Hostname: page-component-78c5997874-4rdpn Total loading time: 0 Render date: 2024-11-02T19:06:36.897Z Has data issue: false hasContentIssue false
  • English
  • Français

Narrative Autonomy

Three Literary Models of Healthcare in the End of Life

Published online by Cambridge University Press:  12 February 2014

ANTONIO CASADO DA ROCHA
Get access Rights & Permissions [Opens in a new window]

Extract

This section welcomes submissions addressing literature as a means to explore ethical issues arising in healthcare. “Literature” will be understood broadly, including fiction and creative nonfiction, illness narratives, drama, and poetry; film studies might be considered if the films are adaptations from a literary work. Topics include in-depth analysis of literary works as well as theoretical contributions, discussions, and commentary about narrative approaches to disease and medicine, the way literature shapes the relationship between patients and healthcare professionals, the role of speculative fiction as a testing ground for future scenarios in healthcare, and so on. Articles discussing the uses of literature for bioethics education and outreach will be particularly appreciated. Research on literature not originally written in English will be considered as long as it has also been published in translation. Submissions should include an abstract and should conform to the CQ Guidelines for Contributors. To submit an article or discuss a suitable topic, write to Antonio Casado da Rocha at [email protected].

Keywords

patient autonomynarrativebioethicspalliative careTolstoy
Type
Bioethics and Literature
Information
Cambridge Quarterly of Healthcare Ethics , Volume 23 , Issue 2 , April 2014 , pp. 200 - 208
Copyright
Copyright © Cambridge University Press 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Notes

1. Giordano, S. Medical humanities: An e-module at the University of Manchester. Cambridge Quarterly of Healthcare Ethics 2010;19:446–57.CrossRefGoogle ScholarPubMed

2. Brungardt, G. Teaching The Death of Ivan Ilyich: A guide to introducing Tolstoy’s classic. Journal of Palliative Medicine 2009;12(8):679–82.CrossRefGoogle ScholarPubMed

3. Tolstoy, L. The Death of Ivan Ilyich. In: The Death of Ivan Ilyich and Other Stories. London: Penguin; 2008.Google Scholar

4. Moore, L. Go like this. In: Self-Help. New York: Warner; 1984.Google Scholar

5. Schlink, B. The last summer. In: Summer Lies. New York: Pantheon; 2012.Google Scholar

6. A favorites reading list from the Cambridge Consortium for Bioethics Education. Cambridge Quarterly of Healthcare Ethics 2011;20:139–42.

7. Micco, G, Villars, P, Smith, AK. The Death of Ivan Ilyich and pain relief at the end of life. The Lancet 2009;374(9693):872–3.CrossRefGoogle ScholarPubMed

8. , Charon R.Reading, writing, and doctoring: Literature and medicine. American Journal of the Medical Sciences 2000;319(5):285–91.CrossRefGoogle Scholar

9. Stanley, P, Hurst, M. Narrative palliative care: A method for building empathy. Journal of Social Work in End-of-Life and Palliative Care 2011;7(1):46.CrossRefGoogle ScholarPubMed

10. Charon, R. Narrative Medicine: Honoring the Stories of Illness. New York: Oxford University Press; 2006, at 220.CrossRefGoogle Scholar

11. Florijn, BW, Kaptein, AA. How Tolstoy and Solzhenitsyn define life and death in cancer: Patient perceptions in oncology. American Journal of Hospice Palliative Care 2012. Online first.Google ScholarPubMed

12. See note 4, Moore 1984, at 77. The link between Tolstoy and Schlink is especially visible when the narrator in “The Last Summer” wonders, as Ilyich did, about the real value of his profession: “Out of his own work there were no stories he could tell—what did that say about him? And about his work? And about analytical philosophy? Was it nothing more than an elaborate waste of human intelligence?” See note 5, Schlink 2012, at 161.

13. Hofmann, B. On the triad disease, illness, and sickness. Journal of Medicine and Philosophy 2002;27(6):651–73.CrossRefGoogle ScholarPubMed

14. See note 3, Tolstoy 2008, at 364.

15. See note 3, Tolstoy 2008, at 41.

16. See note 9, Stanley, Hurst 2011, at 46.

17. Heidegger M. Being and time. Albany, NY: SUNY; 2010, at §51.

18. See note 3, Tolstoy 2008, at 434.

19. See note 4, Moore 1984, at 65, 68.

20. Morse, JM. Toward a praxis theory of suffering. Advances in Nursing Science 2001;24(1):48–9, 52.CrossRefGoogle Scholar

21. See note 4, Moore 1984, at 71.

22. See note 5, Schlink 2012, at 147.

23. See note 5, Schlink 2012, at 147, 156.

24. See note 17, Heidegger 2010.

25. See note 11, Florijn, Kaptein 2012, at 1.

26. Lucas, V. The Death of Ivan Ilyich and the concept of “total pain.” Clinical Medicine 2012;12(6):601–2.CrossRefGoogle ScholarPubMed

27. For several comments in this paragraph, I am grateful to Brian Hurwitz, who made helpful suggestions to the whole manuscript.

28. See note 3, Tolstoy 2008, at 400, 436.

29. See note 4, Moore 1984, at 68.

30. See note 5, Schlink 2012, at 163.

31. Carel, H. Life and Death in Freud and Heidegger. Amsterdam: Rodopi; 2006, at 74.CrossRefGoogle Scholar

32. See note 17, Heidegger 2010.

33. See note 3, Tolstoy 2008, at 362, 466.

34. See note 4, Moore 1984, at 72.

35. See note 17, Heidegger 2010.

36. See note 5, Schlink 2012, at 164–5.

37. See note 5, Schlink 2012, at 172.

38. Árnason V. Ética y sanidad. Laguna 2004;14:28–9.

39. Gillon, R. Ethics needs principles—four can encompass the rest—and respect for autonomy should be “first among equals.” Journal of Medical Ethics 2003;29:307–12.CrossRefGoogle Scholar

40. Kelly, A. Understanding Lorrie Moore. Columbia: University of South Caroline Press; 2009, at 24.Google Scholar

41. Gaffney, E. Interview with Lorrie Moore. The Paris Review 2001;158:57–84.Google Scholar

42. See note 38, Árnason 2004, at 31–2.

43. Naik, AD, Dyer, CB, Kunik, ME, McCullough, LB. Patient autonomy for the management of chronic conditions. American Journal of Bioethics 2009;9(2):23–30.CrossRefGoogle ScholarPubMed

44. Casado, A. Towards a comprehensive concept of patient autonomy. The American Journal of Bioethics 2009;9(2):37–8.Google Scholar

45. Seoane, JA. La construcción jurídica de la autonomía del paciente. Eidon 2013;39:13–34.Google Scholar

46. Hurwitz, B. The temporal construction of medical narratives. In: Hurwitz, B, Greenhalgh, T, Skultans, V, eds. Narrative Research in Health and Illness. London: Blackwell–British Medical Journal; 2004, at 423.CrossRefGoogle Scholar