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Case Management for Children and Adolescents with Acquired Brain Injury in Community Settings: A Scoping Review

Published online by Cambridge University Press:  26 April 2017

Jenny Young
Affiliation:
Faculty of Health Sciences, University of Sydney
Sue Lukersmith*
Affiliation:
Faculty of Health Sciences, University of Sydney
Luis Salvador-Carulla
Affiliation:
Faculty of Health Sciences, University of Sydney
Roger Stancliffe
Affiliation:
Faculty of Health Sciences, University of Sydney
*
Address for correspondence: Sue Lukersmith, Centre for Disability Research and Policy, Faculty of Health Sciences, Cumberland Campus, The University of Sydney, 75 East Street|Lidcombe|NSW|2141. E-mail: [email protected].
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Abstract

Background: Acquired brain injury is the leading cause of death and disability in children after infancy. Childhood brain injury has long-term consequences for children and parents, including challenges with returning to school, ongoing health and behaviour concerns, family functioning and demands on carers. Community-based case management interventions are a vital contribution to community supports.

Aims: This scoping study aims to scope and map the literature on case management, to identify how case management is described in the literature for children and adolescents with acquired brain injury (0–17 years).

Methods: A scoping review was completed of published articles on case management from four major databases (CINAHL, MEDLINE, PUBMed and Embase) between 2005 and 2015. Articles were selected against inclusion criteria and reviewed.

Results: Eight articles of 2688 records met the inclusion criteria and were reviewed. Case management was provided by case managers and other health professionals. The case management interventions described were mapped to the International Classification of Health Interventions and the Brain Injury Case Management Taxonomy (BICM-T). Case management addressed a range of needs including return to school, family issues and ongoing medical needs. There were anecdotal reports of effectiveness of case management during the return to school process.

Conclusion: This scoping study reveals a lack of information on this topic. Improved reporting of case management interventions and more research on case management is needed for children and adolescents with brain injury.

Type
Review Article
Copyright
Copyright © Australasian Society for the Study of Brain Impairment 2017 

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References

Agnihotri, S., Keightley, M., Colantonio, A., Cameron, D., & Polatajko, H. (2010). Community integration interventions for youth with acquired brain injuries: A review. Developmental Neurorehabilitation, 13 (5), 369382. doi:10.3109/17518423.2010.499409.Google Scholar
Aitken, M., Korehbandi, P., Parnell, D., Parker, J., Stefans, V., Tompkins, E., & Schulz, E. (2005). Experiences from the development of a comprehensive family support program for pediatric trauma and rehabilitation patients. Archives of Physical Medicine and Rehabilitation, 86 (1), 175179. doi: 10.1016/j.apmr.2004.02.026.CrossRefGoogle ScholarPubMed
Baptiste, B., Dawson, D., & Streiner, D. (2015). Predicting use of case management support services for adolescents and adults living in community following brain injury: A longitudinal Canadian database study with implications for life care planning. NeuroRehabilitation, 36 (3), 301312. doi: 10.3233/NRE-151218.Google Scholar
Brombley, K. (2008). Better at home? Benefits of case management for children with complex needs. Paediatric Nursing, 20 (9), 2426. doi: 10.7748/paed2008.11.20.9.24.c6823.Google Scholar
Centre for Evidence Based Medicine. (2009). Oxford centre of evidence based medicine – levels of evidence (March 2009). Retrieved November 9, 2015, from http://www.cebm.net/oxford-centre-evidence-based-medicine-levels-evidence-march-2009/.Google Scholar
Forsyth, R., & Kirkham, F. (2012). Predicting outcome after childhood brain injury. Canadian Medical Association Journal, 184 (11), 12571264. doi: 10.1503/cmaj.111045.Google Scholar
Gan, C., Gargaro, J., Brandys, C., Gerber, G., & Boschen, K. (2010). Family caregivers' support needs after brain injury: A synthesis of perspectives from caregivers, programs, and researchers. NeuroRehabilitation, 27 (1), 518. doi: 10.3233/NRE-2010-0577 Google Scholar
Glang, A., Todis, B., Thomas, C., Hood, D., Bedell, G., & Cockrell, J. (2008). Return to school following childhood TBI: Who gets services?. NeuroRehabilitation, 23 (6), 477486.Google Scholar
Greenwald, B., Burnett, D., & Miller, M. (2003). Congenital and acquired brain injury: Epidemiology and pathophysiology. Archives of Physical Medicine and Rehabilitation, 84 (3), 37. doi: 10.1053/apmr.2003.50052.Google Scholar
Hawley, C., Ward, A., Magnay, A., & Mychalkiw, W. (2004). Return to school after brain injury. Archives of Disease in Childhood, 89 (2), 136142. doi: 10.1136/adc.2002.025577.Google Scholar
Kirk, S., Fallon, D., Fraser, C., Robinson, G., & Vassallo, G. (2015). Supporting parents following childhood traumatic brain injury: A qualitative study to examine information and emotional support needs across key care transitions. Child: Care, Health and Development, 41 (2), 303313. doi: 10.1111/cch.12173.Google Scholar
Kolakowsky-Hayner, S., Wright, J., Shem, K., Medel, R., & Duong, T. (2012). An effective community-based mentoring program for return to work and school after brain and spinal cord injury. NeuroRehabilitation, 31 (1), 6373. doi: 10.3233/NRE-2012-0775.CrossRefGoogle ScholarPubMed
Lannin, N., Laver, K., Henry, K., Turnbull, M., Elder, M., Campisi, J., Schmidt, J., & Schneider, E. (2014). Effects of case management after brain injury: A systematic review. Neurorehabilitation, 35 (4), 635641. doi: 10.3233/NRE-141161.Google Scholar
Levac, D., Colquhoun, H., & O'Brien, K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5, 69. doi: 10.1186/1748-5908-5-69.Google Scholar
Lifetime Care & Support Authority. (2016). Lifetime care and support scheme. Retrieved from http://www.lifetimecare.nsw.gov.au/lifetime-care-and-support-scheme/research ).Google Scholar
Limond, J., Dorris, L., & McMillan, T. (2009). Quality of life in children with acquired brain injury: Parent perspectives 1–5 years after injury. Brain Injury, 23 (7–8), 617622. doi: 10.1080/02699050902997870.Google Scholar
Linden, M., Braiden, H., & Miller, S. (2013). Educational professionals' understanding of childhood traumatic brain injury. Brain Injury, 27 (1), 92102. doi: 10.3109/02699052.2012.722262 Google Scholar
Lindsay, S., Hartman, L., Reed, N., Gan, C., Thomson, N., & Solomon, B. (2015). A systematic review of hospital-to-school reintegration interventions for children and youth with acquired brain injury. PloS One, 10 (4), e0124679. doi: 10.1371/journal.pone.0124679.Google Scholar
Lukersmith, S., Fernandez, A., Millington, M., & Salvador-Carulla, L., (2015). The brain injury case management taxonomy (BICM-T): A classification of community-based case management interventions for a common language. Disability and Health Journal, 9 (2), 272280.Google Scholar
Lukersmith, S., Milliington, M., & Salvador-Carulla, L. (2016). What is case management? A scoping and mapping review. International Journal of Integrated Care, 16 (4), 2. doi: http://doi.org/10.5334/ijic.2477.Google Scholar
Madden, R., Fortune, N., Collings, S., Mockham, B., & Blackwood, A. (2014). Cross sector service coordination with high and complex needs: Harnessing existing evidence and knowledge. Retrieved from sydney.edu.au/health-sciences/cdrp/discussion-paper-complexneeds-july2014.pdf.Google Scholar
Mealings, M., Douglas, J., & Oliver, J. (2012). Considering the student perspective in returning to school after TBI: A literature review. Brain Injury, 26 (10), 11651176. doi: 10.3109/02699052.2012.672785.Google Scholar
Patterson, P., Maynard, H., Chesnut, R., Carney, N., Mann, N., & Helfand, M. (1999). Evidence of case management effect on traumatic-brain-injured adults in rehabilitation. Care Management Journals, 1 (2), 8797.Google Scholar
Rashid, M., Goez, H., Mabood, N., Damanhoury, S., Yager, J., Joyce, A., & Newton, A. (2014). The impact of pediatric traumatic brain injury (TBI) on family functioning: A systematic review. Journal of Pediatric Rehabilitation Medicine, 7 (3), 241254. doi: 10.3233/PRM-140293 Google Scholar
Reber, P., DiPietro, E., Paraway, Y., Obst, B., Smith, R., & Koller, C. (2011). Communication: the key to effective interdisciplinary collaboration in the care of a child with complex rehabilitation needs. Rehabilitation Nursing Journal, 36 (5), 181186. doi: 10.1002/j.2048-7940.2011.tb00192.x Google Scholar
Scheinberg, A., Gibson, W., Hughes, D., Miles, A., Murphy, P., & Noronha, J. (2005). Survey of paediatric case management practices in Australia for children and young people with acquired brain injury (ABI). Child: Care, Health and Development, 31 (6), 679684. doi: 10.1111/j.1365-2214.2005.00554.x.Google Scholar
Sharp, N., Bye, R., Llewellyn, G., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 28 (12), 767778. doi: 10.1080/09638280500386668 Google Scholar
van Tol, E., Gorter, J, Dematteo, C., & Meester-Delver, A. (2011). Participation outcomes for children with acquired brain injury: A narrative review. Brain Injury, 25 (13–14), 12791287. doi: 10.3109/02699052.2011.613089.Google Scholar
Woodward, C., Abelson, J., Tedford, S., & Hutchison, B. (2004). What is important to continuity in home care? Perspectives of key stakeholders. Social Science & Medicine, 58 (1), 177192. doi: 10.1016/S0277-9536(03)00161-8 Google Scholar
World Health Organisation Family Development Committee. (WHO-FIC). (2013). International Classification of Health Interventions (ICHI) - alpha version. Brazil.Google Scholar
World Health Organisation Family Development Committee. (WHO-FIC). (2016). International Classification of Health Interventions (ICHI) - alpha version. Brazil. Retrieved from http://sydney.edu.au/health-sciences/ncch/ichi2016.shtml Google Scholar
Youngblut, J., & Brooten, D. (2006). Pediatric head trauma: Parent, parent-child, and family functioning 2 weeks after hospital discharge. Journal of Pediatric Psychology, 31 (6), 608618. doi: 10.1093/jpepsy/jsj066.Google Scholar
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