Hostname: page-component-586b7cd67f-dsjbd Total loading time: 0 Render date: 2024-11-27T14:23:28.070Z Has data issue: false hasContentIssue false
  • English
  • Français

Ethical Challenges in Contemporary FASD Research and Practice

A Global Health Perspective

Published online by Cambridge University Press:  16 September 2016

NINA DI PIETRO ,
JANTINA DE VRIES ,
ANGELINA PAOLOZZA ,
DOROTHY REID ,
JAMES N. REYNOLDS ,
AMY SALMON ,
MARSHA WILSON ,
DAN J. STEIN  and
JUDY ILLES
Get access Rights & Permissions [Opens in a new window]

Abstract:

Fetal alcohol spectrum disorder (FASD) is increasingly recognized as a growing public health issue worldwide. Although more research is needed on both the diagnosis and treatment of FASD, and a broader and more culturally diverse range of services are needed to support those who suffer from FASD and their families, both research and practice for FASD raise significant ethical issues. In response, from the point of view of both research and clinical neuroethics, we provide a framework that emphasizes the need to maximize benefits and minimize harm, promote justice, and foster respect for persons within a global context.

Keywords

fetal alcohol spectrum disorder (FASD)clinical neuroethicsglobal public health
Type
Articles
Information
Cambridge Quarterly of Healthcare Ethics , Volume 25 , Special Issue 4: Clinical Neuroethics , October 2016 , pp. 726 - 732
Copyright
Copyright © Cambridge University Press 2016 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Notes

1. World Health Organization. Global strategy to reduce the harmful use of alcohol [WHO website]; 2010; available at http://www.who.int/substance_abuse/msbalcstragegy.pdf (last accessed on 29 July 2015).

2. Popova, S, Chambers, C. Fetal alcohol spectrum disorders must be recognized globally as a large public health problem. International Journal of Alcohol and Drug Research 2014;3(1):1–3.CrossRefGoogle Scholar

3. Bell, E, Andrew, G, Di Pietro, N, Chudley, AE, Reynolds, JN, Racine, E. It’s a shame! Stigma against fetal alcohol spectrum disorder: Examining the ethical implications for public health practices and policies. Public Health Ethics 2015;8(2):1–13.Google Scholar

4. Stein DJ, Illes J. Beyond scientism and scepticism: An integrative approach to global mental health. Frontiers in Neuroscience 2015. doi:10.3389/fpsyt.2015.00166.

5. Parry, C, London, L, Myers, B. Delays in South Africa’s plans to ban advertising. Lancet 2014;383(9933):1972.CrossRefGoogle Scholar

6. Mathews, R, Thorn, M, Giorgi, C. Vested interests in addiction research and policy: Is the alcohol industry delaying government action on alcohol health warning labels in Australia? Addiction 2013;108:1889–96.CrossRefGoogle ScholarPubMed

7. Thomas G, Cook JL, Poole N, Gonneau G. The effectiveness of alcohol warning labels for reducing drinking in pregnancy: A brief review [CanFASD website]; available at http://www.canfasd.ca/wp-content/uploads/2014/01/Warning-Label-Issue-Brief-FINAL.pdf (last accessed 29 July 2015).

8. Stein, DJ. Academic-industry partnerships in alcohol and gambling: A continuum of benefits and harms. Israel Journal of Psychiatry and Related Sciences 2015;52:81–4.Google ScholarPubMed

9. Todorow, M, Paris, K, Fantus, E. Ethical considerations when communicating a diagnosis of a fetal alcohol spectrum disorder to a child. Journal of Population Therapeutics and Clinical Pharmacology 2011;19(3):e361–8.Google Scholar

10. Taylor H. Helping people with learning disabilities exercise their right to autonomy. Learn Disability Practice 2014:32–7.

11. Nuwagaba E, Rule P. Navigating the ethical maze in disability research: Ethical contestations in an African context. Disability and Society 2015:255–69.

12. Wechsberg, WM, Luseno, W, Ellerson, RM. Reaching women substance abusers in diverse settings: Stigma and access to treatment 30 years later. Substance Use & Misuse 2008;43(8–9):1277–9.CrossRefGoogle ScholarPubMed

13. See note 3, Bell et al. 2015.

14. See note 3, Bell et al. 2015.

15. Poole, N, Greaves, L. Mother and child reunion: Achieving balance in policies affecting substance-using mothers and their children, 2009. In: Rutman, D, Callahan, M, Lundquist, A, Jackson, S, Field, B, eds. Substance Use and Pregnancy: Conceiving Women in the Policy-Making Process. Vol. 112. Ottawa: Status of Women Canada; 2000.Google Scholar

16. Wood, K, Jewkes, R. Blood blockages and scolding nurses: Barriers to adolescent contraceptive use in South Africa. Reproductive Health Matters 2006;14:109–18.CrossRefGoogle ScholarPubMed

17. Parry C. Substance abuse in South Africa: Focusing on young persons. Prepared for the WHO/UNDCP Regional Consultation—Global Initiative on Primary Prevention of Substance Abuse Among Young People; 1998.

18. Jonsson, E, Salmon, A, Warren, KR. The international charter on prevention of fetal alcohol spectrum disorder. Lancet Global Health 2014;2(3):e135–e137.CrossRefGoogle ScholarPubMed