContentIssue false

The Undeserving Sick? An Evaluation of Patients’ Responsibility for Their Health Condition

Published online by Cambridge University Press:  11 March 2020

Extract

The recent increased prevalence of diseases related to unhealthy lifestyles raises difficulties for healthcare insurance systems traditionally based on the principles of risk-management, solidarity, and selective altruism: since these diseases are, to some extent, predictable and avoidable, patients seem to bear some responsibility for their condition and may not deserve full access to social medical services. Here, we investigate with objective criteria to what extent it is warranted to hold patients responsible for their illness and to sanction them accordingly. We ground our analysis on a series of minimal conditions for ‘practical’ and for ‘moral’ responsibility attribution. By applying these criteria consistently, we highlight that individual responsibility applies to risk-taking life choices rather than stigmatized sickness. We explain that responsibility is a matter of degree, that it varies across life-history, and can be affected by factors beyond the patients’ grasp. We point out that scientific knowledge about the effect of these factors generates responsibilities for other parties such as public health agencies and private industry. The upshot of our analysis is that health policies targeting the ‘liable’ undeserving sick are mostly unwarranted, and tend to increase unequal treatment of already vulnerable groups: the unlucky sick.

Type
Special Section: Causality and Moral Responsibility
Copyright
© Cambridge University Press 2020

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

*

Both authors contributed equally to this paper.

Acknowledgement: We would like to thank Barbara Broers and Tom Douglas for their helpful comments on a previous version of this paper.

References

Notes

1. Lozano, R, Naghavi, M, Foreman, K, Lim, S, Shibuya, K, Aboyans, V, et al. Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010: a systematic analysis for the global burden of disease study 2010. Lancet 2012;380(9859):2095–128CrossRefGoogle ScholarPubMed.

2. Moss, AH, Siegler, M. Should alcoholics compete equally for liver transplantation? JAMA 1991;265(10):1295–8CrossRefGoogle ScholarPubMed; Underwood, MJ, Bailey, JS. Coronary bypass surgery should not be offered to smokers. British Medical Journal 1993;306(6884):1047–9CrossRefGoogle Scholar.

3. For a helpful literature review see Sharkey, K, Gillam, L. Should patients with self-inflicted illness receive lower priority in access to healthcare resources? Mapping out the debate. Journal of Medical Ethics 2010;36(11):661–5CrossRefGoogle ScholarPubMed.

4. Royal College of Surgeons of England. Smokers and overweight patients: soft targets for NHS savings? 2016; available at https://www.rcseng.ac.uk/library-and-publications/rcs-publications/docs/smokers-soft-targets/ (last accessed 29 May 2019); Puhl, RM, Heuer, CA. Obesity stigma: important considerations for public health. American Journal of Public Health 2010;100(6):1019–28CrossRefGoogle ScholarPubMed; Chapple, A, Ziebland, S, McPherson, A. Stigma, shame, and blame experienced by patients with lung cancer: qualitative study. British Medical Journal 2004;328(7454):1470 CrossRefGoogle ScholarPubMed.

5. Hansson, SO. The ethics of making patients responsible. Cambridge Quarterly of Healthcare Ethics 2018;27(1):8792 CrossRefGoogle ScholarPubMed.

6. Brown, RCH. Irresponsibly infertile? Obesity, efficiency, and exclusion from treatment. Health Care Analysis 2019;27(2):6176 CrossRefGoogle ScholarPubMed.

7. Frankfurt, HG. The problem of action. American Philosophical Quarterly 1978;15(2):157–62Google Scholar.

8. Lau, S, Hiemisch, A. Functional freedom: a psychological model of freedom in decision-making. Behavioral Sciences 2017;7(3):41.CrossRefGoogle ScholarPubMed

9. Feinberg, J. Harm to Self. New York, NY: Oxford University Press; 1986 Google Scholar.

10. Fischer, JM, Ravizza, M. Responsibility and Control: A Theory of Moral Responsibility. Cambridge: Cambridge University Press; 1998 CrossRefGoogle Scholar.

11. Nahmias, E. Free will as a psychological accomplishment. In: Schmidtz, D, Pavel, CE, eds. The Oxford Handbook of Freedom. Oxford: Oxford University Press; 2018 Google Scholar.

12. See note 10, Nahmias 2018; and note 7, Lau, Hiemisch 2017.

13. Evans, JSBT, Stanovich, KE. Dual-process theories of higher cognition advancing the debate. Perspectives on Psychological Science 2013;8(3):223–41CrossRefGoogle ScholarPubMed.

14. As described in Clavien C. Ethics of nudges: a general framework with a focus on shared preference justifications. Journal of Moral Education 2018;47(3):366–82.

15. Nahmias E. Is free will an illusion? Confronting challenges from the modern mind sciences. In: Sinnott-Armstrong W, ed. Moral Psychology. Vol. 4; Freedom and Responsibility. Cambridge, MA: MIT Press; 2014.

16. For an illustration of these difficulties in the health context, see Häyry M. Justice and the possibility of good moralism in bioethics. Cambridge Quarterly of Healthcare Ethics 2019;28(2): 236–63.

17. Marcon, A, Pesce, G, Calciano, L, Bellisario, V, Dharmage, SC, Garcia-Aymerich, J, et al. Trends in smoking initiation in Europe over 40 years: a retrospective cohort study. PLOS One 2018;13(8):e0201881CrossRefGoogle ScholarPubMed.

18. Douglas, T. Enhancement and desert. Politics, Philosophy, and Economics. 2019;18(1):322 CrossRefGoogle ScholarPubMed.

19. Note that a company may also have limiting factors that could partly alleviate its responsibility for patients’ unhealthy lifestyle. For instance, a highly competitive market may cloud company managers’ understanding of the fair value of some selling strategies.

20. Hastings G. Why corporate power is a public health priority. British Medical Journal 2012;345:e5124.

21. Joost, S, Duruz, S, Marques-Vidal, P, Bochud, M, Stringhini, S, Paccaud, F, et al. Persistent spatial clusters of high body mass index in a Swiss urban population. As revealed by the 5-year geocolaus longitudinal study. BMJ Open 2016:1-10.Google Scholar

22. Wikler, D. Personal and social responsibility for health. Ethics & International Affairs 2002;16(2):4755 CrossRefGoogle ScholarPubMed.

23. See note 5, Hansson 2018; and note 3, Sharkey, Gillam 2010.

24. See note 22, Wikler 2002.

25. See note 3, Sharkey, Gillam 2010.

26. Hosseinpoor, AR, Stewart Williams, JA, Itani, L, Chatterji, S. Socioeconomic inequality in domains of health: results from the World Health Surveys. BMC Public Health 2012;12(198):110.Google ScholarPubMed

27. See note 6, Brown 2019; and note 3, Sharkey, Gillam 2010.

28. Mulder, LB, Rupp, DE, Dijkstra, A. Making snacking less sinful: (counter-)moralising obesity in the public discourse differentially affects food choices of individuals with high and low perceived body mass. Psychology & Health 2015;30(2):233–51CrossRefGoogle ScholarPubMed.

29. Editors. Is health a moral responsibility? The Lancet 1996; 347(9010):1197.

30. Ubel, P, Baron, J, Asch, D. Social acceptability, personal responsibility, and prognosis in public judgments and transplant allocation. Bioethics 1999;13(1):5768 CrossRefGoogle Scholar.