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Ethics Issues in Social Media–Based HIV Prevention in Low- and Middle-Income Countries

Published online by Cambridge University Press:  10 June 2015

CHINGCHE J. CHIU ,
LUIS MENACHO ,
CELIA FISHER  and
SEAN D. YOUNG
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Abstract:

Questions have been raised regarding participants’ safety and comfort when participating in e-health education programs. Although researchers have begun to explore this issue in the United States, little research has been conducted in low- and middle-income countries, where Internet and social media use is rapidly growing. This article reports on a quantitative study with Peruvian men who have sex with men who had previously participated in the Harnessing Online Peer Education (HOPE) program, a Facebook-based HIV education program. The survey assessed participants’ ethics-relevant perspectives during recruitment, consent, intervention, and follow-up.

Keywords

ethicsmen who have sex with men (MSM)social mediasocial networking technologiesHIV/AIDS
Type
Special Section: Bioethics and Information Technology
Information
Cambridge Quarterly of Healthcare Ethics , Volume 24 , Issue 3 , July 2015 , pp. 303 - 310
Copyright
Copyright © Cambridge University Press 2015 

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References

Notes

1. Pew Research Center. Internet User Demographics. Pew Research Center’s Internet Project; Washington, DC; 2014.<Google Scholar

2. Fox, S, Duggan, M. Health Online 2013. Washington, DC: Pew Research Center; 2013.Google Scholar

3. Hesse, BW, Nelson, DE, Kreps, GL, Croyle, RT, Arora, NK, Rimer, BK, et al. Trust and sources of health information: The impact of the Internet and its implications for health care providers: Findings from the first Health Information National Trends Survey. Archives of Internal Medicine 2005;165(22):2618–24.CrossRefGoogle ScholarPubMed

4. Neuhauser, L, Kreps, GL. Rethinking communication in the e-health era. Journal of Health Psychology 2003;8(1):7–23, at 12.CrossRefGoogle ScholarPubMed

5. See note 4, Neuhauser, Kreps 2003.

6. Gill, HK, Gill, N, Young, SD. Online technologies for health information and education: A literature review. Journal of Consumer Health on the Internet 2013;17(2):139–50.CrossRefGoogle ScholarPubMed

7. Crutzen, R, Roosjen, JL, Poelman, J. Using Google Analytics as a process evaluation method for Internet-delivered interventions: An example on sexual health. Health Promotion International 2012:das008v1–das008.Google ScholarPubMed

8. Tate, DF, Jackvony, EH, Wing, RR. Effects of Internet behavioral counseling on weight loss in adults at risk for type 2 diabetes: A randomized trial. JAMA 2003;289(14):1833–6.CrossRefGoogle ScholarPubMed

9. Winzelberg, AJ, Eppstein, D, Eldredge, KL, Wilfley, D, Dasmahapatra, R, Dev, P, et al. Effectiveness of an Internet-based program for reducing risk factors for eating disorders. Journal of Consulting and Clinical Psychology 2000;68(2):346.CrossRefGoogle ScholarPubMed

10. Bowen, AM, Horvath, K, Williams, ML. A randomized control trial of Internet-delivered HIV prevention targeting rural MSM. Health Education Research 2007;22(1):120–7.CrossRefGoogle ScholarPubMed

11. Lorig, KR, Ritter, PL, Laurent, DD, Plant, K. Internet-based chronic disease self-management: A randomized trial. Medical Care 2006;44(11):964–71.CrossRefGoogle ScholarPubMed

12. Griffiths, KM, Christensen, H. Internet-based mental health programs: A powerful tool in the rural medical kit. Australian Journal of Rural Health 2007;15(2):81–7.CrossRefGoogle ScholarPubMed

13. Oenema, A, Brug, J, Lechner, L. Web-based tailored nutrition education: Results of a randomized controlled trial. Health Education Research 2001;16(6):647–60.CrossRefGoogle ScholarPubMed

14. Pew Research Center. Social Networking Fact Sheet. Pew Research Center; Washington, DC; 2014.Google Scholar

15. Rainie, L, Poushter, J. Emerging Nations Catching Up to U.S. on Technology Adoption, Especially Mobile and Social Media Use. Pew Research Center; Washington, DC; 2014.Google Scholar

16. Pereyra RC, Santillana SA. Facebook apunta a premiar a las empresas que paguen por publicidad. Gestion 2014 Mar 21.

17. Ellison, NB. Social network sites: Definition, history, and scholarship. Journal of Computer-Mediated Communication 2007;13(1):210–30.Google Scholar

18. See note 6, Gill et al. 2013.

19. Bull, SS, Levine, DK, Black, SR, Schmiege, SJ, Santelli, J. Social media–delivered sexual health intervention: A cluster randomized controlled trial. American Journal of Preventive Medicine 2012;43(5):467–74.CrossRefGoogle ScholarPubMed

20. Young, S, Jaganath, D. Online social networking for HIV education and prevention: A mixed methods analysis. Sexually Transmitted Diseases 2013;40(2):162–7.CrossRefGoogle ScholarPubMed

21. See note 7, Crutzen et al. 2012.

22. See note 8, Tate et al. 2003.

23. See note 9, Winzelberg et al. 2000.

24. See note 10, Bowen et al. 2007.

25. See note 11, Lorig et al. 2006.

26. See note 12, Griffiths, Christensen 2007.

27. See note 13, Oenema et al. 2001.

28. Rosser, SB, Gurak, L, Horvath, KJ, Oakes, MJ, Konstan, J, Danilenko, GP. The challenges of ensuring participant consent in internet-based sex studies: A case study of the men’s INTernet sex (MINTS-I and II) studies. Journal of Computer-Mediated Communication 2009;14(3):602–26.CrossRefGoogle ScholarPubMed

29. Young, SD. Recommended guidelines on using social networking technologies for HIV prevention research. AIDS and Behavior 2012;16(7):1743–5.CrossRefGoogle ScholarPubMed

30. Bull, SS, Breslin, LT, Wright, EE, Black, SR, Levine, D, Santelli, JS. Case study: An ethics case study of HIV prevention research on Facebook: The just/us study. Journal of Pediatric Psychology 2011;36(10):1082–92.CrossRefGoogle ScholarPubMed

31. Kind, T, Silber, TJ. Ethical issues in pediatric e-health. Clinical Pediatrics 2004;43(7):593–9.CrossRefGoogle ScholarPubMed

32. Merrell, RC, Doarn, CR. Ethics in telemedicine research. Telemedicine and e-Health 2009;15(2):123–4.CrossRefGoogle ScholarPubMed

33. Fisher, CB, Fried, AL. Internet-mediated psychological services and the American Psychological Association Ethics Code. Psychotherapy: Theory, Research, Practice, Training 2003;40(1–2):103.CrossRefGoogle Scholar

34. Fleming, DA, Edison, KE, Pak, H. Telehealth ethics. Telemedicine and e-Health 2009;15(8):797–803.CrossRefGoogle ScholarPubMed

35. Cornford, T, Klecun-Dabrowska, E. Ethical perspectives in evaluation of telehealth. Cambridge Quarterly of Healthcare Ethics 2001;10(2):161–9.CrossRefGoogle ScholarPubMed

36. Nicholas, A, Bailey, JV, Stevenson, F, Murray, E. The Sexunzipped Trial: Young people’s views of participating in an online randomized controlled trial. Journal of Medical Internet Research 2013;15(12):e276.CrossRefGoogle Scholar

37. Villegas, N, Santisteban, D, Cianelli, R, Ferrer, L, Ambrosia, T, Peragallo, N, et al. The development, feasibility and acceptability of an Internet-based STI–HIV prevention intervention for young Chilean women. International Nursing Review 2014;61(1):55–63.CrossRefGoogle ScholarPubMed

38. Dombrowski, SU, Sniehotta, FF, Johnston, M, Broom, I, Kulkarni, U, Brown, J, et al. Optimizing acceptability and feasibility of an evidence-based behavioral intervention for obese adults with obesity-related co-morbidities or additional risk factors for co-morbidities: An open-pilot intervention study in secondary care. Patient Education and Counseling 2012;87(1):108–19.CrossRefGoogle ScholarPubMed

39. Winstead-Derlega, C, Rafaly, M, Delgado, S, Freeman, J, Cutitta, K, Miles, T, et al. A pilot study of delivering peer health messages in an HIV clinic via mobile media. Telemedicine and e-Health 2012;18(6):464–9.CrossRefGoogle Scholar

40. Vandelanotte, C, De Bourdeaudhuij, I. Acceptability and feasibility of a computer-tailored physical activity intervention using stages of change: Project FAITH. Health Education Research 2003;18(3):304–17.CrossRefGoogle ScholarPubMed

41. Blaya, JA, Fraser, HS, Holt, B. E-health technologies show promise in developing countries. Health Affairs 2010;29(2):244–51.CrossRefGoogle ScholarPubMed

42. Lucas, H. Information and communications technology for future health systems in developing countries. Social Science & Medicine 2008;66(10):2122–32.CrossRefGoogle ScholarPubMed

43. See note 29, Young 2012.

44. See note 30, Bull et al. 2011.

45. See note 29, Young 2012.

46. See note 28, Rosser et al. 2009.

47. See note 29, Young 2012.

48. See note 30, Bull et al. 2011.

49. See note 31, Kind, Silber 2004.

50. See note 32, Merrell, Doarn 2009.

51. See note 33, Fisher, Fried 2003.

52. See note 34, Fleming et al. 2009.

53. See note 35, Cornford, Klecun-Dabrowska 2001.

54. See note 29, Young 2012.

55. See note 30, Bull et al. 2011.

56. See note 28, Rosser et al. 2009.

57. Pequegnat, W, Rosser, BR, Bowen, AM, Bull, SS, DiClemente, RJ, Bockting, WO, et al. Conducting Internet-based HIV/STD prevention survey research: Considerations in design and evaluation. AIDS and Behavior 2007;11(4):505–21.CrossRefGoogle ScholarPubMed

58. See note 28, Rosser et al. 2009.

59. See note 57, Pequegnat et al. 2007.